Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Understanding


cbear6301

Recommended Posts

cbear6301 Explorer

Could someone help me? I know this is in no way a substitute for a biopsy but considering no doctor will help me, its all I have. I am confused over the gene panel. Any help would be great.

Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Anti-gliadin IgA 17 Units

Fecal Anti-tissue Transglutaminase IgA 11 Units

Quantitative Microscopic Fecal Fat Score <300 Units

Fecal Anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor

According to Enterolab's test results you have active dietary gluten sensitivity. This could either mean Celiac's or non-Celiac gluten sensitivity..the test unfortunately cannot tell us which one it is.

I have the same gene as you but only 1 copy. I am SO GLAD to see that they changed their interpretation of HLA-DQB1*0202...when I had the testing they called it a "gluten sensitivity" gene. With a right alpha allele it can become a Celiac gene. I'm glad they've specified this :)

What other testing have you had done previously? Have you tried the diet and seen results?

cbear6301 Explorer

I have had a mulititude of symptoms, they are all listed in my sig line..where do you see that I have two copies of the gene, thats the part I don't understand. My results and your results seem similar...

I admit.. i am confused.

Yes I have been on the diet since 4-1... huge difference in my life.. i would never go back but needed verification above and beyond for personal reasons...

thank you!

Traveller Rookie
I have had a mulititude of symptoms, they are all listed in my sig line..where do you see that I have two copies of the gene, thats the part I don't understand. My results and your results seem similar...

I admit.. i am confused.

I have two copies of the 0202 gene also, one on each allelle. One from my father, and one from my mother.

Lisa Mentor

Here is some great information on genetic testing:

Open Original Shared Link

Thirty-five percent of the general population carry the Dq2 and Dq8 gene and only 1-4% of those will develop Celiac.

cbear6301 Explorer

wow.. this is confusing to say the least. I keep trying to find a site that breaks this down in english :huh:

Lisa Mentor
wow.. this is confusing to say the least. I keep trying to find a site that breaks this down in english :huh:

Your gene panel from Enterolabs, tells you that you MAY be predisposed to Celiac(among 35% of the general population), although there is no clear "Celiac" gene, only a predisposition to Celiac as well as other autoimmune conditions. The article I posted was pretty clear.

In english, if gluten bothers you, don't eat it. If it bothers you, you either have a gluten allergy, a gluten sensitivity/intolerance or perhaps Celiac. That's pretty much the bottom line, unless you want to try some conventional testing.

If going gluten free is an asset to your heath, continue on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor
I have had a mulititude of symptoms, they are all listed in my sig line..where do you see that I have two copies of the gene, thats the part I don't understand.

This is from your first post:

HLA-DQB1 Molecular analysis, Allele 1 0202

HLA-DQB1 Molecular analysis, Allele 2 0202

Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

That is 2 copies of the same gene :)

cbear6301 Explorer

ok , thank you for explaining that. I know it may sound stupid but that didn't make sense to me, I am sorry.

I don't mean to be confused. I read the article but I guess I wanted more of an explanation. But its okay.. thanks for all the help.

leadmeastray88 Contributor
ok , thank you for explaining that. I know it may sound stupid but that didn't make sense to me, I am sorry.

I don't mean to be confused. I read the article but I guess I wanted more of an explanation. But its okay.. thanks for all the help.

Oh don't feel bad! :) We were all there once!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,559
    • Most Online (within 30 mins)
      7,748

    gracedomingo
    Newest Member
    gracedomingo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.