Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ot - Singulair - Bad Reaction!


Jana315

Recommended Posts

Jana315 Apprentice

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brigala Explorer

I've been taking Singulair every day since it was new on the market, and never had an issue with it. I know that doesn't mean a whole bunch, though. I'm sorry you reacted to it.

Fiddle-Faddle Community Regular

I had a very bad reaction to Singulair, which was prescribed to me when I had bronchitis/pleurisy as a reaction to the flu shot.

It made my coughing and wheezing immediately worse--much worse-- rather than better, and my doctor didn't believe me when I called him to tell him that. He switched me to Advair--and the same thing happened. The doctor didn't believe that that was possible.

He wanted me to take more, and I refused, and asked if I couldn't just use albuterol instead. He agreed, I did, and the albuterol helped a lot. I've not needed any kind of inhaler since. (I used to have mild exercise-induced asthma until I went off gluten.)

This was several years ago. A few months after this episode, both Singulair and Advair began to carry a black-box warning; apparently, some people died from their reactions to it.

I do not know if they still carry that black-box warning.

JillianLindsay Enthusiast

I've been on Singulair for years and never had a problem other than tiredness (and I take it at night of course so it's a welcome SA). When I was diagnosed with Celiac, my pharmacist called the company directly and they told her the product is gluten-free. Perhaps there's something else in it you are reacting to, or you could have a very sensitive stomach and experienced the GI SA they mentioned. Hope you figure it out! Singulair has been so helpful to me due to my asthma and allergies. Good luck!

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana

tarnalberry Community Regular

You should let your doctor know about the reaction. I'm guessing that it was likely reacting to the med itself, not gluten in it. While many people will do fine on many medications, it is completely possible to have a bad reaction to one.

  • 1 year later...
pelsteen Newbie

Sunday night & Monday night, I woke up with horrible coughing fits - I am having allergies right now to something in the air... On Monday night, it was so bad that I couldn't stop coughing, tried lots of things. Finally, in my sleepy stupor, I grabbed a Singulair pill that I had from a trial pack. I did get back to sleep & stopped coughing, but I woke up feeling heavily drugged (not common unless I'm glutened) and had very intense stomach/intestinal pain/gas/cramping ALL day yesterday and into the night last night.

I've googled Singulair and it is suppose to be gluten-free, but I found another gluten-intolerant person who reacted badly to it. I looked at the list of side affects and the top ones are tiredness/fatigue, stomach/intestinal issues. It is strange that I never noticed the intensity of the side affects until going gluten-free (going on 2 months now), but I don't take allergy meds very often, only "as-needed" and most times, not even when I need them, only when I'm in dire need.

Has anyone else had such a nasty reaction? How long did it last? I think I'm better today, but the day is still early....

Jana

I have been gluten free since 8/17/2010 but have continuing low-level cramping disrupting my sleep. I've been taking 2 5mg chewable Singulair tablets for about 5 years due to allergies, sinus infections, and comstant respiratory illness. Since I got my latest refill, I have been spending 2-3 hours/night cramping and not sleeping when I take one tablet before I go to bed. When I take two, I get a gluten reaction half as bad as what I had before God answered my despair and told me I had Celiac disease. Last night, I spent 16 hours in bed and may have slept about 8. As of now, I'm DONE with at least that bottle of pills. Getting a respiratory infection is better than being almost completely unable to sleep!!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.