Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Went Gluten Free And Feel Terrible..is This Normal?

nj36

By nj36
in Coping with Celiac Disease

Recommended Posts

nj36 Newbie
nj36
Posted

Hi - I was very recently diagnosed as having a gluten allergy and just started my gluten-free diet 2 days ago. I know it will take time to see results but right now I feel awful. Nauseated, terrible heartburn, and I've been sleeping most of the day. Is it possible to go through withdrawal from gluten or for my body to be de-toxing from the gluten? Has anyone else experienced this and how long does it last? Any advice or tips are much appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Yes, it is possible. I didn't but I have read of so many others... it is a typical reaction.

When I was trying to figure out what to avoid, I would get into these funks where I was unknowingly cross contaminating myself. I would do fruit and water and green tea only for several meals and that would clear it up. At first you're hungry, but then your head clears and you feel much more energetic.

fran641 Contributor
fran641
Posted

I do remember terrible nausea and the tireness. I would drag around the house for a couple weeks. Everyone told me it would take time to clear the gluten out but when I started feeling better I could think clearer and had energy. Good luck and hope you feel better soon.

JRS Rookie
JRS
Posted
Hi - I was very recently diagnosed as having a gluten allergy and just started my gluten-free diet 2 days ago. I know it will take time to see results but right now I feel awful. Nauseated, terrible heartburn, and I've been sleeping most of the day. Is it possible to go through withdrawal from gluten or for my body to be de-toxing from the gluten? Has anyone else experienced this and how long does it last? Any advice or tips are much appreciated!

It took me approximately two weeks before I felt 80% better. I am not in my 3rd month of being gluten free and most days I feel 90% or so back to normal. Unfortunately, something no one ever told me, that you may become hypersensitive as your body "detoxes" from the gluten and each subsequent reaction is worse and harder... I'm going through one now and for the first time it actually made me leave work... ugh!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to maryannlove's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Yasso frozen yogurt bars - be careful

      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    2. Scott Adams
      - Scott Adams replied to cristiana's topic in Traveling with Celiac Disease
      1

      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Frustrated

      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real...
    4. Beverage
      - Beverage replied to Betsy Crum's topic in Related Issues & Disorders
      8

      Chest pain from celiac

      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before...
    5. Wheatwacked
      - Wheatwacked replied to Mrs. Cedrone's topic in Related Issues & Disorders
      4

      Canker sores

      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores. Vitamin D deficiency is very common in Celiac Disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,412
    • Most Online (within 30 mins)
      7,748
    Saharon
    Newest Member
    Saharon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Yasso frozen yogurt bars - be careful

      By Scott Adams · Posted

      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    • Scott Adams
      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

      By Scott Adams · Posted

      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly aware of celiacs, and he has made the switch to gluten-free soy and fish sauces. 
    • Scott Adams
      Frustrated

      By Scott Adams · Posted

      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real struggles you’re facing daily. It’s concerning that previous doctors dismissed your celiac diagnosis, and now you’re left fighting for validation while dealing with unexplained symptoms like eye pressure, skin issues, and relentless pain. Menopause and long COVID may be complicating things further, making it even harder to pinpoint the root cause. Are you sure your diet is 100% gluten-free? Do you eat in restaurants...if so, this can be a source of contamination. Trace amounts of gluten over time could explain your symptoms. Many people with celiac disease have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Beverage
      Chest pain from celiac

      By Beverage · Posted

      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before meals with protein, heel thumping, and until it healed, taking DGL after meals to coat...do NOT take antacids https://drjockers.com/acid-reflux/ DGL https://www.amazon.com/Integrative-Therapeutics-Rhizinate-Deglycyrrhizinated-Licorice/dp/B001WUC406/  
    • Wheatwacked
      Canker sores

      By Wheatwacked · Posted

      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores.  Vitamin D deficiency is very common in Celiac Disease.
×
×
  • Create New...