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Vitamin K Deficiency


Candy

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Candy Contributor

I read on a science page somewheres that von Willebrand Disease can cause bleeding ,mostly excess menstrual, but also in the joints, and bruising. I took note of it because ,I have leaky blood,and a kindly Angel (it's an evil world,so she must have been an Angel ,as many on this forum are) on this site told me to take Vitamin K- but get K2 if you can, it's known to be easy on the heart and stays in the blood longer ($6-8 at vitacost.com or anywhere you like).

Anyway,getting back to von Hillebrand Disease, I read on wikipedia that there are two forms of it .One inherited and the other Aquired By People With AutoImmune Antibodies; believe it or not Celiac Disease and Sjogren's Disease (I have both) were listed,but also remember that there are many AutoImmune Diseases and AutoImmune Antibodies Out There ,so also listed were Type-1 Diabetes, Lupus, Rheumatoid Arthritis and the like ,many of which Co-exist along with Celiac Disease. SO Celiacs COULD have aquired von Willebrand Disease through having AutoAntibodies.I don't know the URL address of where I found and read this,but there is a good explanation of it at wikipedia here. Open Original Shared Link .org/wiki/Von_Willebrand_disease

From Candy

PP I love this forum,without it I'd be dead for sure,and no one would know what from.But I don't like the gluten-free store; they far too pushy-I eat regular foods meat and potatoes and go to whole Foods for gluten free flour.


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strawberrynin Newbie

Possibly an old wives tale, but I had once heard that some exposure to sunlight helps increase the absorption of Vitamin K.

Candy Contributor
Possibly an old wives tale, but I had once heard that some exposure to sunlight helps increase the absorption of Vitamin K.

Yeah well, Lynn, sittin' in the sun all day ain't practical or safe for most people.

Besides supplement is sold , so somebody must need it and my Celiac blood is runny;For your information some foods contain Vitamin K like Olive Oil,and Parsley,but it ain't practical to sit around eatin' Parsley and Olive Oil all day either.....but I have switched to all Olive oil for my cooking since I hear it is good for people.

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    • trents
      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
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    • trents
      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free."
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