Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crying Frustrated...


cbear6301

Recommended Posts

cbear6301 Explorer

I was doing pretty good..and than I seem to have hit a really bad spell. First, about two weeks ago, I glutened myself. I eat so many of the almonds from Blue Diamond that I picked up a can of the jordan almonds.. ate quite a bit..a couple hours later my ear was throbbing, I got a bad migraine. I went online and saw that they had gluten.. I was able to treat the migraine but the next week was filled with studdering, anxiety, joint pain, dizziness.stomach pains .felt like the old me. I learned my lesson.. I thought. This past weekend my husband and I went to Aldi's... I read every thing..I am a snacker at night.. the only thing different this week was the cheese puffs.. I have had a small bowl each night. Its the only thing I have done different. This whole week I have been dealing with severe dizziness , headaches, more studdering and anxiety..and diarrhea.. my stomach hurts and I feel so sick.. I feel really bad this morning.

My question is this. Would I still be feeling it from the almonds or would it be the snacks from Aldi's? When you get glutened that bad, does it stay with you? Am I back at square one?

I just am so frustrated and so tired. Can anyone give me any insight?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am so sorry this is happening to you. It could still be the Jordan almonds but I suspect that the snacks are either not gluten free or that they are heavily cross contaminated. Have you called the maker of the snacks to verify that they are gluten free? Even if they are gluten free by ingredients the plant they are made in may use powdered gluten ingredients in other items. If that is the case nothing from that plant would likely be safe to be consumed. I would stop eating those immediately. If you wanted you could then wait a couple weeks till you are feeling better and try them again and see if you react. Another posibility is that you have developed reactions to dairy foods. Although for myself my reactions to my other intolerances are decided different from my reactions to gluten that isn't the case for everyone. That can make it hard to figure out what is going on. Can you try to stick to whole, unprocessed foods for a while? That would help you to heal the fastest.

Dr-LaTino Newbie

Like raven said, a whole food unprocessed diet is the way to go in terms of healing. It's helping me recover, I know that much, and is less stressful when you don't have to constantly look for hidden gluten (in a Paleo diet there are little amount of ingredients in what you buy)

Just keep pulling through and try not to think constantly about progress (even though I know it's in your face). That will stress you out.

hannahp57 Contributor

I would say raven gave you the best advise.

but maybe my experience will help you to feel better. i glutened myself just a couple months back... i was down for a full week. first the gi symptoms that are bad enough... but after the first two days of gi symptoms and a bit of brain fog, i was just so fatigued and my insides just ached. you arent necessarily back at square one. but like the previous poster suggested, those puffs may be heavily cross contaminated. i would cut those out completely, all that CC adds up after a while and you're never going to feel your best with that in your system!

YoloGx Rookie

I actually had a glutening with effects that lasted 5 weeks! But that was when I breathed in wheat flour dust courtesy of my brother who made 7 pies for Thanksgiving.

I agree-it could be either item or both.

Paleo or specific carbohydrate diet (scd) are two of the best diets for healing and avoiding CC! I so agree.

If you are reacting to milk products, try 24 hour home made yogurt and the list of scd cheeses that have all the lactose removed through thorough fermentation. Its helped me to heal so much more so that now I am able eat several things I formerly thought I was allergic to...

Bea

one more mile Contributor

Just some support, you are never back to square one now that you have a solution to what is going on with you!

When I get glutened it takes about a week for me to get back to being ok. I read every label each time I buy something in case they changed how they made it. I find the less processed stuff I eat the better I am.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...