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2 Sons With Food Allergies?


rysmom

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rysmom Rookie

Hi everyone! I first want to thank everyone who has helped me throughout the years with my first celiac son. Your info has been a true lifesaver! He has been gluten free for 3 years now and I feel confident in the gluten free lifestyle or at least I thought I did :-) until son #2 came along....DS2 is now 1 year and I think I am having food allergies with him as well. I am not so sure that they are gluten issues but b/c you have all been so helpful & knowledgable in the past I was hoping for the same this time around....TIA and thanks for listening!

When ds2 was newborn, he was diagnosed with having milk protein and soy protein allergies and had to be put on Similac Alimentum formula. Once he started that formula it was like I had a new baby, no more crying...just a happy happy baby. At about ten months old, we started to wean him off the Alimentum and onto Similac Sensitive. The doctor said he should have outgrown his "sensitivities" and will be fine. Before this, we were beginning to feed him solid foods, of course. However, with solids we were trying to avoid gluten just to be on the safe side but were not perfect.

I was noticing that glutenfree foods are not always softer foods so I began to get a little bit relaxed with ds2 about glutenfree and gave him more gluten. (ritz crackers, gerber graduates puffs, etc...)

Now, all of a sudden, we are noticing a horrible diaper rash. Not really more poopy diapers like w/ ds1. But, we immediately have taken ds2 off of all gluten. He has been gluten free for about 2 weeks now. The diaper rash is getting better but it is not gone. I am still worried. I am really thinking that it is the formula and he has a different allergy than ds1. I think maybe he is still sensitive/allergic to milk or soy or both.

I really do not know and that is why I am posting here. I wanted to get some advice and do some research before I bring him to the doctors. I always like to have my own knowledge on my side before blindly asking the doctors.....

Thank you for reading my post!

:-) Ry'sMom


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nmlove Contributor

I'd go back to what you were feeding him before the problems started. He's a year so he really doesn't need formula, right? I breastfeed so I don't know how long formula goes for. Though I do know it's the main nutrition for the first year. What if you weaned him entirely off formula now or just go back to the original brand?

Then, slowly make changes. Add one type of food, not multiple that'll confuse results. Ritz crackers obviously have wheat but I'm sure they contain dairy or soy. Seems like any processed food contains one or the other! (I'm currently dairy/soy free because of breastfed dd.) For gluten, try Cheerios or some cream of wheat or something. Then after a few weeks (yes, I'd wait that long because I'd hate to start the process over!) try some soy or dairy. Keep it simple. Just a sippy cup of milk or soymilk (keep it plain so nothing else is interfering). If allergic, he won't need a large amount to bother him.

Good luck! By the way, 10 months isn't a magical number to outgrow a sensitivity. From what I understand it can take up to three years. And if it still bothers them at 3 chances are it's with them for life.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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