Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Stomach Cramps


anglepoise

Recommended Posts

anglepoise Apprentice

Hi, I've had some weird things happen to me in the last month. Several weeks back, I got what looked like food poisoning, & wound up in the hospital, where I had to get rehydrated with an IV. So there was that, then a few days back, my fiance & I were on a road trip, when I started to get these waves of stomach cramps. They soon became terribly severe & started migrating to my intestines. Pretty soon, both my stomach & intestines were cramping in waves, so bad that I was screaming into a pillow. I felt like I'd been shot. This went on for an hour & 1/2. I honestly thought I was dying. We were in the mountains, nowhere near a medical facility, so we just pulled over & I hoped they would pass. All in all, I had the cramping for 4 1/2 hours. It was a nightmare. I've never had anything like that before. I've been gluten free for about a year & wonder if I got contaminated in both instances. Blood tests showed that I didn't have food poisoning after all in the 1st instance. Has this stuff happened to others here?

angel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I was in the ER 4 times before my diagnosis because of what they thought was dehydration. Blood tests found nothing wrong with me either. I thought I had food poisoning and it turns out before I was diagnosed I had not only ecoli(from a McDonalds Big Mac <_< ) but I also had mono...so there was my trigger

Anyways I know what you have been through(haven't had severe stomach cramps but I have had alot of other stuff)...since being gluten free that hasn't happened at all so maybe you were contaminated...did your fiance eat something then kiss you and you got contaminated that way? Have you checked lipsticks, shampoos, and lotions already? Try to track down every possible way you think you could have been contaminated.

mela14 Enthusiast

I also had the same thing happen. I wound up in the hospital several times with stomach pain, diahrea, dizzy, muscle pain, fatigue....each time I was rehydrated by IV and told it was probably the flu. Once they even told me I had Giardia and put me on Flagyl for it. when the stool test came back it was negative. I was actualy tested a few times and each time was negative for parasites and ova.

In hindsight it was probably gluten or some other food intolerance that I never suspected. I never thought I had a food intolerance but am realizing more and more that diet is key.

hang in there til you figure out what you can eat and try to scrutinize everything.

B)

Canadian Karen Community Regular

I have also experienced those kinds of pain attacks throughout my years, both before and after the gluten free diet. Mine also passed after about the four to five hour period. The only thing that helped me was my heating pad, on the floor, rocking back and forth, humming to myself, trying to get myself into a "place in my mind" where I didn't feel the pain...... I have never figured out through what has brought them on.... For me, it kind of felt like there was a vice grip in my abdomen pulling it apart.....

Karen

anewsprue Newbie

That's the kind of pain I had last time I was in the ER, before the final diagnosis of celiac disease. I had that kind of pain once before when I had a bladder infection with spasms, lasted about four to five hours and they think I passed a kidney stone. Might want to have a UA and be checked for an infection. Hurt like childbirth. :o

hsd1203 Newbie

just FYI... the only time I get stomach pains that bad (WAY worse than getting glutened) and literally want to die, is when I eat something with aspartame. even suger free gum is enough to give me a little tummy ache. sounds weird, I know, but it happens to my mom and aunt too. maybe on your road trip you were eating different than usual?

just a thought

anglepoise Apprentice

Thanks, everyone, for your views. It makes me feel better to know that I'm not alone in this.

On another note, I downloaded the radio show on Celiac called "Gut Reaction," from Audibles.com & gave it a listen. It's very moving & powerful, but left me confused. Everyone at the end of the show was saying that the gluten-free diet was a like a miracle cure & that they feel so much better. I've been on the diet now about a year, as strictly as possible, & although I've seen a decline in bowel problems & migraines, I still have a lot of other problems, like joint/muscle pain & fatigue. I definitely cannot call the gluten-free diet a miracle cure, but it's certainly helped some.

angel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

Every one responds differently. Some people take longer to heal than others. I would have to put myself into the group of people who call the gluten free diet a miracle. I didn't heal overnight either. My life is now the polar opposite of what it was. Keep at it, it will get better.

  • 2 weeks later...
antmimi Rookie

Have you been tested for food allergies? Sometimes that can cause the symptoms too. Rice kills my stomach.

mela14 Enthusiast

ok.......suffering here too......I am learning that soy is worse for me than gluten!

last night I had a gluten-free cookie that clearly stated on the package that it is produced in a facility that also uses dairy, eggs, soy, peanuts and tree nuts! Unfortunately I didn't bother to read that part but hubby read it this morning only AFTER I was so sick. I must be THAT sensitive! I am trying to stay positive but feeling so poorly just gets me down. I can't seem to get it right. there are so many things to watch out for! soy is a killer for me! :blink:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.