Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got My Biopsy Results What Should I Do?

smitchell

Recommended Posts

smitchell Newbie
smitchell
Posted

I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


70SS396 Newbie
70SS396
Posted
I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

I would call your doctor immediately and ask him/her to explain it to you.

And if you don't mind me asking, have you noticed a difference being gluten-free for the week? Has it help with what ever symptoms you were experiencing?

smitchell Newbie
smitchell
Posted
  • Author

Yes, I feel 90% better than I did wednesday night a week ago. I am so fearful of a flare up to totally discount the gluten free factor.

My thought is, perhaps I should just remain on this type of diet, and check and see. My fear is that I feel like a poser. Like I am not really a celiac, therefore, I shouldn't be following this, since I have not been diagnosed.

I will call the doctor tomorrow, I just wonder if there are specific questions I should ask? Like did you check for celiac? what does the inflammation mean? How should I handle this?

I would call your doctor immediately and ask him/her to explain it to you.

And if you don't mind me asking, have you noticed a difference being gluten-free for the week? Has it help with what ever symptoms you were experiencing?

dedeadge Newbie
dedeadge
Posted
I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

Definitely call your doctor and ask for additional information. An inflamed esophagus could be many things, two of which are acid reflux and Eosinophilic Esophagitis (EE), both of which can cause inflammation (my daughter has both). Ask him specifically if they did a biopsy of the esophagus and if they tested for the # of eosinophils (anything higher than I think 10 is indicative of acid reflux and/or EE).

Your doctor's office should have called you (either way). If you're not happy with what he/she tells you, get a second opinion.

Scorp05 Newbie
Scorp05
Posted
I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

Hi,

I too had a clonoscopy years ago and was told I had mild case of bowel dissorder and they basically did nothing or gave me any advice about what to do about it.

here is my story- I am 45 no but at 21 years of age I had problems with my bowels- I had an operation and was told I'll be fine. I went on my way to find that as I aged I seemed to get really bad symptoms- I went to the allergist and was tested- again nothing. I went to my doctor and was told I was fine. Very frustrating becasue I knew there was something wrong- but I couldn't figure it out.

During a very stressful divorce- my symptoms got really bad and I blew up like a blow fish- had (too many symptoms to list here-hah) very bad cramps, and was not able to get a hold of the problems- the sysmptoms I felt just got worse. I went to a naturopath and i took a voodoo type of test- but I went with the results and followed the prescription that I was given. Wow within a month I was feeling 100% better and had energy and felt good about myself. My body went back to normal and I was in good shape and feeling really good.

The problem I faced after- was it possible to maintain the lifestyle my naturopath told me to follow- NO WAY. I was eating nothing but basic basic foods and very difficult to do when you are on the road 5 days a week. So over the years I introduced new foods one at a time and thought it was at least livable.

Time moves forward and another stressfull time happened and boom- I am full blown out symptoms and no where to get advice- Now I got to my doctor and explained every sysmptom I had and my doctors said I should take a Celiac blood test.

I too am waiting to get the results- I know I have food allergies- I am not sure if it is gluten- my bet is YES! either intolerance or Celiac- either way I know how my body reacts.

Follow your instincts- you may want to try fasting on strictly soy beverages and brown rice for a few days or a week- then try eating a few peanuts- see how your body reacts. Wait a few more days and try some corn and them other foods. If it isn't Celiac- it could very well be other foods or chemicals.

I wish you the best.

Shawn

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.