Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Cant Put On Weight! Steriods Or Weightgainers


nailehead

Recommended Posts

nailehead Rookie

I was diagnosed last year around October after being misdiagnosed for at least 5 years with IBS.

Some of my symptoms have subsided but alot are still present. I think i was probobly stage 3 or 4 upon reading other posts. I still have daily and weekly pains and symptoms and have felt that i have been really careful not to get glutenized!

I lost 50 lbs and CANNOT seem to put the weight back on!

I was 220lbs and thick and pretty fit.

Now i fluctuate between 176-180.....

I am 6'3" and look skinnier than i did when i was in my prime in high school!

Are there any "safe" weight gain powders or supplements?

OR are steroids the answer?

( i wasnt aware steroids where prescribed until reading some other posts..)

Any advice would be very appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikki-uk Enthusiast

HI nailehead,

my husband has been put on steroids but not primarily to put on weight.

My husband has 'refractory' coeliac disease (meaning it's not getting better on a gluten free diet).

The steroids are prescribed to dampen down the immune system,by dampening down the immune response,this allows the bowel to heal(hopefully).

Of course a side effect of the steroids can be a huge appetite-helping with the weight gain.

My husband is around 120 pounds at 6ft tall ,so any weight gain would be a bonus!

However,these are extremely strong drugs,and should not be taken lightly.They can also have some nasty side effects-so I don't think you should be thinking of steroids just yet.Do you have a gastro doctor?.I would discuss your symptoms with him/her.Did you have a biopsy yet?.Maybe after a year gluten-free you should ask for a repeat biopsy to work out if your bowel is healing.

I believe my husband has had this disease for a long time undiagnosed,so I think that there is a lot of damage to undo,& will take a while(he's been gluten-free for 8 months.)

Another thing you may want to consider is other food allergies causing your symptoms i.e.lactose,casein,soy,yeast.

Do you see a dietician?.They would be able to advise on suitable gluten-free build up additives(my husband has enlive &ensure drinks packed with vitamins & calories).

I hope this is some help!

nailehead Rookie

Thanks Nikki!

I was diagnosed by my "primary care" doctor, which pretty much means an all around family physician, but at least she finally found it ( Celiac ) after 5 years and 5 other docs telling me it was IBS and to "live with it"!

I was referred to a specialist here in San Diego that i will be contacing today..hopefully and set up an appt.

I have been conversing with a nutritionis/celiac specialist over the phone, and she feels that i have a severe case of Celiac and DEF need to go see a specialist!

working on that now!

thanks for your input!

i am in pain and discomfort EVERYDAY even being on the gluten-free diet!

it is really frustrating and affecting my attitude mentally, and still my body physically...very depressing...

KaitiUSA Enthusiast

First, have you made sure nothing is sneaking into your diet? Have you checked things like shampoos and stuff you put on your hands, face, or head that could possibly get into your mouth?

I lost close to 20 pounds before going gluten free but after I gained it back.

Ensure Plus (chilled) is really good to get some calories into you. They have 350 calories for 1 bottle= to 1 cup. Ensure Plus is made to help people gain weight. My favorite is the butter pecan...chilled always taste better. Ensure and Ensure Plus drinks are gluten free.

Sunflower seeds, peanuts, cashews, apples or a fruit with peanut butter. These are a few things that are good for gaining weight because they are high calorie.

You need to eat more calories then you burn. I know I have a fast metabloism on top of everything so I had to eat alot more in order to gain weight. Eat about 500 more calories then you usually eat.

Here is a link with a calorie counter...what you can do is put in your ideal weight and it will tell you how many calories you need to have to reach that goal.

Open Original Shared Link

Here is another site for it as well...this one is a bit more in depth

Open Original Shared Link

nikki-uk Enthusiast

It's hard going isn't it, to finally find out why you feel so bad-but to not feel any better with the 'cure'(gluten-free diet).

I think I also understand what you mean by all of this is affecting your 'mental attitude'.

My husband has been gravely ill with this disease,and he does get very down about it.Since diagnosis in the last 8 months he has been mostly bedridden,& it's affected us all as a family(we have 3 kids too).

It is so very frustrating when despite your best efforts you're not getting better,however,hopefully-you'll have a better idea of what's going on after seeing your specialist.

Hang in there-hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748

    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.