Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Coping I Think

pandybear

By pandybear
in Coping with Celiac Disease

Recommended Posts

pandybear Newbie
pandybear
Posted

HI GUYS I POSTED ON HERE ABOUT A WEEK AGO ABOUT BEING DIAGIANOSED 5 YEARS AGO WITH COELICS BUT NEVER BEING ABLE TO FOLLOW A DIET AND NEVER REALLY BOTHERING TOO AS I DONT GET ANY REACTION EXCEPT THE ODD BIT OF BLOATING, WELL......................

IM PLEASED TO SAY THAT AFTER A FEW OF YOU GUYS POINTED OUT THE BAD POINTS OF WHAT I COULD SUFFER WITH IF I CONTINUE TO INGNORE THE FACT THAT I HAVE COELICS I HAVE NOW GONE A WHOLE 5 DAYS YES 5 DAYS WITHOUT ANY GLUTEN ITS BEEN HARD VERY HARD.

THE THING I FIND ANNOYING IS EVERYTHING I TRY TO ORDER ON PRESCRIPTION I GET TURNED DOWN ALL THE NICE STUFF IS BLACKLISTED AS FAR AS MY GPS ARE CONCERNED EVEN LIFESTYLE CRUMPETS( WHICH ARE LUSH) ITS REALLY ANNOYING AS I LIVE ON BENEFITS SO FIND IT HARD TO BUYS LOTS OF STUFF.

BUT THNKS TO YOU GUYS IM TRYING SO THANKS VERY VERY MUCH.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad to hear that you are coping with the need for the diet. It is hard at first. It is easier if you can stick with whole naturally gluten free foods. I find a crock pot and rice cooker to help a great deal. Roasted fresh meats and veggies are really easy, filling and at least in my house provide more than a days worth of cooked meat to add to stuff like rice the next day or two. If there is a celiac support group in your area they may be able to clue you in on the places to get the baked goods type of stuff.

You might also want to post a 'where do I get...' in the International 'room' if you haven't already.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,960
    • Most Online (within 30 mins)
      7,748
    Theresa Bush
    Newest Member
    Theresa Bush
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thanks. I believe I can trace my gluten and milk allergies to specific traumas in my life. I've had some quite severe traumas over my lifetime. Mostly in my history I was so out of sorts surviving that diagnosing gluten sensitivity/allergy/celiac was just not on the table for such a survival mode existence. Vitamin D makes sense too. Now I take very good care of myself, I have a rock solid stability and I do take 1,500 IU of D daily. It's more obvious to me now what's causing problems and so most of the time I only eat protein and vegetables. I cheat sometimes. I end up paying for it though. 
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Thanks everyone for replying. Actually made a mistake when stating the lab range for results, should have been 0.0-7.0 not 0.7 u/ml. She was 19 u/ml. I’m afraid science bamboozles me especially trying to understand all the IgA’s and other bits!!!!Regular blood results like full blood count etc not so much!!!!
    • John767
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By John767 · Posted

      DiGiornos gluten free pizza at one point was  made from a dough derived of wheat starch...yet they were able to call it gluten free probably because it came in at under 20ppm for gluten.  Apparently the recipe was changed and the pizza not longer contains a wheat starch derived crust.  As for the Heinz dressing, it could be an issue with cross contamination with wheat barley and or rye somewhere during the production process.  If you read how Frito-Lays (on their website) designates items gluten free, you will understand the variances in the lengths companies go through in deciding when to put on a gluten free label and when not--Frito-Lays is pretty solid.  Also being in Canada, they may follow a common international rule of less than 20ppm of gluten is all that is required to be labeled gluten free regardless of the grains used to manufacture the product (common in Europe, Central, and South America)...it took a couple of really rough mornings after consuming some Dura Damm (labeled as gluten free outside the USA) for me to realize that it was a gluten reduced beer. Same with Mahou Beer which actually says in Spanish "suitable for celiacs", unfortunately it is not suitable for this celiac and of course the following day was really rough as well...really take the time to read the ingredients because had I read the ingredients of  Mahou's "suitable for celiacs" "sin gluten" beer I would have noticed that it was made from cabada (Spanish for barley)...hope this helps...        
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Here is an article that explains test results and what they mean.  Testing for Celiac Disease is so elusive, any positive, unless a lab error false positive, is evident of Celiac.  It is easier to be in denial, tnan committing to gluten free.  Like not believing a pregnancy test.  Denial will lead to more suffering. Are You Confused About Your Celiac Disease Lab Results?
    • Wheatwacked
      Diagnosed gluten allergy but not Celiac

      By Wheatwacked · Posted

      I believe that what triggers acute Celiac Disease is vitamin D deficiency.  When we have stress it depletes our already low vitamin D, (40% to 60% of us in the industrial world are deficient) allowing the Celiac genes and the immune system to run amuck.  At 93 ng/ml 25(OH)D blood level, the last time I accidentally glutened myself, all that I got was a runny nose and burning eyes three days later.  It took 8 years, taking 10,000 IU a day to get to this blood level. Vitamin D Is Not as Toxic as Was Once Thought Possible Role of Vitamin D in Celiac Disease Onset So true.  If I am working on something I'm enjoying, I put off eating because after I eat I mostly feel worse.  Not so much anymore, but it's been a life long struggle with the anorexia.  M&M Peanuts is a good go-to snack.  For the dairy Kosher Dill pickles, brine fermented, not vinegar quick pickles (vinegar kills the bacteria), will repopulate your gut with Lactobacillus that exretes lactase, the reason adults are not lactose intolerant.  Also, grassfed milk has less omega 6 fatty acids than commercial grain fed dairy. Grassfed omega 6:3 ratio is 1:1; Organic milk 3:1; Commercial Dairy 5:1.  Omega 6 causes inflammation.  The typical western diet is 14:1.  Wheat flour is 22:1.  A good reason not to eat gluten.  Here is a list: High omega-3/low omega-6 I find it interesting that the new diagnosis of Non Celiac Gluten Sensitivity was created 10 years after Norman Borlaug, "the father of the Green Revolution" and our modern grain crops, received the Nobel Peace Prize in 1970.  
×
×
  • Create New...