Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Corn Allergy Also & Looking For Help!

bikerblue

By bikerblue
in Related Issues & Disorders

Recommended Posts

bikerblue Newbie
bikerblue
Posted

Hi everyone. I have been gluten free for almost two years now and have slowly since that time just been getting worse and worse with nausea, stomach cramping, fatigue, vomiting, etc. I have now realized that I have a severe corn allergy and have been off corn now for the last four to six weeks. I am really struggling. My weight has dropped quite a bit and I'm just having a hard time emotionally. I have been fighting with my health for four years now after the birth of my daughter. Since then there just hasn't been one good day without any pain, nausea or something and I feel some days it is tearing me apart. I'm not trying to lose weight but with such a limited diet it is hard and I am fearful that I am to the point that I don't want to eat because I just don't want to get sick. It is a constant struggle that I fight with every day. My kids know mom is sick again. I usually try to wait to eat a bigger meal late in the evening when things are about done around the house so in case I am sick that my whole day isn't shot.

It just feels like it is one thing on top of another and I just want to feel well. I'm so tired of dealing with the sickness. I think my body is just so sensitive at this point and I have to be so careful but yet when I think I am... I don't know.

Anyone else out there have a corn allergy along with the gluten? I could use some advice please!!!! Thank you!!!

Tami

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


watkinson Apprentice
watkinson
Posted

Hi Tami,

I'm so sorry about how sick you have been. :( I also am allergic to corn, but I don't seem to have any stomache problems from it. My reaction seem to be a fibromyalgia worsening. (Muscle and joint pain gets worse.)

I wish I had some great suggestions that could make you well but I don't know what to say. Are you 100% sure that you are 100% gluten-free? Check all your ingredients.

Can you eat yogurt? If so get an organic one that is gluten-free (Stoneyfield is good) and try to eat one every day. It has the beneficial bacteria that aids in digestion and our immune system. If you don't want yogurt you can take it in pill form. Trader joes is gluten-free. It's called acidophyllis. There is also a digestive enzyme that you can take, I'm not sure what it is called. I take a good multi vitamin with iron and an extra B-complex vitamin. Liquid vitamins might be best for you, because you are still suffering from nausea.

Have you been tested for other food allergies. What about allergies to something in your house? Maybe mold.

You could try drinking some mint tea at night before bed. It helps with stomache upset and calms you.

Sorry to say this, but it sounds like you need to go back to the doctor. If you really are gluten-free and stay away from what you are allergic to, you should feel better. (In the stomach area anyway.) Maybe something else is going on. :(

Hope you feel better soon, Wendy

bikerblue Newbie
bikerblue
Posted
  • Author

Hi Wendy... thank you for your response. I'm pretty sure I'm 100% gluten free. My children are also gluten free and I try to not let anything in that isn't. I eat pretty simply. Steamed veggies, meat, raw nuts. Really pretty boring. I haven't tried the yogurt but that does sound very good. I did order some products from allergygrocer which I am really enjoying.

What do you eat since you are corn free also? Today I've been pretty good but this fatigue I fight every day is really hard. I get kind of scared to eat as I don't want to feel sick but yet I know I need to. A few months ago I ended up in the hospital with severe vomiting and stomach pain that is so awful due to a gluten attack.

I've been trying to figure this all out for four years and it seems every time I think I am on the right road I get bumped off by something else. I just want to feel well and finding a doctor where I live who is supportive is pretty much impossible.

I haven't had any other allergy testing done. I get sick after eating, not always and sometimes when I don't I find myself thinking boy this is strange that I'm not... pretty bad huh? lol

I know I'll get there but it is such a struggle in the meantime!!!

Tami

watkinson Apprentice
watkinson
Posted

Hi Tami,

You should definately get more allergy testing, especially since you mentioned the nuts.

I am not allergic to peanuts but they give me a terrible stomache ache. I have a mild allergy to pecans and the reation seems to be terrible fatiigue and depression. Almost a feeling of hopelessness for a few hours. I don't want even want to move. I am usually a very up person and very active, but the pecan reaction will start to happen within minutes of eating them and continue for hours.

You asked me what I eat. How about I give you the rundown from the last 2 days.

:D

Yesterday morning I had organic brown rice cereal (kina like rice krispies) with 1% milk, a banana, and some blackberries. 2 cups of tea. later I had an organic yogurt smoothie. For lunch I had a chunk of cheddar cheese and 2 gluten-free andoullie sausages (a little bigger than a hot dog, I get them at COSTCO, YUMMMM) and steamed broccoli. for a snack I had a Hershey's chocolate bar , an apple, and some green tea. For dinner I had a HUGE spinache salad with raw broccoli, red peppers, cucumber, mushrooms, and tomatoe with a gluten-free dressing that is superb, Kraft creamy sesame seed. I also made an oven fried chicken that was delish!! :D Had 2 pieces of that.

