Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pregnant


Karrin

Recommended Posts

Karrin Rookie

I just found out I'm pregnant (took the test this morning!!). This was unexpected to say the least. My husband and I had been trying to conceive for quite some time before I was diagnosed with endometriosis and was told my tubes seemed, for unknown reasons, blocked. We were told we would likely need IVF if we wanted children. Years went by, I was becoming sicker and only a month ago I found out I had celiac disease. I must have been on the diet only 2 weeks or more before I conceived. I'm not sure if it is due to the diet, or just a miracle, or both. I'm so shocked, thrilled and scared and in complete terror my body isn't healthy enough to keep it. It is so early yet and so unexpected. Money is also tight from all my medical bills, trying to figure out what was wrong with me - agh!! I'm trying not to worry!

I'm in need of some serious advise as to what vitamins I should be taking, besides the obvious folic acid (though how much would be helpful). I've been taking liquid b-12, vitamin D, C, Calcium, iron and magnesium. A recommendation for an inexpensive body/facial lotion would be great too. I've been really unsuccessful in finding one that doesn't make me sick.

Any other recommendations would be most welcomed. What extra to ask of my OBGYN when I see him pertaining to celiacs etc!

Yikes!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

A prenatal with 100% rda of folic acid (800 micrograms/day) should be just fine. Taking a bit of extra calcium, to make sure you're meeting the day's requirements (1200-1500mg/day).

But I'd ask your doctor to run a blood test to check for vitamin/mineral deficiencies. If you're low in iron, you'll want to supplement. If you're normal on iron, you will want to NOT supplement.

And congratulations! Stay eating gluten free (for now, the easiest thing to do to make that simple is to stick to whole, naturally gluten free foods - fruits, veggies, meats, nuts, dairy (if you can have it), etc.

Karrin Rookie
A prenatal with 100% rda of folic acid (800 micrograms/day) should be just fine. Taking a bit of extra calcium, to make sure you're meeting the day's requirements (1200-1500mg/day).

But I'd ask your doctor to run a blood test to check for vitamin/mineral deficiencies. If you're low in iron, you'll want to supplement. If you're normal on iron, you will want to NOT supplement.

And congratulations! Stay eating gluten free (for now, the easiest thing to do to make that simple is to stick to whole, naturally gluten free foods - fruits, veggies, meats, nuts, dairy (if you can have it), etc.

Thank you! I'm still pretty bewildered! I've been tested for anemia many times in the past and am always normal. I believe that one at least was an iron level test. I do feel anemic often though. The iron supplement I've been taking is a calcium combo (or vitamin c I'd have to double check). I don't see my obgyn for another 3 1/2 weeks. Ugh! I'm still waiting for the nurse to call me about vitamins and what extra precautions I should be taking/supplimenting with celiacs.

LucyMiami Newbie

Congrats - how exciting!!! I'm sure it must feel completely overwhelming at first, but remember you have 9 months to prepare for a reason!

I am hoping to get pregnant soon as well. My husband and I started trying right when I realized I needed further testing to diagnose me with Celiac. Now that the testing is over, and I'm positive as a Celiac, we'd like to try again, however, I'm severely anemic and need to get that figured out first! My doctor recommends to take Folic Acid before and during pregnancy - it prevents neural tube defects early on in pregnancy. You can also eat lots of dark leafy greens and orange juice for this as well. Also, almost all prenatal vitamins have sufficient iron in them, so if you've never been anemic, you should be okay with just taking those.

I wish you much luck in your pregnancy!

tarnalberry Community Regular
Thank you! I'm still pretty bewildered! I've been tested for anemia many times in the past and am always normal. I believe that one at least was an iron level test. I do feel anemic often though. The iron supplement I've been taking is a calcium combo (or vitamin c I'd have to double check). I don't see my obgyn for another 3 1/2 weeks. Ugh! I'm still waiting for the nurse to call me about vitamins and what extra precautions I should be taking/supplimenting with celiacs.

Calcium interferes with the absorption of iron, and should not be taken together. :(

Talk to your doctor about *what* tests they ran for iron. Total Iron Count? Ferritin? One of the others. They don't all tell you the same story.

