Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possibly Newly Diagnosed


xraymo3

Recommended Posts

xraymo3 Newbie

I went to the DR today w/ my current list of problems. She has ordered Blood tests for Celiac Disease.

Where can I find a list of stuff that I CAN eat in case I do have this disease? Obviously wheats, breads, pastas are out of the question. Also, what about Activa? And Cranberry Juice? I have really bad kidneys too, so cranberry juice and pills are an everyday source of intake for me. Also, I order salads w/ ranch when I'm out to eat.... Ranch out of the question too?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brigala Explorer

Welcome! The diet is overwhelming at first, but really it does get easier. Keep in mind that even if your blood tests come back negative for Celiac, if you have symptoms that are consistent with Celiac you might want to try the gluten-free diet anyway. The blood tests are not always accurate.

I would probably not recommend that you start the diet immediately. Your doctor may still want to order more tests, including a biopsy of your intestines. Cutting gluten from your diet now might compromise those test results. Wait until your doctor has told you that he/she has already done all the testing that you're going to get.

As for your specific questions, cranberry juice should be ok, but read the label anyway just to be safe. It's strange how many products contain gluten that you would never think of.

There are many many ranch dressings that are fine. I think the regular Kraft ranch is safe. My favorite is Newman's Own, and it's safe. It can be hard to know what a restaurant is using. When you find a favorite Ranch dressing that's free of gluten, you might want to buy packets and carry them around with you so you can order salads and use your own dressing. You are lucky that you can eat salads. It's a mainstay for many Celiacs when they're out. My allergies to cucumbers, carrots, tomatoes, etc.. make salads at restaurants pretty challenging for me. ;)

The quick list of common things you can eat on a gluten-free diet include most non-breaded meats (careful of seasonings, some include wheat), fruits and vegetables, corn, rice, and potatoes, fish, shellfish, wild rice (watch out for pilaf, it often contains little rice-sized pasta), hummus, corn tortillas and corn tortilla chips, beans, most Chex cereals, most dairy products including butter, cheese, milk, ice cream, and yogurt. None of these items are "absolute" -- you will find wheat and barley in very unexpected places, so you will always have to read your labels... but, generally speaking, you should be able to find brands of all these items that are gluten-free.

There really is a lot you can eat on a gluten-free diet... and I didn't even get started on all the specialty foods you can get: gluten-free pastas, gluten-free pizza crusts, gluten-free cake mixes... those will drive up your food bill, but they are available.

It's discouraging at first, but it does get better. I actually find that I eat better food now than I did before because I buy so much more fresh and cook so much more from scratch.

I have to go cook dinner now. I'm making a bacon & cheese omelette (I raise chickens and need to use some eggs). I haven't decided yet whether to make fried potatoes or some gluten-free pancakes from my Trader Joe's gluten-free pancake mix. So many choices!! :-)

-Elizabeth

Jonbo Apprentice

It's definitely overwhelming at first (my first week my mind went into complete meltdown). Now though, I've started developing a comfortable niche on what I can eat daily and while I'm more boring on foods since I don't like to get outside of my niche much :P I know that my "boring" meals keep me from severe pain, etc... and I'll take that any day of the week.

The best thing about getting Celiac now, is that companies are learning it's not a little problem and as witnessed just this year alone, big name companies are putting an effort to fill our niche. Pricey, but not things you buy all the time. Also, the internet is an extremely great resource for researching ingredients and/or foods (not to mention just calling a company if you aren't sure by reading the ingredient label)

xraymo3 Newbie

Well It may be sad to say, but I hope they find SOMETHING. Im tired of being miserable. First diagnosed as Candida, now changing of the minds today and leaning toward celiac. Just get so frustrating as I've been dealing with the Candida diet..... which is tough, and now I have to dig into the ingredients for other reasons now.

LDJofDenver Apprentice

Should your tests send you down the gluten-free road, there are lots of resources. Many free. And most manufacturers are happy to send/email you a list of "safe" products they make (like Heinz, etc.).

Gluten can be hidden in lots of ingredients, can even be in salsa, ketchup, or (believe it or not) ice cream.

Read labels.

You can buy mainstream grocery shopping guides that are excellent, don't know what I'd do without it! Below are two different sources:

Open Original Shared Link

Open Original Shared Link

And if you need to eliminate gluten from your life, you'll also need to get a new toaster (seriously).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.