Today I had the hot rice cereal with yogurt and flax seed and cut up strawberries. For a snack, a banana and an organic chocolate milk. For lunch, 2 of those chicken legs from last night. and edumame (salted soy nuts) and a big chunk of motzarella. Tonight we'll probably have asparegus (we grow it in our garden) and pizza (Amy's)

Believe me I don't lack for food.

I only have a mild corn allergy so if I get some in my diet it doesn't kill me. It mostly makes me achey.

I do eat a fair amount of dairy, 3-4 servings a day, which you are not eating so I know that makes the menu smaller.

Try giving up the nuts and see if that helps.

You said your meals are boring, maybe you could add some spices like powdered garlic or chili powder to the the meats. I also use a red pepper and olive oil gluten-free maranade from COSTCO that is scrumptious.

One more thought I would keep a food journal. Write down everything you eat and how you feel after you eat it and throughout the day. If you see any similarities in what you eat and how you feel, you can get rid of that item for 3 weeks and then reintrduce it and see how you feel.

Good luck, keep me posted, Wendy

bikerblue Newbie
bikerblue
Posted
  • Author

THanks for the response Wendy... boy if I ate some of that food you do (and I wish I could) I would be in a world of hurt... lol!!! I used to eat M&Ms and hershey bars all the time and now a bite makes me so nauseated and yucky feeling that is just isn't worth it!

Today I tried a few m&ms and I'm still hurting from it. I am soooo tired I can hardly stand it and yet so nauseated. I eat a lot of sweet potatoes, broccoli, cauliflower and all that steamed. Mostly meat and veggies. I do splurge with the occasional vanilla breyers ice cream and my brownies so that I can keep my weight up.

I am placing an order today for some more food. I will definitely keep an eye out for what I am eating... It seems to have been better lately but just so tired. It just seems to need to be simple and I am for the most part okay.

I'll let you know how it goes... hopefully I'm on the right track even though I seem to be losing more and more food choices by the month!!!!

Tami

watkinson Apprentice
watkinson
Posted

Hi Tami,

Are you sure that M&M's are gluten-free? I'm not sure. I think that Reeses pieces are.

I am so sorry you still feel sick. :( They say it took so long for our bodies to be damaged that the recovery can take a long time too.

I read an article today talking about the possibiity of some celiacs getting an overgrowth of bacteria in the intestins once we stop eating gluten and start to feel better. It said that the overgrowth can make you feel sick, (nausious with diareah) I wonder if you could possibly have that?

Keep in touch with any news, good luck with the foods,

Wendy

angel-jd1 Community Regular
angel-jd1
Posted
Are you sure that M&M's are gluten-free?

All of the M & M's are gluten free EXCEPT the crispy ones in the blue bag.

-Jessica :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Yep all M&M's are gluten free except the crispy :D

tarnalberry Community Regular
tarnalberry
Posted

Tami, have you investigated if you may have a casein intolerance? M&M's are gluten-free (with the exception noted above) but they're not CF. Just a thought.

bikerblue Newbie
bikerblue
Posted
  • Author

Hi everyone. Yes I have checked into the casein. I can tolerate dairy with no problems. Since I have the corn out of me I have been feeling pretty good now but I still suffer with a lot of fatigue. I tried a couple of times over the last week trying something with corn and then wonder why I did that. I definitely react to it and just need to keep it out of my system.

I have been trying some spirulina this week to see if that will help improve my fatigue. I don't notice anything so far but I'm hoping to see a change in that area. Plus I'm working on trying to keep my weight up so all seems to be going well for the most part. I pray I'm on the right path!!!

Tami

dreamhouses Newbie
dreamhouses
Posted

Hi, I know what you mean about the corn! I've been gluten-free for six months, but felt really achy a lot. I was complaining to someone about that, and they said "well what have you added in since you went gluten-free?"...okay, I added in a lot of corn stuff to make up for the lost wheat, like tacos, corn chips, tortillas etc.. I took them out and the achy stuff went away. Doesn't seem fair, but hey, at least I know what the problem is. I figure I can probably tolerate it occasionally anyway. Also remember that sometimes we add in so much rice when going gluten-free, and that can end up being a problem for some also. Its worth trying it without the grains, and adding them back in one by one. Good luck, Valerie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.