Karrin Rookie

Thanks for the help everyone, but I'm pretty sure I lost the baby last night. I woke up with horrible cramps and have been passing large clots since. It isn't as heavy as my regular periods, but I think it's heavy enough that it is headed that way. :(

Betty Boop Rookie

Congratulations! Hopefully, you'll keep feeling better and better. Babies are so wonderful. Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Betty Boop Rookie

Oh, sorry. I just read your latest blog. So sorry. Hopefully, it'll happen again. Good luck.

tarnalberry Community Regular

hugs! I'm sorry.

You're well on your way to getting your body back to top condition, so *good-luck vibes* for the next go around.

dream77 Apprentice
I just found out I'm pregnant (took the test this morning!!). This was unexpected to say the least. My husband and I had been trying to conceive for quite some time before I was diagnosed with endometriosis and was told my tubes seemed, for unknown reasons, blocked. We were told we would likely need IVF if we wanted children. Years went by, I was becoming sicker and only a month ago I found out I had celiac disease. I must have been on the diet only 2 weeks or more before I conceived. I'm not sure if it is due to the diet, or just a miracle, or both. I'm so shocked, thrilled and scared and in complete terror my body isn't healthy enough to keep it. It is so early yet and so unexpected. Money is also tight from all my medical bills, trying to figure out what was wrong with me - agh!! I'm trying not to worry!

I'm in need of some serious advise as to what vitamins I should be taking, besides the obvious folic acid (though how much would be helpful). I've been taking liquid b-12, vitamin D, C, Calcium, iron and magnesium. A recommendation for an inexpensive body/facial lotion would be great too. I've been really unsuccessful in finding one that doesn't make me sick.

Any other recommendations would be most welcomed. What extra to ask of my OBGYN when I see him pertaining to celiacs etc!

Yikes!!

Karrin,

Which tests were positive for you in the celiac diagnosis.. You and I seem to exactly cycled with .. just tested positive and now 4 weeks pregnant. (too soon yet)

I've been gluten free only 4 weeks. I am self diagnosed since the antigliadin antibodies are positive. (negatve transglutinamase and endomysial)

I've been paranoid about what the antibodies may be doing to the child.

My first appt with the high risk Ob/GYN is at 8 weeks (that's how he likes it)

I take the follwoing

I have low vitamin D and low ferritin

Prenatal vitamin (walgreens brand)

ferritin (tandem) alternate days

Vit D (1000 IU) everyday

Vit D 50000 IU fortnightly.

TiffLuvsBread Rookie
Thanks for the help everyone, but I'm pretty sure I lost the baby last night. I woke up with horrible cramps and have been passing large clots since. It isn't as heavy as my regular periods, but I think it's heavy enough that it is headed that way. :(

Hey Karrin, let us know how this ends up because I have a pregnant girlfriend and she had spotting/clots almost EVERY month so far and she always goes in to the dr. panicked and she's just fine. She's about 7 months pregnant right now and still has bleeding issues but the baby is fine. Be sure first!! You might still be ok - I'm being a Positive Pam here.

As far as the miracle or weird timing, having celiac and damaging yourself by eating gluten absolutely can cause infertility. I've heard that with success in the diet, you can completely REVERSE that and boom - no more infertility issues! So eating gluten-free might be your ticket to not just a healthier digestive system but also reproductive system. If you did end up losing this baby I am confident that it will happen again for you and you will be healthy enough to carry it.

Good luck darling.

dream77 Apprentice
Hey Karrin, let us know how this ends up because I have a pregnant girlfriend and she had spotting/clots almost EVERY month so far and she always goes in to the dr. panicked and she's just fine. She's about 7 months pregnant right now and still has bleeding issues but the baby is fine. Be sure first!! You might still be ok - I'm being a Positive Pam here.

As far as the miracle or weird timing, having celiac and damaging yourself by eating gluten absolutely can cause infertility. I've heard that with success in the diet, you can completely REVERSE that and boom - no more infertility issues! So eating gluten-free might be your ticket to not just a healthier digestive system but also reproductive system. If you did end up losing this baby I am confident that it will happen again for you and you will be healthy enough to carry it.

Good luck darling.

I am so sorry Karrin, I didn't get to the end of the post before I posted my previous one.

Don't worry, you'll conceive again

Karrin Rookie
Hey Karrin, let us know how this ends up because I have a pregnant girlfriend and she had spotting/clots almost EVERY month so far and she always goes in to the dr. panicked and she's just fine. She's about 7 months pregnant right now and still has bleeding issues but the baby is fine. Be sure first!! You might still be ok - I'm being a Positive Pam here.

