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Able To Lower Prescription Dosages Once Gluten-free?


Michiganlady

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Michiganlady Newbie

Hi, I am 6 months gluten-free. I tested negative on antibody blood test, but had Vitamin D level of around 10 and felt better without gluten. I am on a couple of meds which cause fatigue as a side effect, and have noticed since going gluten-free this side effect is much more profound. I am wondering if maybe the med is getting absorbed better, just like nutrients are. Has anyone else experienced this and been able to go down on their meds?

Thank you.


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digmom1014 Enthusiast

Yep-my HP med went from 10 mg to 5 mg and I'm going friday to be re-tested again. Maybe they'll take me off of it altogether!

Michiganlady Newbie
Yep-my HP med went from 10 mg to 5 mg and I'm going friday to be re-tested again. Maybe they'll take me off of it altogether!

Thanks for posting Sarah. I'm glad to hear I'm not imagining it!

Crayons574 Contributor

I had this same problem too! I take thyroid meds. and had to decrease my dosage when going completely gluten free. Amazing! Hopefully we can ween off of all our medications...That'll be the day! :D

YoloGx Rookie

Just in case--you should check to make sure your meds are gluten-free!

But apart from that, being off gluten often decreases one's depression, anxiety etc.

Bea

pinkdljj Rookie
Hi, I am 6 months gluten-free. I tested negative on antibody blood test, but had Vitamin D level of around 10 and felt better without gluten. I am on a couple of meds which cause fatigue as a side effect, and have noticed since going gluten-free this side effect is much more profound. I am wondering if maybe the med is getting absorbed better, just like nutrients are. Has anyone else experienced this and been able to go down on their meds?

Thank you.

Hi, this might not be exactly the same thing but I was able to wean off of Celexa (antidepressant) since going gluten free. I had terrible anxiety and depression and once I found out it was the gluten and casein, I am almost 100% better. It did take almost two years to reach this point....and so worth it. One more drug to get off and then I will be prescription drug free for the first time in 9 years. Yeah!!!! I really think that there are thousands of people suffering from gluten and casein intollerances (and others) and taking drugs to help get through the side-effects. But the side effects of the drugs can be awful in their own right. I tell everyone I know to get tested if they take antidepressants, etc...it just might be a food intolerance.

ranger Enthusiast

I've been gluten free for 6 months, and my glyburide (for diabetis) has gone from 2 pills a day to 1/2 a pill a day. My new prescription will be 1/4. I can't wait till it's 0! But, my blood pressure meds will not go down, so, who knows?


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Random-Guy Newbie

i went gluten free 01/01/2006

tapazole free (WAS for hyperthyroidism) about 2 years later.

there's no way to prove there's a cause/effect relationship, but i'm VERRRRRRY HAPPY that i didn't do the radioactive iodine treatment for my thyroid years ago like my doctor wanted.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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