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Could I Be Celiac? Please Help


blue102

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blue102 Newbie

I'm a 25-year old female. I don't have any major issues at the moment, but I have had lots of little issues all my life, and I'm obsessed with trying to figure out what is wrong with me. Maybe I'm a hypochondriac...but I know something's not quite right.

First of all, I was diagnosed with clinical depression and anxiety around age 14, but that started around age 12. I was put on antidepressants, and have been on and off them ever since. I always end up having a breakdown and going back on them. I have also been diagnosed with PMDD.

I had many emotional problems in high school, and looking back, I was almost schizotypal: believed that God was speaking to me through signs and music, severe paranoia (thinking people were spying on me, thinking I was being talked about, etc.), severe social anxiety, low motivation and energy, thinking that I was being given profound insight from some higher power, etc. Yeah, crazy! That all stopped when I went on the antidepressants.

I have recently been reading a lot of psychology and I think I may have a few autistic traits, including a tendency to become absorbed in an interest, incessant skin-picking (insert EWW here), and some distractibility, among other things. I recently visited a psychiatrist to see if I might be ADD, but he determined I'm not. So why is it that I have two college degrees and can't keep a job? I've had 7 jobs in the last year. Psych says I get bored too easily, which may be the case. But I think there is an issue with focus somewhere.

Sometimes when I'm stressed my mind shuts off. When I meet someone new, it's a stressful experience for me because I'm shy, and I've been known to stutter, garble my words, and blank out on many an occasion.

I also have Vocal Cord Dysfunction, and I get attacks sometimes where I can't breathe. This isn't asthma. It's related to anxiety, supposedly. Funny, I don't feel anxious when it happens.

So in my search to find what the name for my wierdness is, I've crossed several things off the list: Asperger's, ADD...god...even personality disorders. Nothing is wrong with me. I've been told that I'm just gifted and have a hard time relating to people. But that wouldn't explain the blank-outs and concentration problems.

I keep coming across this "gluten allergy" stuff on the net. I would be happy to give up wheat if it would end these silly issues of mine. It would be nice to know that it's something as simple as that, and not some brain disorder that I need meds for.

I could be completely off base, but I was wondering if this could be the culprit. I have heard that celiac disease can cause symptoms like these. On another note, my sister has ulcerative colitis. Am I on the right track here?

Any advice or insight would be greatly appreciated!!!

Edit: I'm going to add also that I've had severely chapped lips all my life. It doesn't seem to ever improve much, and it's getting worse...?


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ianm Apprentice

I had many of the problems you just described before going gluten-free. I had VERY low energy and could not focus on anything for any length of time. I had very severe social difficulties. It was difficult for me to speak, put two sentences together and engage in a coherent conversation. In the time that I have been gluten-free all of that has gone. I have lots of energy and am clear headed. The social anxiety is much better now. I am 37 and the problems I still have are more habits than gluten induced. I work at it everyday and it gets better a little each day. I am not the person I used to be a year ago and that is a GOOD thing. You have nothing to lose by trying a gluten free diet. The changes won't happen overnight, it will be a good 2-3 months on average before you notice any difference but it is worth it to try.

KaitiUSA Enthusiast

For the chapped lips thing-that is the first sign of dehydration and you should drink more water.

I think you should in fact be tested. What your sister has is something that celiac disease is often mistaken for. Also the symptoms you are having can be associated with celiac disease. Some people don't even have any symptoms with it. I would get these tests done:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-Tissue Transglutaminase (tTG) IgA

-Total Serum IgA

I would also get the gene test done to see if you carry a celiac gene.

Good luck and if you have any questions you came to the right place this is a great place for support and info.

blue102 Newbie

Hey guys, thanks for the replies. I plan on having the tests done sometime in the future (finances allowing). I've printed out the list you gave me, Kaiti, thanks. I think I will try the gluten-free diet until then, and see if it helps.

KaitiUSA Enthusiast

If you are getting further testing do not go gluten free yet. This will mess with the accuracy of the tests. They need you on gluten heavily for a good 3 months to get accurate results. Just keep that in mind :D

Lesliean Apprentice

I was told I had vocal chord dysfunction when I really had vocal chord inflamation due to gluten ingestion. It took 6 doctors to finally diagnose it correctly and then it was my discovery that it was gluten that was causing the symptoms. Now that I am gluten free my breathing is completely normal. I wish for you the same!

Good luck,

Leslie

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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