Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling Abroad, 1st Time Since Sons Dx....help?


jmjsmomma

Recommended Posts

jmjsmomma Apprentice

Hello all,

We are 4 months into my 5 year olds celiac dx in January. He had a 3 month follow up last month and he grew 3/4 inch in those 3 months since being gluten-free! He still is not even on the growth chart, but he GREW! And more importantly, he is feeling so much better and looks healthier, has more energy, etc.

He got glutened last week at Sunday school when they played "doggy, doggy, where's your bone" with a dog bone!! Couldn't believe it but I looked at the ingredients the next day when I was at the church and sure enough the first ingredient was wheat flour. He did not wash his hands after and must've licked them. He got a terrible belly ache for which I was sad but also happy that he felt the side effect of being glutened and it strengthened his resolve to not touch gluten!

Okay, so our family takes a trip to Cozumel, Mexico each May. I refused to let this dx stop our quality of life and my son would've been devastated if we didn't go. So I was looking for any traveling advice/tips? We stay at the same resort every year and I've already talked to the manager about preparing stuff on a clean grill for him which is not a problem. I plan on taking a separate suitcase with snacks/cereals/cookies, etc for him. I would love to hear any advice you may have on making our trip a success?

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

Mexico is very celiac friendly. I've never had a problem there. I always pack a suitcase of food when I travel. I like to take along individually wrapped snacks and maybe a bag of chips or crackers for the hotel room. Other easily transportable items are jerky, peanut/nut butter and such. Shelf stable liquids like rice milk and broth also work. You might also want to take a collapsable cooler in case you go somewhere and want to take fresh fruit, yogurt, etc. Oh, and ziplock bags for make shift ice packs.

I hope you have a great time!

jmjsmomma Apprentice

Thank you Janet! We never leave our all-inclusive resort but the baggies for ice is such an excellent tip for any future travels. I figured from past visits that Mexico was celiac friendly so I am not too worried. My son loves all meats, all fruits, veggies, rice....so I am very fortunate there in that as long as the grill is clean he will be okay. He will probably be fine....me on the other hand....I got Montezuma's revenge last year for the first time in SEVEN trips! I pray it doesn't happen again :o

songstressc Apprentice
Hello all,

We are 4 months into my 5 year olds celiac dx in January. He had a 3 month follow up last month and he grew 3/4 inch in those 3 months since being gluten-free! He still is not even on the growth chart, but he GREW! And more importantly, he is feeling so much better and looks healthier, has more energy, etc.

He got glutened last week at Sunday school when they played "doggy, doggy, where's your bone" with a dog bone!! Couldn't believe it but I looked at the ingredients the next day when I was at the church and sure enough the first ingredient was wheat flour. He did not wash his hands after and must've licked them. He got a terrible belly ache for which I was sad but also happy that he felt the side effect of being glutened and it strengthened his resolve to not touch gluten!

Okay, so our family takes a trip to Cozumel, Mexico each May. I refused to let this dx stop our quality of life and my son would've been devastated if we didn't go. So I was looking for any traveling advice/tips? We stay at the same resort every year and I've already talked to the manager about preparing stuff on a clean grill for him which is not a problem. I plan on taking a separate suitcase with snacks/cereals/cookies, etc for him. I would love to hear any advice you may have on making our trip a success?

Thanks so much!

I purchased The Gluten Free Bible - and this book is full of helpful suggestions on travel AND has pages in the back that you can photocopy in many languages. I wonder if the library in your area would have this? Probably in Mexico you can just speak English but good to know about these pages for future travel. you can photocopy them and hand them to the server; It just explains you need gluten free options and asks for help.

It sounds like you are already doing a great job by calling. We went to Kauai and I was worried about where to eat etc. and by calling ahead and finding out where to eat and to shop made it so much easier. We also brought a few staples with us (In our suitcases and a separate box) just in case; We had a kitchen to use some of the time. The only thing that got us was a salad dressing at a restaurant; one server was sure it was gluten free and it wasn't. I have read in my book that buying an Amy's dressing and taking it to the restaurand can really help if you don't mind doing that. Have a great trip!

swalker Newbie

I take grapefruit seed extract when I travel. It can stop montazuma's revenge in an hour.

jmjsmomma Apprentice
I take grapefruit seed extract when I travel. It can stop montazuma's revenge in an hour.

Fortunately I did not get it till about 24 hours after our return home, but I think I'll be packing some of this just in case! I lost 4 lbs in 9 hours of throwing up which is a lot on my frame. I don't care to repeat it but am not going to lose out on a fabulous vacation either :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.