As far as the miracle or weird timing, having celiac and damaging yourself by eating gluten absolutely can cause infertility. I've heard that with success in the diet, you can completely REVERSE that and boom - no more infertility issues! So eating gluten-free might be your ticket to not just a healthier digestive system but also reproductive system. If you did end up losing this baby I am confident that it will happen again for you and you will be healthy enough to carry it.

Good luck darling.

Thank you everyone. My doctor ran some blood tests and confirmed what I already knew. I miscarried. I'm trying to remain optimistic. I hope the miracle will happen again.

Dream77 - I'm not sure what my test results were, but I recall the doctor talking about 3 different things - antibodies I believe, and the first of the three were what tested the most abnormal. I'm sorry I can't recall what he called any of them! As for vitamins my doctor has put me on Prenate DHA.

dream77 Apprentice
Thank you everyone. My doctor ran some blood tests and confirmed what I already knew. I miscarried. I'm trying to remain optimistic. I hope the miracle will happen again.

Dream77 - I'm not sure what my test results were, but I recall the doctor talking about 3 different things - antibodies I believe, and the first of the three were what tested the most abnormal. I'm sorry I can't recall what he called any of them! As for vitamins my doctor has put me on Prenate DHA.

I think I am miscarrying too ..

little over 5 weeks and had a sudden, gush of red bright blood last evening. Am told to go on bedrest but the discomfort is unmistakable and I am preparing for miscarriage though it has not yet started full swing.

Karrin Rookie
I think I am miscarrying too ..

little over 5 weeks and had a sudden, gush of red bright blood last evening. Am told to go on bedrest but the discomfort is unmistakable and I am preparing for miscarriage though it has not yet started full swing.

I'm very sorry to hear that. :( Has your doctor ordered blood tests to check your hormone levels? I hope it turns out okay for you! Try to stay optimistic dear.

mommida Enthusiast

My heart goes out to you. ((HUGS)) for you two. (and any one going through this.)

My thoughts and prayers are with you.

dream77 Apprentice

I went to a gynaec in my vicinity y'day and the urine still show pregnant.. I got blood drawn today to check that out and an ultrasound scheduled for tomorrow..

dunno what's giong on..

  • 1 month later...
disneyceliac Newbie
Thanks for the help everyone, but I'm pretty sure I lost the baby last night. I woke up with horrible cramps and have been passing large clots since. It isn't as heavy as my regular periods, but I think it's heavy enough that it is headed that way. :(

I am so sorry to hear that you lost the baby. Rememeber that it is not uncommon to miscarry for a first pregnancy (but no less heart breaking). I also have Endometriosis and Celiac and with their combined infertlity related problems, I had to go to a fertility doctor and get a little help.

Don't give up and stay strong!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,751
    • Most Online (within 30 mins)
      7,748

    Rosemary Dunn
    Newest Member
    Rosemary Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lmemsm
      With that many foods removed from your diet, what do you eat?  I also have histamine issues and migraines so that takes out certain trigger foods and high histamine vegetables.  Have allergies to coconut and issues with nuts so those are out.  I'm beginning to think I may have to remove dairy and some of the grains beyond wheat to get allergies under control.  Just having so many issues figuring out what to make at meal times.  What's a typical breakfast look like for you?  Thanks.
    • knitty kitty
      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
    • knitty kitty
      @Zuma888,  I'm so happy you're feeling better!   Thanks for letting us know of your improvement!
    • RMJ
      HLA-DQ2 is NOT a continuum 2.01 to 2.99, but I don’t understand HLA genetics well enough to explain it further.  It is not just one gene that is either this or that.
    • trents
      Okay, I'm taking a guess here. We are used to hearing in layman terms that having either the HLA-DQ2 or the HLA-DQ8 gene, either heterozygous or homozygous, presents the possibility of developing active celiac disease. So, I'm guessing that the HLA-DQ2 gene is actually a range of variants (2.01-2.99) with HLA-DQ 2.5 being in the centerpiece of the range. I'm also guessing that "permissive" is equivalent to "possessing the possibility" to develop active celiac disease and does not address the issue of hetero vs. homozygus per se. But the fact that 2.01,2.01 is a couplet may indicated homozygousity? All wild guesses.
×
×
  • Create New...