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Recovery Time


chris s

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chris s Newbie

I have tested negative for celiac both through a blood test and an endoscopy biopsy, but through my own research, doctor's help, and blood test work, have come to think that I have a gluten intolerance. Without a positive test, however, this has been a frustrating experience to say the least.

I have been gluten free for about 3 or 4 days, and have yet to experience the drastic recovery that people speak about. My doctor told me that it could take anywhere from 4-8 weeks, but I wanted to see what other's recovery times were like after going off gluten.

Thanks for your support.


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MySuicidalTurtle Enthusiast

Everyone is different and your system needs to clear and heal. My symptoms went away very fast but my body was healing and I couldn't eat spice or acid for weeks. My Brother and Mom took longer to see results. It is also hard to be 100% gluten-free right away. Slip ups are so easy and it's a real learning experience.

darkhorse Apprentice

I second that everyone's bodies are different. I also agree that your system needs time to heal. Make sure you are taking it very easy. Eat small amounts at each meal. Make sure your food is really basic right now and avoid other foods (like alcohol, dairy, sweets, spicy food, etc.) that make your stomach work harder.

I have been dealing with testing for Celiac for the last month and a half so I have been on again off again with the diet. The first time I went off gluten(and dairy) I felt better in two days. The second time I went Gluten-free Casein-free it took about 5 days to feel better. I am on my third time (and hopefully the last) of being Gluten-free Casein-free and it has been 5 days and I am still not feeling better, although every day is a little better than the last.

Most elimination diets would have you wait at least 10 to 14 days to get all the bad stuff out of your system before you start to see results. Be patient and stick with it. When you do feel better you will be glad you did.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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