Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Congestion, Runny Nose With Intolerances


LadyCyclist87

Recommended Posts

LadyCyclist87 Apprentice

Getting frustrated here! Since before Thanksgiving I've been chronically congested and carrying a box of kleenex around with me due to the runny nose. I was then on Zithromax, which contains 5 pills. I was beginning to feel better, but by the 4th or 5th pill my symptoms re-occurred. I thought it was something I ate "illegally", as I put it, and waited for the problem to resolve on its own. When it didn't, I got another prescription of Zithromax a few days ago. The same thing happened; the first 3 pills helped my congestion, but now it's coming back all over again!!

Can someone help me figure out what's going on? I just want to get better so I can breathe and talk normally...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Julysailor Rookie

Have the same problem after being glutened. In my case I use a nasal decongestant/pain reliever as I sometimes get sinus pain. I use a genaric Wal-Mart brand, i.e. suphedrine pe sinus headache. This problem, at least for me, goes away after I get healed-up. Hope this helps.

LadyCyclist87 Apprentice

I use Sudafed but it only temporarily relieves the symptoms. The same runny nose and congestion come back within a couple of hours. This is an on/off problem with me that would usually resolve with antibiotics, but I've had this now for almost a month and it's just not going away. But I know this can't last forever, right??

Julysailor Rookie

If condition is related to your gluten intollerance and if you remain gluten-free it will go away. You may have a seasonal alergy as well. Good luck!

jerseyangel Proficient

I have this and have been diagnosed by an ENT as having chronic allergic rhinitis. I don't believe that it's a symptom of Celiac, but my doctor said that they tend to see these kinds of things with their Celiac patients.

I have problems with runny nose, eustachian tube issues, watery/itchy eyes. Probably a separate issue, but I also have a few food intolerances in addition to gluten. I take Claritin and Nasacort AQ, but it never really goes away. Years ago, I was given lots of antibiotics for it and now I regret having taken them since they really did no good.

NorthernElf Enthusiast

I'll chime in here too - definite sinus issues with gluten & dairy.

Sometimes I feel like I'm wearing a lone ranger mask - a little too tight. I get puffy & dark under my eyes and I swear the vision in my right eye is affected (maybe just makes my astigmatism worse). I get wicked sinus headaches on gluten - sometimes so bad Tylenol is useless, only advil gets it (and that's hard on my stomach).

It is a rarer celiac symptom but I have come across others that have it.

LadyCyclist87 Apprentice
I have this and have been diagnosed by an ENT as having chronic allergic rhinitis. I don't believe that it's a symptom of Celiac, but my doctor said that they tend to see these kinds of things with their Celiac patients.

I have problems with runny nose, eustachian tube issues, watery/itchy eyes. Probably a separate issue, but I also have a few food intolerances in addition to gluten. I take Claritin and Nasacort AQ, but it never really goes away. Years ago, I was given lots of antibiotics for it and now I regret having taken them since they really did no good.

Thanks for the reply JerseyAngel. I'll have to look into this; I was really hoping this was just from an infection, but when I think back, I do think how often I was congested with the constant runny nose. I suppose it became most problematic starting around the beginning of this year.

It's frustrating, because with antibiotics, my nasals are a lot more clear, but my family claims that they can still hear the congestion. I get the idea that some of my family members think I just have the flu and I'm not doing anything about, but that's not the case at all! It's actually really frustrating, but that's a whole different story.

Getting back on topic, would you say that the Claritin and Nasacort AQ gave more relief as far as the runny nose goes? Or clearing congestion?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LadyCyclist87 Apprentice
If condition is related to your gluten intollerance and if you remain gluten-free it will go away. You may have a seasonal alergy as well. Good luck!

I've never had allergies, and really am hoping that there's just something I'm missing when I eat certain foods. I'm going to start a food diary; i.e., list all ingredients, list how I've felt after eating, etc. The antibiotics are finally starting to kick in, but nothing has completely gone away.

Thanks so much for your help :-)

LadyCyclist87 Apprentice
I'll chime in here too - definite sinus issues with gluten & dairy.

Sometimes I feel like I'm wearing a lone ranger mask - a little too tight. I get puffy & dark under my eyes and I swear the vision in my right eye is affected (maybe just makes my astigmatism worse). I get wicked sinus headaches on gluten - sometimes so bad Tylenol is useless, only advil gets it (and that's hard on my stomach).

It is a rarer celiac symptom but I have come across others that have it.

I'm sorry about all the sinus pressure and headaches you experience. I tend to get a lot of headaches too, but I don't think it's related to my sinuses; its mostly in the frontal area of my forehead. Just usually a lot of throbbing, pain, and/or pressure. I could even deal with mild congestion if the runny nose wasn't so bad. I count my blessings that I miss out on most of the classical stomach symptoms with Celiac, but I really hate these symptoms too.

jerseyangel Proficient
would you say that the Claritin and Nasacort AQ gave more relief as far as the runny nose goes? Or clearing congestion?

The Claritin is pretty helpful for the runny nose--it tends to dry things up. The Nasacort helps me more with the eustachian tube dysfunction and congestion.

LadyCyclist87 Apprentice

** Follow Up **

In case there was anyone who was following this thread (I'm not saying that there definitely was, haha), my doc put me on a corticosteroid nasal spray (Flonase), and I bought over-the-counter Mucinex and nasal saline spray. I'm not cured, but it does seem slowly but surely that I'm getting better. I'm still congested and have a bit of the runny nose, but it's not nearly as bothersome as it was before (able to breathe again while I'm eating, my voice sounds almost normal again, don't have as difficult of a time breathing thru my nose). Doctor said that I didn't have an infection but something known as "vasomotor rhinitis." Not sure how common this is in Celiac, but if you're having these s/x than I would suggest trying what I have if it's suitable for you.

Merry Christmas!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.