Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Symptoms- Could It Be Celiac


smitchell

Recommended Posts

smitchell Newbie

Here is my story.

Overweight, family hx of colon cancer. I had a terrible flu in December and haven't been the same since.

I have been diagnosed with:

Thyroiditis

Arthritis

GERD

severe joint pain

costochondritis

Vitamin D defiency

PCOS

Depression

I recently had a biopsy of my nodule on thryoid and it was benign. I had a colonscopy and endoscopy on Friday. I begged for the endoscopy since I constantly feel like something is in my throat and I have gas all the time. I fasted for a day for the colonscopy and felt great? I now have been off Gluten the entire week. I haven't had 80% of the joint pain I was experiencing at all.

I asked to be tested for celiac since my GP suggested it. The doctor and nurse looked at me like I was crazy since I am overweight.

Question, if I fasted would that affect biopsy results? He said he took several biopsies of my stomach and esophagus. He said they are inflammed. It just seems my entire body has inflammation- joints, stomach, esophagus, thryoid. Any relation or should I take a different route? My next appt if this goes nowhere is with a rheumatologist.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katrinacara Rookie

This is really scary, but your case sounds almost identical to mine.

My main issues were arthritis and inflammation all over...especially the stomach, bowels, esophagus.

The way I found that I have celiac is just by the diet. I really got the run around from doctors and just gave up on all the meds and tests. I've never done the biopsy, I just know I have celiac by the diet because I'm 100% better.

For your question about the biopsy...It depends how long you fasted. Since gluten causes damage to the small intestine for a celiac, if you're not eating it, your intestines start to heal. If you feel completely healthy, I wouldn't do the biopsy since it takes a week or two to heal completely. Normally you have to be consuming gluten for 6-8 wks on a daily basis to get positive results if you do have celiac. Even then...the results could come back negative.

I would say that if the results come back negative you should still go gluten free. It has definitely worked for me...except for the GERD...I'm still working on that one

Hope everything works out for you :)

ang1e0251 Contributor

Sounds to me that you just fasted for a few hours for your test. That won't be a problem. But the other poster is correct. Going gluten-free is a good trial for you. Your tests could prove negative that's not uncommon. You could still be gluten intolerant and no test will prove that. But a solid dietary response will. No matter your test results, give the diet a try.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,786
    • Most Online (within 30 mins)
      7,748

    Vloyola
    Newest Member
    Vloyola
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
×
×
  • Create New...