Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Kind Of Depressed About The Diet


westiepaws

Recommended Posts

westiepaws Apprentice

Last night I made the enchilada sauce recipe at this site. It was SO yummy. I put it on bean enchiladas. Everything was gluten-free, except less than 1 percent of the chicken broth had wheat in it. And possibly my chili powder. I thought surely I would be okay. B)

Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Thats the importance of keeping a 100% gluten free diet. Even the smallest amount can damage your intestines even if you don't get symptoms. Why is it even worth it? The risks of cancer, diabetes, osteoporosis...is gluten worth that? it doesn't matter if you put a pinch of wheat starch in what you had....would you put a pinch of rat poison in? Well gluten is just as bad for you. Eat to live don't live to eat.

You find brands you can have, and you will get used to it and you will find it to be normal for you when you learn about it more.

Print out the safe and forbidden lists on here if you haven't

https://www.celiac.com/st_main.html?p_catid=12

And on this site you can find out about brands that won't hide anything, good gluten free brands, etc. This is a great site with wonderful people.

Guest nini

I like the rat poison analogy. Just keep in mind that gluten is poison to your body and you are less likely to be tempted to cheat.

Every time I drive by Krispy Kreme donuts I get very depressed, but I keep saying to myself over and over "gluten is poison, gluten is poison, gluten is poison" and I'm able to keep driving right on past. I once got into the drive thru trying to convince myself that they were so processed that there couldn't possibly be any protein left in them!!!! :blink::blink: Fortunately I came to my senses before actually pulling up and ordering any! :rolleyes:

we all make occasional mistakes where we accidentally get glutened, but it's not worth it to risk being glutened with even a small amount if you can help it. If you know it has even the tiniest bit of gluten in it, just remind yourself it is poison. Works for me!

pmrowley Newbie
Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.

I know, it's hard, but you're going to feel better afterward. Take that meal as your wake-up call. Time to stop being "mostly gluten-free," particularly with the proof of the swab diagnosis. You need to go 100% gluten-free from now on, with no cheating, no breaks, no temptations. Go to a large health food store, and start shopping! :D

One thing to keep in mind, it DOES get easier with time! Now we just need a Senator with Celiac, to really get this condition out into the open!

Cheers,

-Pat

tarnalberry Community Regular

no gluten really does mean NO gluten, not even a little. it can take some time to get used to it, but you will eventually. there's plenty of gluten-free broth available, and gluten-free options for most things, so search those out so this won't happen again.

westiepaws Apprentice

Hey, that is a really good way to put it into perspective. Thanks, you two!!! I know that one reason I'm struggling because it's not just gluten, it's soy and cow's milk, too. Most gluten-free breads aren't even doable for me because the ones at my Whole Foods/Harry's usually have some soy or dairy in them at my grocery store.

Tonight I will put signs that say gluten, soy and cow's milk are poison in my house and my car, at my desk and on my fridge. And I am going to explore some of these links where you buy by mail. That must help loads, because if I don't go into the processed/prepared food sections of the store -- which I usually avoid anyway -- I can't be tempted.

Thanks!!

tarnalberry Community Regular

westie - check out the Gluten-free Casein-free yahoo groups as well. they're mostly for parents of autistic kids, but they have a number of resources you may find helpful. I found giving up milk to be much harder than giving up gluten, and limiting soy to make giving up milk that much harder (I don't have soy often any more), and it did change the types of things I eat (no more yogurt - I make my own foods, but have things I'd rather make before a nut-milk based yogurt). That's not bad, however, it's just different. (Important mantra: different is not bad! :-) ) After a few months, I got used to it. Yeah, I still miss some of the old stuff, but it's better than being sick!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

Westie, Life Grocery in Marietta has a large selection of gluten-free and CF foods as well as soy free and even raw.... you may find nirvana there!

westiepaws Apprentice

Oh cool! I looked that up and it is only 30 minutes from here so I will check it out. Also just found some gluten-, soy- and dairy-free chocolate chips, as well as the same gluten-free/sf/df boullion in the gluten-free mall, so I ordered those to experiment with at home.

If I can find a) substitutes for the basics (I've got the dry ingredients down pat, it's the other stuff I'm struggling with), and B) some way to eat and enjoy chocolate with no gluten or dairy involved -- that will be a big morale booster!

tarnalberry Community Regular

Tropical Source makes Gluten-free Casein-free chocolate. (It is made with soy-lecithin, though.)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.