Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sensitive, Sore Skin- Feels Like Sunburn

Lisa16

By Lisa16
in Related Issues & Disorders

Recommended Posts

Lisa16 Collaborator
Lisa16
Posted

From time to time I get this and I wonder if it is related to celiac disease. Does anybudy know?

There is no mark or rash on the skin at all and it lasts for a few days (2-4 days). It feels like a sunburn, and it is super sensitive (to, say, clothes rubbing against it.) The slightest touch feels like sandpaper. It happens maybe 2-3 times per year.

I googled it and found it appears to be quite common, but nobody seems to know what it is or what will help it. I saw lots of possibles: fibromyalgia, lyme, neuropathy, vitamin defiiciency (B 12) and even MS were mentioned. People report it on their arms, legs, back and torso.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Raven's Mum Newbie
Raven's Mum
Posted

OMG! I'm having this happen as we speak! It's been driving me crazy. It's along one side of my tummy and all the way around to my back on the same side. :o No clue what the heck it is but its the first time I've ever experienced it. Weird....

Lisa16 Collaborator
Lisa16
Posted
  • Author

Another of the possibilities I saw was "post-herpatic" nerve pain from shingles. Gosh, I just don't know-- part of me kind of doubts that. Somebody else thought it could be a trapped nerve. And I do think it must have to do with nerves somehow. Yet mine doesn't feel that serious- just annoying really.

It is definitely an internal pain (under the skin)-- not from dry skin, say. Creams don't help. I tried vitamin b-12.

Mine is gone now (I think it just ran its course), so hopefully yours won't last very long. Mine was a "wrap around" pain too-- it got my right leg, then moved to the hip and into the small of the back.

I am very curious about this phenomenon. On the website where I found the long list of person after person who reported this pain, many of them mentioned going to the doctor for it and being met with blank stares or being treated like head cases. I have never told a doctor about it, even though it visits me on a fairly regular basis.

Sound familiar? It reminded me so much of the kind of reaction people here report getting when asking about celiac or related autoimmune disorders. And there are so many undagnosed celiacs out there-- I just wondered if there wasn't a link of some kind.

Thanks for replying to this. I saw lots of people had read it but nobody else seemed to know what I was talking about.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,740
    • Most Online (within 30 mins)
      7,748
    MsCaitriona
    Newest Member
    MsCaitriona
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free stool softener needed for after surgery

      By Scott Adams · Posted

      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      New to gluten-free

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      New to gluten-free

      By trents · Posted

      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...