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If Gluten Intolerant, Immediate Symptoms?


Spunky007

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Spunky007 Apprentice

After years of ups and downs with malfunctionng digestion, I am so determined to sort it out. I want a different kind of life so badly...a system that works. I can't even imagine!

Anyhow, first I tried a strict elimination, eating only a few foods I know generally work for me, planning to stick to that until I stabalized, then build. Sounds logical, right?

Except I can never really stabalize... I improved, ended a big flareup withing 24hr, but the general ups and downs continued.

When I freed up my diet, things like a bunch of veggies helped. Even lactose [a classic problem] didn't seem to make a difference. yet over the next few days my digestion headed downhill again...

All this time I HAVE stayed gluten free. I wanted to give it a chance because it keeps being suggesting, though I haven't had any reason to associate it with problems.

What I'm wondering is, can you tell right away if you have a reaction to gluten? With everythign so messed up anyhow, if I had a period where I was semi-stable [my usual coping mode] and ate, say, a bowl of cereal or regular bread, would I know right away if gluten for the first time in weeks was one of the key causes to my problems?\

NOTE: I can't get medical help/testing due to severe lack of finances and insurance--please, just share your experience with how I can know whether gluten is a problem or not!


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mushroom Proficient

I have a pretty immediate reaction (within an hour or two) to lactose and corn. But with gluten it can be as much as 24 hours; I will generally know by then.I believe everyone is different in this respect.

frustrated09 Newbie

I am self-diagnosed gluten and dairy intolerant as of july 09. I am still working on getting all the way gluten free. i have just recently changed shampoos, lotions, toothpaste and many other items. A vaseline lotion i just bought sunday morning and tried in the store, with in an hour my energy was draining and within a couple hours total I felt like crap for the rest of the day. If something bothers me I either get really sleepy tired and/or stomach and gut hurt or grumble. it takes from 20min to 24 hrs for it to hit me.

Marsha

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
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