Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fecal Incontinence


bjvanslke

Recommended Posts

bjvanslke Newbie

I and a 74-year old woman and began having fecal incontinence very suddenly after eating in a restaurant last spring. It continued for several weeks. I saw my primary care physician and she had lab tests done to determine if I had an infection. No infection was present. Then I had a colonocsopy and the doctor removed two benign polyps and said everything looked fine, except I had a hemorroid. The hemorroid causes me no problems.

To better describe the incontinence, I have a bowel movement in the morning after breakfast, then shortly sometimes after I "leak" some stool into my panties, leaving about a quarter-size depost. This happends everytime I move my bowels, also.

The fecal incontinence seemed to improve when I was eating at home and not going to restaurants. I attribute this to the fact that restaurants use foods that contain preservatives and additives and I am sensitive to them, I believe, because I have avoided them for so long. At home, I eat whole foods and do not buy conveniece foods with additives and preservatives. I also eat only bread made from the whole wheat berry, not refined flour. I enjoy other grains, especially oats. The only food which I avoid is beef, which does not agree with me generally. I rarely eat red meat; I eat mostly chicken and fish for protein, fresh fruits and vegetables, eggs, butter, eggless vegan light canola mayo, goat-milk yogurt and milk, and good whole-grain bread made without flour.

I began chemo after a lumpectomy for breast cancer in January of this year, and of course it affected my bowels. At this time in my treatment, my bowels are loose, which is not unusual during chemo treatment, but I still suffer fecal incontinence. My oncoologist tells me it has nothing to do with the chemo and we agreed that I would talk again with my primary care physician.

On my own, I have done reserach on the net and discovered the Celiac disease, or gluten intolerance, could be a possible cause.

Your comment would be greatly appreciated. Perhaps you could point me in another direction for a solution.

Today I decided to stop eating bread and grains to see if it makes a difference.

Thank you.

Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

Hi Betty. Welcome to the board. I feel your pain. You have several different things going on that could be a problem. I found that my incontinence problems cleared up as the muscle spasms and other digestive tract problems cleared, but it took a while and was gradual.

You sound as though you are eating well. Before you go gluten free, you need to be aware of a couple of things. One, it can take a while to see results if celiac disease is your problem. Also, if you decide to get tested you need to have been eating gluten for a while in order to get a true result. With all the other things going on in your health, be sure you are getting quality nutrition even if it is gluten-free. From your post you seem to be comfortable with the usual nutritional guidelines. If you decide to go gluten-free, take some time and research it well. This site is a great place to start. Let us know how you are doing as you progress.

watkinson Apprentice

Hi Betty,

cdford is absolutely right! Celiacs disease is an autoimmune disease. When we ingest gluten, whether a bucket full or a speck, our bodies send out antibodies to attck the gluten like it was a poison or a bacteria, or virus or something. The problem is that, those antibodies don't distinguish the gluten from our own healthy cells. So they start killing us too, damaging the intestinal wall, causing leaky gut (protiens and food particles escape the intestine) causing a miraid of other health issues, that can ultimately result in a higher incidence of cancers. particularly colon caner. You must be presenly eating gluten for the antibodies to be present in the blood. Your blood test will probably come out negative if you give up eating gluten beforehand.

I would definalty encourage you to be tested. It sounds to me like you may very well be a celiac.

Good luck, Wendy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,846
    • Most Online (within 30 mins)
      7,748

    Fultonn
    Newest Member
    Fultonn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.