Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iugr - Growth Restriction - Advice On Premie


MichelleinMA

Recommended Posts

MichelleinMA Newbie

:unsure:

I had a normal ultrasound and amnio at 16 weeks. At a follow-up at 21 weeks, the baby's situation changed to have low amniotic fluid and slowed growth. 2 weeks later the baby has entered the official IUGR range of being below the 10th percentile of growth and the fluid has decreased to a 3.

The doctor is saying we should begin to consider delivering when the baby reaches about 500 grams (1 pound). Yikes!!!!

Does anyone have experience with IUGR this early in pregnancy? Anyone have advice on what worked for them? Do you have experience with an extremely low birth weight baby in the NICU? Any advice?

Lastly, I have two children almost 8 and 5 1/2. If you have experience, when and what to you share with older children?

Thanks for your advice and prayers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast
:unsure:

I had a normal ultrasound and amnio at 16 weeks. At a follow-up at 21 weeks, the baby's situation changed to have low amniotic fluid and slowed growth. 2 weeks later the baby has entered the official IUGR range of being below the 10th percentile of growth and the fluid has decreased to a 3.

The doctor is saying we should begin to consider delivering when the baby reaches about 500 grams (1 pound). Yikes!!!!

Does anyone have experience with IUGR this early in pregnancy? Anyone have advice on what worked for them? Do you have experience with an extremely low birth weight baby in the NICU? Any advice?

Lastly, I have two children almost 8 and 5 1/2. If you have experience, when and what to you share with older children?

Thanks for your advice and prayers.

No advice but I'll send lots of prayers!

My sister is a NICU RN - she's worked in a Level III NICU (which is where you'll be if you need it) for 25 years since graduating from college/nursing school. Those nurses are so dedicated and so caring. You will find that they give good advice and help support the parents while they care for the babies. My best to you. Hugs and kisses for your little one.

Fiddle-Faddle Community Regular

My first baby was IUGR, but not until the second half of the pregnancy.

I'm assuming you are on bed rest?

If you are not now under the care of a high-risk specialist, I would look into switching ASAP.

Best of luck, and lots of prayers on their way to you!

foodiegurl Collaborator

My daughter had IUGR (and I had severe pre-eclampsia and HELLP), but it was not caught until she was born. She was born at 38 weeks, at only 4 1/2 pounds, but other than being small, she was perfectly healthy! And by 6 mos, she was the same size as all the other 6 mos old babies :)

wannaBAmama Newbie

I responded to a similar post last week on sillyyaks - I'm not sure if you are the same person. I've been involved with reproductive immunologists who have been monitoring my pregnancy and treating my immune system flares (high natural killer cells) with regular IVIG infusions. I read a thread on the public support board which talks about 2nd trimester IUGR and low amniotic fluid sometimes being caused by an immune flare. Here is the info I posted there:

thread about IUGR and low fluid:

Open Original Shared Link

Alan Beer Center (note: Dr Beer passed away but other doctors have taken

it over- and there are other RI's around the world who follow their

treatments)

Open Original Shared Link

good luck to you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.