Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Blood Test Results--what Does It Mean?

mom26boys

Recommended Posts

mom26boys Apprentice
mom26boys
Posted

Hi! Last week I saw my doctor and asked him to run a test to rule out celiac. I just received my copy in the mail and it says its positive. Here is what the result says:

ENDOMYSIAL AB SCREEN (IGA)

REFLEX TO TITER

ENDOMYSIAL AB(IGA) SCREEN Positive

ENDOMYSIAL AB TITER 1:5

Can anyone tells me what this means? My doctor is on vacation so I have no idea how long it will be before the office calls me about the results. In the meantime, I'm curious to know what this result means. Does it mean I have celiac? Thanks for your help! This is a great forum!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

A postive test result means it is likely that you do have celiac. If you plan on having a biopsy keep eating gluten. If your not having a biopsy then start the diet.

mom26boys Apprentice
mom26boys
Posted
  • Author
A postive test result means it is likely that you do have celiac. If you plan on having a biopsy keep eating gluten. If your not having a biopsy then start the diet.

Thank you. I was afraid of that. I have an appt. with a ge on the 19th, but I dont' know when they will schedule the endoscopy for. I've been gluten-free for about 2 weeks now, and I'm deathly afraid of eating any gluten. I'm even having dreams that I eat a little and then realize it was gluten. LOL Will being gluten-free for a few weeks still make a difference in my endoscopy results, or do you still think I should go back to eating gluten again? Thanks for your help! :)

leadmeastray88 Contributor
leadmeastray88
Posted
Thank you. I was afraid of that. I have an appt. with a ge on the 19th, but I dont' know when they will schedule the endoscopy for. I've been gluten-free for about 2 weeks now, and I'm deathly afraid of eating any gluten. I'm even having dreams that I eat a little and then realize it was gluten. LOL Will being gluten-free for a few weeks still make a difference in my endoscopy results, or do you still think I should go back to eating gluten again? Thanks for your help! :)

Going gluten free for any period of time is not a good idea when you're planning on getting a biopsy.

The biopsy is valuable for many reasons, the most important being determining how much damage you may have, as well as ruling out any other conditions. Then if you have a negative biopsy, you may always wonder "what if I hadn't gone gluten free", and be kicking yourself in the hiney for it :)

If you plan on getting that biopsy, please keep eating gluten until it's done, and hopefully it won't take you too long to get in for the procedure :) Good luck!

tarnalberry Community Regular
tarnalberry
Posted

Yes, eating gluten free for a couple of weeks could affect your testing. If you plan to go through with an endoscopy, you should indeed go back to eating gluten.

mom26boys Apprentice
mom26boys
Posted
  • Author

Thank you everyone! I really appreciate your input! I will go back to eating gluten until my test results. You are right. If I'm going to go through the process of testing, then I might as well get the most accurate result I can.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you everyone! I really appreciate your input! I will go back to eating gluten until my test results. You are right. If I'm going to go through the process of testing, then I might as well get the most accurate result I can.

If you have been gluten free for a couple weeks you may have a more intense reaction when you add it back in. If you should become severely ill from the challenge do let your doctor know. Some will have you stop the challenge. A dietary challenge is another valid tool in the road to diagnosis. Some doctors recognize this and some don't.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mom26boys Apprentice
mom26boys
Posted
  • Author
If you have been gluten free for a couple weeks you may have a more intense reaction when you add it back in. If you should become severely ill from the challenge do let your doctor know. Some will have you stop the challenge. A dietary challenge is another valid tool in the road to diagnosis. Some doctors recognize this and some don't.

Thank you. Wow! I've learned so much here that I never would have thought of. Thank you for the time you respond to my post :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748
    Mhp
    Newest Member
    Mhp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.