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Newly Diagnosed


PHutch824

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PHutch824 Newbie

My 13 year old son with IDDM has just been diagnosed with Celiac disease 5 days ago. Of course I have been everywhere trying to gain as much knowledge as I can to take care of him properly. My husband isn't quite convinced to be on the band wagon yet so here are a few questions I have. I read where a new toaster is appropriate so that regular bread does not touch his bread, is this true? I went out last weekend and bought new baking pans and cooking utensils just for his food. I also am wondering if his school is required to offer foods that are gluten free? I have packed him lunches so far, but he had always bought lunch prior to this. Thank you for any and all help!!

Patti :o


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Yes he needs to get a new separate toaster, peanut butter, butter ,jelly, etc.

Most schools will not be accomodating gluten free food you will have to pack the lunch for him. There are very good ideas on here for school lunches and so forth. Here are some brands that will list wheat,rye,barley,oats right on the label so if you do not see that on these following labels then they are safe.

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

Some good gluten free products are:

Tinkyada pasta

Foods by George-cinnamon and plain english muffins

Cybros rice rolls

Envirokids cereal bars

Envirokids has some gluten free cereals that mark it on the box

Cocoa and Fruity Pebbles are gluten free

Yoplait yogurt(check labels)

Kinnikinnick has donuts,muffins, breads etc.....very good brand

Glutino has cookies, breakfast bars, etc(blueberry and apple are good breakfast bars but the chocolate in my opinion is not good)

There are alot of candies that are also gluten free ...this site has info on that

Utz, Frito Lay, and Conagra also have some gluten free products

Your husband needs to know this is a very serious thing....it is a genetic autoimmune disorder and if your son does not follow the diet it puts him 40-100 times more likely to develop cancer, diabetes, thyroid disorders, osteoporosis, liver/gallbladder/kidney complications and so forth. They say ignoring the diet can knock years off of your life. Considering it is genetic and your son has it...everyone in the family should be tested.

Hope this helps :D If you need any more info just ask :D It may seem overwhelming at first but it gets easier with time and it is well worth it.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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