Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Expecting To Much?


Roda

Recommended Posts

Roda Rising Star

I had my first appointment with my PCP today in almost three years. I felt it was a good idea to follow up. I really felt that he was trying to rush me nothing unusual there he has always been this way. I did at one time change doctors and the one I changed to was worse! So, the way I figured I would just switch back. I have been feeling sorta moody for the last few days, almost like pms, but that is not it. Maybe it is my attitude that's the problem. The doctor wanted to know what liothyronine was so I told him. He was "I like learning new things from my patient", so I was thinking this conversation may go somewhere. I wanted another opinion on the iron deficiency issue. He told me I need iron any way I can get it and if an infusion would work go for it. I'm still left to find someone on my own. Probably better that way. The GI wants me to take slow fe again to see if I can tolerate it. If not then go the infusion route. I'm still not sure how I want to procede at this point. Anyway, I left the PCP's office thinking it was very unproductive, but at least I got an order for a cbc and lipid pannel. I wanted more but got frustrated and didn't ask. He said he got the feeling that I was upset. I told him that I have felt discouraged over the last several years since it was me who figured this out. He told me that they are finding that celiac is more common, but it is more mild and not standing out medically. I asked him if he had a patient present with positive blood work what would he recommend? He said he would recommend trying the diet for 6 months and if they did not see any inprovement and it was not causing any other problems then they could choose to go off of it. I just don't agree with that. He asked me if I had patients knowin how our american diet is so bad and it increases our rate of heart disease, would I recommend to all my patients to quit eating meat and eat a vegetarian diet? I said no I wouldn't, that I believe that one should exercise moderation and that anything in extreme excess could be potentially harmful. So he asked how the gluten free diet would be different stating how hard the diet is bla bla bla! <_< I didn't want to continue the topic so I thanked him for his time and the reason I came today was that I felt it was important to follow up. Ok sure, diets high in animal fats is in the long term not good for us. But in moderation (this is my opinion, I am not advocating anything), I think eating meat is perfectly fine. No amount of gluten is FINE!! Does he not realize that even small amounts cause damage and can lead to other problems? Maybe it is just me being over sensitive, I have been moody lately. I am finding myself being very critical. I never took what doctors tell me as gospel, but since my celiac diagnosis, I am alot worse. I never thought this guy had a great personality before, but now I really think so. The problem I am having is finding a doctor in my town that is affiliated with my hospital I work for since I have the insurance through work. There are a couple of new ones. Would I just set up an appointment to "interview" them? I don't want to switch and have to switch back like before. I'm sorry for the rant. Just feeling sorta down lately.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ranger Enthusiast

Here's a doc story and one reason I don't trust them.

In my early 30's, I went in for my yearly GYN. no problems, just the annual. After it was over, doc called me into his office and informed me that I needed to schedule a hysterectomy because I had a prolapsed uterus - and I needed to do that before I became symptomatic! I thaught "what kind of bull is this?", and walked out of his office. But, at the time, I was a runner, and had visions of my uterus falling out as I was running down the street, so I went for a second opinion. I did not have a prolapsed uterus ( and they don't un-prolaps), so he lied to me to get another expensive surgery!. Had I done what he wanted, think of all the problems it would have caused me. Not only the expense and pain of surgery, but the problems associated with early, sudden menapause, and all those years of hormone therapy. At 50, I went through an easy, natural menopause. I'm 63,

AND I STILL HAVE A UTERUS! And he's still practicing in the same respected clinic. I wish I had done something about it back then, but it would have been my word against his, as we were alone in his office. And you know how that goes.

Roda Rising Star

I guess the reason I'm feeling torn about my new feelings is the fact I'm in healthcare and always would alot of the time give them the benefit. Since My husbands bad experiences, and dealing with my own health, I feel a conflict. I think it is more of his personality I don't like than anything and like I said before that is nothing new, I'm just more intolerent of it. :P I probably could have been less impatient and listened more.

PS. I also think I'm starting to have some anxiety issues.(never have before) My Bp was 140/80 both at the GI office (I like him) and again today. Heartrate was up too. My normal bp is usually around 100-110/60-70 range. I don't get it.

LauraLee123 Newbie

I am sorry you had a rough doctor visit.

My pulse rate and blood pressure elevate when I am anemic. It's uncomfortable especially when it gets over 90. Once it was over 150 and I thought I was having a heart attack, ended up in the ER.

Your anemia has not resolved since going gluten-free? Is there another issue that is causing this?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,039
    • Most Online (within 30 mins)
      7,748

    Briannas01
    Newest Member
    Briannas01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.