Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son's Endoscopy

nmlove

Recommended Posts

nmlove Contributor
nmlove
Posted

We just got home from my four year old's upper endoscopy. He did GREAT! The doctor came out to us within ten minutes of us leaving him with results. He took 4 biopsies and felt pretty positive about a celiac diagnosis as he could see some damage during the scope. But everything else looked good, no additional problems. So now we wait for results (5-7 days) and then we go in as family for an educational appointment - going gluten-free, testing the rest of the family, etc. I'm so glad it's a definitive diagnosis!

And I just have to say we have such a great pediatrician and Children's as been so good with our son (we were there in the spring for something else). We're lucky to live so close to such a great resource.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chiroptera Apprentice
chiroptera
Posted

I am so glad you little one came through the procedure so well!!! I can imagine you were very nervous throughout it.

I hope he feels better very soon on his new diet! It gets a lot easier over time!

GOOD LUCK! :)

nmlove Contributor
nmlove
Posted
  • Author
I am so glad you little one came through the procedure so well!!! I can imagine you were very nervous throughout it.

I hope he feels better very soon on his new diet! It gets a lot easier over time!

GOOD LUCK! :)

Thanks! We were nervous before hand, especially my husband but once he was in, we barely had time to be nervous, the doctor was so quick! I'm sure once we're over this initial hump of rehauling the kitchen and navigating the grocery aisles, it'll be easier. Still wish I could skip that part. :P

Bud's Mom Newbie
Bud's Mom
Posted
We just got home from my four year old's upper endoscopy. He did GREAT! The doctor came out to us within ten minutes of us leaving him with results. He took 4 biopsies and felt pretty positive about a celiac diagnosis as he could see some damage during the scope. But everything else looked good, no additional problems. So now we wait for results (5-7 days) and then we go in as family for an educational appointment - going gluten-free, testing the rest of the family, etc. I'm so glad it's a definitive diagnosis!

And I just have to say we have such a great pediatrician and Children's as been so good with our son (we were there in the spring for something else). We're lucky to live so close to such a great resource.

Glad to hear you and your son had a good experience. Our son had the procedure at 15 mos and did well, too. I also am grateful for our Children's hospital and pediatrician. I was disapointed however when we met with Children's nutritionist. First it took 2 weeks before we could see her. When we did meet, I assumed she would have loads of information for me as a parent of a young child (such as lists of art supplies that are gluten free or how to ensure your child's preschool/daycare is gluten-free (art supplies, snacks, etc). She had some weekly sample gluten-free menus for adults (hummus, etc). Hopefully your appointment will be personalized to your child's age. You may want to consider calling the nutritionist or whomever your educational appointment is with. Enquire if he/she can gather these types of information for you to give to you at your meeting.

I just remember feeling totally overwhelmed because my son was starting a co-op preschool one month after his diagnosis and I didn't even know what to tell the teacher. After struggling together and looking many late nights on-line, we figured it out. If you have any questions about ensuring your preschool/daycare is gluten free, go ahead and e-mail me.

Bud's Mom

(son diagnosed in summer of 2008 when he was 15 months)

nmlove Contributor
nmlove
Posted
  • Author
Glad to hear you and your son had a good experience. Our son had the procedure at 15 mos and did well, too. I also am grateful for our Children's hospital and pediatrician. I was disapointed however when we met with Children's nutritionist. First it took 2 weeks before we could see her. When we did meet, I assumed she would have loads of information for me as a parent of a young child (such as lists of art supplies that are gluten free or how to ensure your child's preschool/daycare is gluten-free (art supplies, snacks, etc). She had some weekly sample gluten-free menus for adults (hummus, etc). Hopefully your appointment will be personalized to your child's age. You may want to consider calling the nutritionist or whomever your educational appointment is with. Enquire if he/she can gather these types of information for you to give to you at your meeting.

I just remember feeling totally overwhelmed because my son was starting a co-op preschool one month after his diagnosis and I didn't even know what to tell the teacher. After struggling together and looking many late nights on-line, we figured it out. If you have any questions about ensuring your preschool/daycare is gluten free, go ahead and e-mail me.

Bud's Mom

(son diagnosed in summer of 2008 when he was 15 months)

Thanks Bud's Mom! I wonder how our nutritionist will be? Even the GI doctor was talking about shampoos, lotions, how some gluten-free foods aren't necessarily gluten-free, etc. We'll see. I have to figure out how to approach his preschool. I'm waiting the next doctor visit so I have all the facts before I go to his teachers. Right now I'm just cleaning out the kitchen and starting to make lunch/dinner gluten-free. It's taking a bit with three little ones at home - and the flu hitting us, yuck! I'll definitely ask if I run into any preschool snags. The good thing about his school is that food is limited to birthday treat bags (parents bring in for kids to take home) and a once-a-month party that involves cookies/treats. Maybe play-doh but I don't think they've even used it yet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,664
    • Most Online (within 30 mins)
      7,748
    Lkscot0uky
    Newest Member
    Lkscot0uky
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.