Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pantene


stephkb

Recommended Posts

stephkb Rookie

I am new to celiac.com and was recently diagnosed with celiac disease. I am still trying to figure everything out, have gone through all my food and medicine but still think I have been having a reaction to something so started looking into my bath and beauty products. I have seen on here that some people have reactions to them even though you do not ingest them and I would rather err on the safe side and get rid of everything that has gluten in it.

I have used Pantene products in the past and contacted them to see if their hair gel was gluten free. From the letter they sent me back, I take it that they will not disclose the information. I think they are saying that if the ingredient list says it has wheat, etc. in it it is something they themselves added, if it does not say it has a gluten containing ingredient in it then it still could, but it would come from a supplier in the fragrance and not from Pantene themselves.

Could others provide me with your take on this letter that follows?

I also found it very demeaning that they would refer me to several websites about my condition as if have not already researched celiac more than I'm sure they probably have!

Thanks for your input -- letter follows:

----------------------------------------------------------------------------

Thanks for contacting Pantene.

We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

Thanks again for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out Open Original Shared Link and Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

This sounds very patronizing to me! Of course....it may just be the mood I'm in, and the fact that I really take offense at being spoken to (written to) as if I were of less than normal intelligence. I have used Pantene in the past....maybe I won't bother to use them in the future. Thanks for sharing, btw, and good luck to you in healing.

stephkb Rookie

Thanks for you response! That is exactly how I took the letter too. I haven't contacted too many places about whether or not their products contain gluten, so I wasn't sure about the type of response you normally get. But I felt that their letter was very patronizing as well! I am not going to be using their products anymore.

This sounds very patronizing to me! Of course....it may just be the mood I'm in, and the fact that I really take offense at being spoken to (written to) as if I were of less than normal intelligence. I have used Pantene in the past....maybe I won't bother to use them in the future. Thanks for sharing, btw, and good luck to you in healing.
JillianLindsay Enthusiast

Sounds to me like they're saying that their products are basically gluten-free but in our lawsuit-happy society, no one actually wants to take responsibility for their products, so they won't actually answer your question directly. Frustrating. I tend to stick to companies that will give me a straight answer as I don't want to support companies who won't take responsibility for their products or make an effort to help people feel safe/comfortable with the products they are using.

stephkb Rookie

Yep, I think I will just find a different product to be on the safe side. And you are right I'd rather support a company that will give me a straight answer. Whether or not a tiny bit of gluten in my hair will hurt me or not was not the question I asked them. Basically I just said, I have celiac disease is your product gluten free, and they did not really answer my question at all.

Thanks for your take on this, it's good to know some companies will answer your questions straight.

Sounds to me like they're saying that their products are basically gluten-free but in our lawsuit-happy society, no one actually wants to take responsibility for their products, so they won't actually answer your question directly. Frustrating. I tend to stick to companies that will give me a straight answer as I don't want to support companies who won't take responsibility for their products or make an effort to help people feel safe/comfortable with the products they are using.
homemaker Enthusiast
I am new to celiac.com and was recently diagnosed with celiac disease. I am still trying to figure everything out, have gone through all my food and medicine but still think I have been having a reaction to something so started looking into my bath and beauty products. I have seen on here that some people have reactions to them even though you do not ingest them and I would rather err on the safe side and get rid of everything that has gluten in it.

I have used Pantene products in the past and contacted them to see if their hair gel was gluten free. From the letter they sent me back, I take it that they will not disclose the information. I think they are saying that if the ingredient list says it has wheat, etc. in it it is something they themselves added, if it does not say it has a gluten containing ingredient in it then it still could, but it would come from a supplier in the fragrance and not from Pantene themselves.

Could others provide me with your take on this letter that follows?

I also found it very demeaning that they would refer me to several websites about my condition as if have not already researched celiac more than I'm sure they probably have!

Thanks for your input -- letter follows:

----------------------------------------------------------------------------

Thanks for contacting Pantene.

We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

Thanks again for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out Open Original Shared Link and Open Original Shared Link

I am a soapcrafter and I know that fragrance companies do not divulge their fragrance ingredients to anyone...they say it is proprietary and that is totally legal, not right, but totally legal. I believe their response to very genuine. I have come head to head with fragrance companies and they are all the same....it really should change. Reputable companies attempt to gain full fragrance ingredient list disclosure and they are denied.

stephkb Rookie

Thanks for the info. I'll keep that in mind. I think I'd still prefer to use a company that can guarantee me that something is gluten free though, also it seems like a company as big as Pantene could at least find out if their fragrance includes any allergens in it without the fragrance company divulging their ingredients. But maybe I'm wrong... Thanks again.

I am a soapcrafter and I know that fragrance companies do not divulge their fragrance ingredients to anyone...they say it is proprietary and that is totally legal, not right, but totally legal. I believe their response to very genuine. I have come head to head with fragrance companies and they are all the same....it really should change. Reputable companies attempt to gain full fragrance ingredient list disclosure and they are denied.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.