Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2.5 Year Old Contaminated

anndon

Recommended Posts

anndon Newbie
anndon
Posted

Hi -

I would really appreciate some help - I am more anxious now than with a newborn! My 2.5 year old was recently diagnosed with celiac. She has been gluten-free for 6 weeks and we have really noticed a difference...weight gain, mood, etc. Two nights ago she was contaminated. It was my fault and I felt so terrible. The offending product (which looked just like gluten-free version from whole foods) is now in the garbage. Anyway, she ate the chip at 7 at night. At 2AM she woke up crying and refused to go back to bed. She was up until 4. I assume it was the gluten. She had a pretty bad poop the next morning. I (hopefully) thought she was on the road to recovery. She had a great day yesterday but again, last night, woke up crying and wouldn't go back to sleep - this time for 3 hours.

How long does contamination make kids feel terrible? Do you think the wake-ups are coincidental? She was fine during the day but got back to her old grouchy self just before bedtime. It was a really hard last hour....I am fearful of the night. I also have a new baby so this is all a bit much at once.

I really appreciate any insights.

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ahorsesoul Enthusiast
Ahorsesoul
Posted

It is terrible when we realise it's something we did, thinking we were doing the right thing.

Are you gluten free? Is baby's formula gluten free (don't know a thing about formula ingredients)? Might help you and baby.

You subject title "2.5 Year Old Contaminated" sounds like a jail-able offense or a movie title. Don't feel guilty, it will happen no matter how hard anyone tries. You can just do the best you can. A hot bath might help the 2.5 yr old sleep better. And know once you get a little sleep you will be able to deal better. Right now just hang on tight and come vent here if you have the need.

Anderson's mom Newbie
Anderson's mom
Posted

I to have a 2.5 year old with celiac disease. We were told he had it at 8 months old. he is also a twin, his twin sister doesn't have it neither does my 6 year old. Anyway, my son has done the same thing. For us it is always worse at night, kinda like when they have an ear infection. He is fine during the day but at night it gets worse. Anyway, he will have a ruff night( he usually ends up asleep on my chest for the rest of the night) then exactly 24 hours from the time he ate the gluten he runs a low grade fever until it is out of his system. I know every case is different but I hope this helps. I also have found that if I wrap something warm around his stomach or hold him tight ( just like you would a baby that is colicy) helps alot. Good luck, and just know that it does get eaiser, it will get to be where it is second nature to you and your family.

Hi -

I would really appreciate some help - I am more anxious now than with a newborn! My 2.5 year old was recently diagnosed with celiac. She has been gluten-free for 6 weeks and we have really noticed a difference...weight gain, mood, etc. Two nights ago she was contaminated. It was my fault and I felt so terrible. The offending product (which looked just like gluten-free version from whole foods) is now in the garbage. Anyway, she ate the chip at 7 at night. At 2AM she woke up crying and refused to go back to bed. She was up until 4. I assume it was the gluten. She had a pretty bad poop the next morning. I (hopefully) thought she was on the road to recovery. She had a great day yesterday but again, last night, woke up crying and wouldn't go back to sleep - this time for 3 hours.

How long does contamination make kids feel terrible? Do you think the wake-ups are coincidental? She was fine during the day but got back to her old grouchy self just before bedtime. It was a really hard last hour....I am fearful of the night. I also have a new baby so this is all a bit much at once.

I really appreciate any insights.

Thank you!

Bud's Mom Newbie
Bud's Mom
Posted
Hi -

I would really appreciate some help - I am more anxious now than with a newborn! My 2.5 year old was recently diagnosed with celiac. She has been gluten-free for 6 weeks and we have really noticed a difference...weight gain, mood, etc. Two nights ago she was contaminated. It was my fault and I felt so terrible. The offending product (which looked just like gluten-free version from whole foods) is now in the garbage. Anyway, she ate the chip at 7 at night. At 2AM she woke up crying and refused to go back to bed. She was up until 4. I assume it was the gluten. She had a pretty bad poop the next morning. I (hopefully) thought she was on the road to recovery. She had a great day yesterday but again, last night, woke up crying and wouldn't go back to sleep - this time for 3 hours.

How long does contamination make kids feel terrible? Do you think the wake-ups are coincidental? She was fine during the day but got back to her old grouchy self just before bedtime. It was a really hard last hour....I am fearful of the night. I also have a new baby so this is all a bit much at once.

I really appreciate any insights.

Thank you!

Hi!

My son was diagnosed at 15 months. Just a couple of months ago I bought the wrong "Amy's" pizza. Ironically I was even staring at the freezer case at Whole Foods for a long time trying to concentrate on a flavor my son would eat not paying attention to which one was gluten-free. I totally relate to your frustration. He had the pizza for dinner and around midnight he woke up vomiting and suffering from stomach aches. We couldn't understand why. Finally my husband checked the recycling and noticed the pizza box. After my little guy finally went to sleep that night (vomiting 4 times) I burst into tears and felt so sorry for him because of my mistake. After a couple of days, I didn't feel so bad and came to the realization that mistakes like this are going to haJuppen and not to get too down about them. Fortunately it's not life and death like a severe peanut allergy.

Also just last week he ate some regular play dough and 2 hours later he threw up about 4-5 times. He looked terrible towards the end. Dark circles under his eyes and pale skin. After taking his nap he was about 90% his normal self. I understand everyone exhibits symptoms in different ways, sometimes it's helpful to hear how other children respond. Luckily my little guy does not seem to suffer after the throwing up.

As for school, there are some great letters on the web. One mom in particular has a great website with her own version of a form letter. Sorry I can't remember the address right now.

Off the top of my head, the things we had to change/substitute at my son's co-op preschool:

snacks - I provided a list of gluten-free snacks only what was on the list was allowed (no home made anything)

Art Materials - I went through entire cupboards and wrote down all the supplies that could be ingested by a 2 year old and e-mailed the company to find out if gluten-free (paint, pasta, etc)

Cleaning - thorough cleaning at tables -especially if another group of kids share the space on another day

Emergency kits - have gluten-free food item and some type of label so your child doesn't accidentally get fed gluten

play-dough is the biggy - I have a good recipe for rice flour p.d.

sensory table - no oatmeal, barley etc.

Any special projects, talk with teacher about ingredients containing gluten

I hope that helps. I'm a bit late on this. I just joined and am now checking past posts.

Bud's Mom

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748
    Jamie B
    Newest Member
    Jamie B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.