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sharkmom

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sharkmom Apprentice
sharkmom
Posted

I recently tested positive to wheat, soy, dairy, and egg allergies. This came as quite a surprise since I am not aware of any adverse effects after eating these things, or is it I dont realize some of the effects. I have been a Type 1 diabetic for 28 yrs. I follow a 1200-1400 calorie meal, which consists of a lot of fruits, veggies, salmon, chicken, low-fat, high fiber foods. I dont even know where to begin with changing my diet to rid of all these allergens or if it is completely necessary. I would appreciate some directions.

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Youdah Newbie
Youdah
Posted
I recently tested positive to wheat, soy, dairy, and egg allergies. This came as quite a surprise since I am not aware of any adverse effects after eating these things, or is it I dont realize some of the effects. I have been a Type 1 diabetic for 28 yrs. I follow a 1200-1400 calorie meal, which consists of a lot of fruits, veggies, salmon, chicken, low-fat, high fiber foods. I dont even know where to begin with changing my diet to rid of all these allergens or if it is completely necessary. I would appreciate some directions.

It takes a time of adjustment. Not only with your eating habits, but how you think about food. Start looking for recipes that sound good to you, and make a shopping list. In time, you'll find that your new "diet" is something you enjoy. It doesn't need to be a deprivation, but it can be an exploration of foods and recipes you haven't tried before.

It sounds like you are already close to a healthy diet, already eating things that you can tolerate. So with a little more adjustment, you will do fine.

If you've always eaten glutens that you shouldn't be eating, you may not ever have noticed the reactions, because you "always" feel the same. You don't have anything to compare it to. Once you've gone gluten-free for awhile, you may begin to notice how it was affecting you.

Everyone is a little different, though. You may not notice anything dramatic that is different. BUT, a big difference for your body is that it won't be in a "high alert" immune reaction all the time, trying to deal with things it can't use, or things it interprets as bad for you.

Try a total abstinence of the things your doctor has shown you. This is the only way you can figure out if you can tolerate them in small quantities. But first, you have to try to go totally gluten-free so you have a "baseline" of how you do without it.

There are lots of good folks on this forum, WAY more knowledgeable than me on this subject. I'm sure if you take the time to read some of the past discussions, you'll get some good ideas and directions.

Hang in there. You aren't alone with this challenge.

daphniela Explorer
daphniela
Posted
I recently tested positive to wheat, soy, dairy, and egg allergies. This came as quite a surprise since I am not aware of any adverse effects after eating these things, or is it I dont realize some of the effects. I have been a Type 1 diabetic for 28 yrs. I follow a 1200-1400 calorie meal, which consists of a lot of fruits, veggies, salmon, chicken, low-fat, high fiber foods. I dont even know where to begin with changing my diet to rid of all these allergens or if it is completely necessary. I would appreciate some directions.

At least your not allergic to corn. You can eat corn tortillas, rice cakes, rice milk, coconut milk, and almond milk. I would look into some thai recipes.

sharkmom Apprentice
sharkmom
Posted
  • Author

Thanks for your help. You know, I dont think it'll be too bad because there are other choices. I just need to go through my pantry, read labels, and get my kitchen organized. Looks like I'll have a busy weekend. BTW, have you changed your entire household to gluten free?

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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