Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Kind Of Depressed About The Diet


westiepaws

Recommended Posts

westiepaws Apprentice

Last night I made the enchilada sauce recipe at this site. It was SO yummy. I put it on bean enchiladas. Everything was gluten-free, except less than 1 percent of the chicken broth had wheat in it. And possibly my chili powder. I thought surely I would be okay. B)

Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Thats the importance of keeping a 100% gluten free diet. Even the smallest amount can damage your intestines even if you don't get symptoms. Why is it even worth it? The risks of cancer, diabetes, osteoporosis...is gluten worth that? it doesn't matter if you put a pinch of wheat starch in what you had....would you put a pinch of rat poison in? Well gluten is just as bad for you. Eat to live don't live to eat.

You find brands you can have, and you will get used to it and you will find it to be normal for you when you learn about it more.

Print out the safe and forbidden lists on here if you haven't

https://www.celiac.com/st_main.html?p_catid=12

And on this site you can find out about brands that won't hide anything, good gluten free brands, etc. This is a great site with wonderful people.

Guest nini

I like the rat poison analogy. Just keep in mind that gluten is poison to your body and you are less likely to be tempted to cheat.

Every time I drive by Krispy Kreme donuts I get very depressed, but I keep saying to myself over and over "gluten is poison, gluten is poison, gluten is poison" and I'm able to keep driving right on past. I once got into the drive thru trying to convince myself that they were so processed that there couldn't possibly be any protein left in them!!!! :blink::blink: Fortunately I came to my senses before actually pulling up and ordering any! :rolleyes:

we all make occasional mistakes where we accidentally get glutened, but it's not worth it to risk being glutened with even a small amount if you can help it. If you know it has even the tiniest bit of gluten in it, just remind yourself it is poison. Works for me!

pmrowley Newbie
Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.

I know, it's hard, but you're going to feel better afterward. Take that meal as your wake-up call. Time to stop being "mostly gluten-free," particularly with the proof of the swab diagnosis. You need to go 100% gluten-free from now on, with no cheating, no breaks, no temptations. Go to a large health food store, and start shopping! :D

One thing to keep in mind, it DOES get easier with time! Now we just need a Senator with Celiac, to really get this condition out into the open!

Cheers,

-Pat

tarnalberry Community Regular

no gluten really does mean NO gluten, not even a little. it can take some time to get used to it, but you will eventually. there's plenty of gluten-free broth available, and gluten-free options for most things, so search those out so this won't happen again.

westiepaws Apprentice

Hey, that is a really good way to put it into perspective. Thanks, you two!!! I know that one reason I'm struggling because it's not just gluten, it's soy and cow's milk, too. Most gluten-free breads aren't even doable for me because the ones at my Whole Foods/Harry's usually have some soy or dairy in them at my grocery store.

Tonight I will put signs that say gluten, soy and cow's milk are poison in my house and my car, at my desk and on my fridge. And I am going to explore some of these links where you buy by mail. That must help loads, because if I don't go into the processed/prepared food sections of the store -- which I usually avoid anyway -- I can't be tempted.

Thanks!!

tarnalberry Community Regular

westie - check out the Gluten-free Casein-free yahoo groups as well. they're mostly for parents of autistic kids, but they have a number of resources you may find helpful. I found giving up milk to be much harder than giving up gluten, and limiting soy to make giving up milk that much harder (I don't have soy often any more), and it did change the types of things I eat (no more yogurt - I make my own foods, but have things I'd rather make before a nut-milk based yogurt). That's not bad, however, it's just different. (Important mantra: different is not bad! :-) ) After a few months, I got used to it. Yeah, I still miss some of the old stuff, but it's better than being sick!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

Westie, Life Grocery in Marietta has a large selection of gluten-free and CF foods as well as soy free and even raw.... you may find nirvana there!

westiepaws Apprentice

Oh cool! I looked that up and it is only 30 minutes from here so I will check it out. Also just found some gluten-, soy- and dairy-free chocolate chips, as well as the same gluten-free/sf/df boullion in the gluten-free mall, so I ordered those to experiment with at home.

If I can find a) substitutes for the basics (I've got the dry ingredients down pat, it's the other stuff I'm struggling with), and B) some way to eat and enjoy chocolate with no gluten or dairy involved -- that will be a big morale booster!

tarnalberry Community Regular

Tropical Source makes Gluten-free Casein-free chocolate. (It is made with soy-lecithin, though.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,164
    • Most Online (within 30 mins)
      7,748

    JennyK
    Newest Member
    JennyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.