Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Know, This Is Really Random

Susy13

By Susy13
in Coping with Celiac Disease

Recommended Posts

Susy13 Newbie
Susy13
Posted

I'm going to have an endoscopy in January, and I know regardless of the results I'm going to go gluten free to see if I feel better.

So anyway especially near the beginning, I'm going to be always having to check whether things are safe yet...and I'm wondering how you guys deal/dealt with it in the beginning? I don't have internet on my phone, should I get it? I don't want to be stuck in a situation where it could be tricky. I'm sort of trying to think and plan ahead.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mey Marie Explorer
Mey Marie
Posted
I'm going to have an endoscopy in January, and I know regardless of the results I'm going to go gluten free to see if I feel better.

So anyway especially near the beginning, I'm going to be always having to check whether things are safe yet...and I'm wondering how you guys deal/dealt with it in the beginning? I don't have internet on my phone, should I get it? I don't want to be stuck in a situation where it could be tricky. I'm sort of trying to think and plan ahead.

I have a hard time still with my shopping trips. I make my list and go on line to make sure that my favorite brands are gluten free. If they are not I look for the name of one that is. I don't have a phone that goes on line but my hubby does, and I have to say that when he is with me at the store it is nice to have. Most times he isn't though. So just plan ahead and it will be ok. And you also can ask you store to print out a list for you of all the gluten free products in there store. I think most of them have a list. That way you have no question, and your not relying on someone's blog and hoping they know what they are talking about.

Good luck. You will get the hang of it really quick. It didn't take me to long.

tarnalberry Community Regular
tarnalberry
Posted

Nothing, not even the internet in your hands, replaces reading labels. Yes, on everything that has a label, EVERY time you go to buy it (formulations change). The list of ingredients to avoid isn't actually that long, and that's what really matters. (When in doubt, don't try it.) Of course, as much cooking from scratch (which doesn't have to time consuming, if it's simple) makes this all much easier.

Welda Johnson Newbie
Welda Johnson
Posted

Here's hoping you have an easy time with your endoscopy and with staying gluten free. I've been on this diet for years, and it gets easier and easier. Eating the same groups of foods certainly helps us be more creative with our menus. Meats, fruits & vegetables comprise my diet, and I have to agree with Tarnalberry that it's all about reading labels, endlessly. It takes time, but it's worth it. Food additives cause some people more problems than they realize, so be careful of things like casein, whey, egg whites, yeast, etc. Being intolerant of all grains, all milk & dairy, egg whites, yeast, casein, whey, etc. means being diligent about every food I eat, but that's okay, because I'm healthier than ever before. Best wishes to you on this journey. Welda

Shess0816 Apprentice
Shess0816
Posted
I'm going to have an endoscopy in January, and I know regardless of the results I'm going to go gluten free to see if I feel better.

So anyway especially near the beginning, I'm going to be always having to check whether things are safe yet...and I'm wondering how you guys deal/dealt with it in the beginning? I don't have internet on my phone, should I get it? I don't want to be stuck in a situation where it could be tricky. I'm sort of trying to think and plan ahead.

Here are a couple of other suggestions. I know that there are a couple different books that are published (I believe on a yearly basis) that contain a list of all gluten free products by brand or by type of food. The only caveat with these is, you still HAVE to read the labels before you buy those products since ingredients can change often in foods. But at least that would give you a starting point for which products to look at first. The second thing I do sometimes is if I am in a store and I am looking at buying a product that I am not sure is gluten free, there is usually a 1-800 number on the product. You can call up the company right while you are standing in the store and ask them if that specific product is gluten free or not. They should to be able to tell you right away if it is. If they seem confused or cannot guarantee it is gluten free, don't buy it! Third, a lot of stores have a lot of gluten free products in their health food sections. I shop there a lot for convenience foods because it takes the guesswork out of it.

Hope that helps some!

Sally

Susy13 Newbie
Susy13
Posted
  • Author

thank you all for your great suggestions. I'm going to look into everything!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    2. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    3. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    4. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    5. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748
    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.