Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thinning/balding Hair?


Guest ajlauer

Recommended Posts

Guest ajlauer

Does anyone have a problem with premature thinning/balding of the hair? I'm 27. Trying to figure out what course of treatment to try and get my hair back. Here's the thing.... My hairdresser friend recommended Nioxin vitamins. Do vitamins even work for celiacs that aren't gluten free?????? I probably won't know for awhile whether or not I have celiac disease. I know it takes a few weeks for the tests, and I don't even have an appointment with the GI yet. So assuming I can get in immediately, and he isn't a jerk, and would be willing to test.... I'm still 2 weeks away.

Anyways, is hair problems a symptom? And what is anyone else's experience with treating it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SueD Newbie

Several years before I figured out that I was sensitive to wheat, I noticed that my hair was thinning (dramatically). I could pick up handfulls of hair after I shampooed. I tried multiple shampoos, no improvement. Then I started using just a bath soap (which I have since found is gluten-free) to wash my hair, and the problem quickly resolved. Now I'm using a gluten-free shampoo, and my hair is thicker and shinier than it has been in years. I think vitamins could help, but I'd suggest a gluten-free shampoo, too.

Guest Viola

Hair loss is also a common thing with low vitamin B12, which is also a possible symptom of Celiac.

Guest ajlauer

Thanks for the replies! Sue, what is the name of the shampoo you use? Are there some "over the counter" types found at Walmart? Or do you have to go to a salon? My hair is very dry and frizzy, but scalp gets oily very quickly. Color treated also, but it's pretty much faded by now. Thanks.

hthorvald Rookie

Yes, my hair is falling out, too. I complained to my doctor, who immediately tested my thyroid and my hormone levels (I'm at that age). All were normal, so I'm thinking my shampoo my be the culprit.

A gluten free shampoo was mentioned. Can you post the name of this shampoo and how to get it? Conditioner, too. I use Neutrogena, and as I found out today, it's wheat free, but the company doesn't guarantee that others grains aren't used. So, maybe I've solved the problem of my hair falling out.

Thanks,

Helen.

SueD Newbie

I've been using products from the Gluten-Free Savonnerie (www.gfsoap.com). They're gluten, casein, soy, nut, fragrance, and colorant -free, but make wonderful lather. The owners of the company are very responsive to requests and can ship you a travel pack (sample sizes) if you want to try it before buying bigger sizes. It is a little expensive, but it's been worth it for me (since I'm still new at this) not to have to try to decipher the labels.

hthorvald Rookie

Sue, thanks for the URL. Can you recommend one of these shampoos that leaves your hair shiney? My hair is a little dry, but can get oily by the end of the day.

Thanks,

Helen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I use Dove shampoo and conditioner...Dove will not hide anything.It really is good for my hair even though I have not had a problem with my hair dry or thinning if fact my hair is thick. It does help after it goes through processing like coloring and my hair used to get oily with certain shampoos. I really like Dove brand so just check the labels.

SueD Newbie

The GFSoap folks have 3 kinds of bar soap, one liquid soap, one shampoo and a conditioner, and a lotion -- all gluten-free. I think some folks also use Garnier fructis (available at the local grocery and drug stores).

Guest gfinnebraska

I use Pantene, which is also gluten-free. They have several varieties for different hair types. I have also read that Suave products are gluten-free.

KaitiUSA Enthusiast

I have read that Suave does not add any gluten containing ingredients but they do not test...

cdford Contributor

Not all the Pantene ones are gluten-free. I checked on the brunette one last week and it was not. Neither are any of the others of those type that I have checked so far. Bummer...I don't want to color my gray, just help it not look so obvious. Anybody else noticed that upon going gluten-free their gray hair began to look less gray?

Binks Newbie

I too have had problems with my hair ever since the onset of celiac disease. It has been about ten years now of progressive thinning, with my hair getting weaker, more brittle, dry, dull, lusterless, flakey scalp....Nioxin is terrible and contains wheat. I have tried many shampoos but am sensitive to the sodium laureth and larutyl sulfates which make my scalp intolerbly itchy.

What I have come to discover helps is using Shen Min Activator scalp treatment twice daily, and taking lots of B-vitamins, essential fatty acids, enzymes to absorb and digest it all. It seems that poor nutrition and hormone imbalance are involved. Avoding foods that I am sensitve to and taking DIM (diinolymethane) to modualte hormones like DHT and estrogen has helped the most. I am actually regrowing hair.

I guess it's tough to say whether it's from celiac disease or the other dozen aiments I seem to have which all seem to be a result of having celiac disease....Hope this helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,746
    • Most Online (within 30 mins)
      7,748

    Hughesy
    Newest Member
    Hughesy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.