Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Subtle Symptoms Before The Overt Symptoms


CGally81

Recommended Posts

CGally81 Enthusiast

I know that I'd been feeling the definite brain fog/zombie-like state thing every time I ate food containing gluten since March or April this year. But before that, I think I got "silent" or less obvious symptoms.

In 2007, I had grand jury duty. Every day, they'd serve donuts. And I'd have one. And after having one, I got very tired and stayed that way throughout the whole session, even if I had plenty of energy before. Was that just the sugar or something in the donuts, or was I mini-glutened back then?

In 2008, I used to eat lots of apples. Until they started making me hungry. A search on Google for "apples make me hungry" showed I was not alone. It was later discovered that celiac can cause fructose malabsorption, in which eating fruit (even a single grape was enough to cause the problem) can cause you to start craving sugary foods - other than fruit! (This appears not to be a problem anymore, so that part probably healed)

Also in 2008, I was eating a lot of whole wheat bread, but over time, it seemed like the bread did a poor job of filling me up. I would go to it often because of its nutritional and fiber content, but it didn't seem to fill me as well as other foods did. Was that because of gluten? Come to think of it, other gluteny foods, such as macaroni and cheese, which I used to have a lot of in college, seemed to be less filling over the years than they were in the past. They just satisfied me for a shorter amount of time.

So even though I started to suffer overt symptoms in or around March 2009, I think I may have been suffering "silently" before that, in subtle ways, particularly in the form of gluten foods not being very filling. It wasn't until I suffered overtly that I got to the "gluten makes me crave food" problem afterwards.

Has this been your experience? Have you, in hindsight, noticed that you'd been having problems with gluten before it actually caused obvious symptoms? Was gluten-containing food unfulfilling before it became an active problem?

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srthomas21 Explorer

I got the "I'm starving" feeling too. I thought I was hypoglycemic or something. Nothing filled me up I was always hungry.

CGally81 Enthusiast
I got the "I'm starving" feeling too. I thought I was hypoglycemic or something. Nothing filled me up I was always hungry.

Did you get that after going gluten-free? I'm hungry a lot now, though it's not as bad as it's been before.

Still, did you get the starving feeling before going gluten-free? Was it common back when you were eating gluten-containing foods, that those particular foods never really seemed to fill you up?

Karrin Rookie
I know that I'd been feeling the definite brain fog/zombie-like state thing every time I ate food containing gluten since March or April this year. But before that, I think I got "silent" or less obvious symptoms.

In 2007, I had grand jury duty. Every day, they'd serve donuts. And I'd have one. And after having one, I got very tired and stayed that way throughout the whole session, even if I had plenty of energy before. Was that just the sugar or something in the donuts, or was I mini-glutened back then?

In 2008, I used to eat lots of apples. Until they started making me hungry. A search on Google for "apples make me hungry" showed I was not alone. It was later discovered that celiac can cause fructose malabsorption, in which eating fruit (even a single grape was enough to cause the problem) can cause you to start craving sugary foods - other than fruit! (This appears not to be a problem anymore, so that part probably healed)

Also in 2008, I was eating a lot of whole wheat bread, but over time, it seemed like the bread did a poor job of filling me up. I would go to it often because of its nutritional and fiber content, but it didn't seem to fill me as well as other foods did. Was that because of gluten? Come to think of it, other gluteny foods, such as macaroni and cheese, which I used to have a lot of in college, seemed to be less filling over the years than they were in the past. They just satisfied me for a shorter amount of time.

So even though I started to suffer overt symptoms in or around March 2009, I think I may have been suffering "silently" before that, in subtle ways, particularly in the form of gluten foods not being very filling. It wasn't until I suffered overtly that I got to the "gluten makes me crave food" problem afterwards.

Has this been your experience? Have you, in hindsight, noticed that you'd been having problems with gluten before it actually caused obvious symptoms? Was gluten-containing food unfulfilling before it became an active problem?

I suspect I had a sensitivity to it through my teen years. I was lethargic a lot and had periods of time where I would gain a lot of weight and then suddenly my appetite would disappear and I'd drop it all, becoming a bit scary skinny. I had a lot of head fog too as well as bouts of constipation/diarrhea. I have enamel missing too that started in my teens. It was only in my early twenties that everything became a million times worse.

I'd never heard or thought back to how certain foods made my appetite increase, but I do remember going through boxes of mac and cheese and, later after I changed to a mostly veggie diet, becoming ravenous - after eating apples in particular!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.