Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

As You Lose Other Foods In Your Diet?


camprunner

Recommended Posts

camprunner Apprentice

The first time I went off gluten (doing the Maker's Diet), I was physically ill for a couple of months. I could barely get out of bed and did so only for a few hours a week. This is my second time off of gluten and I'm off permanently this time. I have been away from gluten for 2 months now and realize that I'm having severe burning in my digestive organs. I have cut out nightshades and the burning is gone :) but now I am extremely fatigued again. Is this normal? Is my body just detoxing all over again?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutefree Rookie

The first time I went off gluten (doing the Maker's Diet), I was physically ill for a couple of months. I could barely get out of bed and did so only for a few hours a week. This is my second time off of gluten and I'm off permanently this time. I have been away from gluten for 2 months now and realize that I'm having severe burning in my digestive organs. I have cut out nightshades and the burning is gone :) but now I am extremely fatigued again. Is this normal? Is my body just detoxing all over again?

You sound like me :) Anyway, I too have severe burning that seems to somewhat be aleviated by nightshades. I would like to ask - did you also eliminate potatoes? I have eliminated all nightshades but potatoes as I thought maybe it was the acid in nightshades and not the nightshades themselves. I am just curious on that.

Back to your question, I can't say if what you are feeling is normal, but I do believe that it is extremely hard for celiacs to get proper nutrients to keep your body going. You may have cut out the nightshades, but you may have been getting nutrients from those foods that you needed. When I first went gluten free, I felt like I was starving all of the time and eventually it went away as I was able to adjust.

camprunner Apprentice

You sound like me :) Anyway, I too have severe burning that seems to somewhat be aleviated by nightshades. I would like to ask - did you also eliminate potatoes? I have eliminated all nightshades but potatoes as I thought maybe it was the acid in nightshades and not the nightshades themselves. I am just curious on that.

Back to your question, I can't say if what you are feeling is normal, but I do believe that it is extremely hard for celiacs to get proper nutrients to keep your body going. You may have cut out the nightshades, but you may have been getting nutrients from those foods that you needed. When I first went gluten free, I felt like I was starving all of the time and eventually it went away as I was able to adjust.

Yes. Potatoes are completely gone too :(. We have been eating a lot of "new" foods lately and I am feeling better after sleeping ALL weekend. I am still on dairy and I have a feeling it will be gone next and I guess I just want to know what to expect.

glutefree Rookie

Yes. Potatoes are completely gone too :(. We have been eating a lot of "new" foods lately and I am feeling better after sleeping ALL weekend. I am still on dairy and I have a feeling it will be gone next and I guess I just want to know what to expect.

Sounds like we are somewhat in the same boat. So far I have cut dairy, gluten, and am going to cut the nightshades (I was all except potato, but now I think I'll do that too.)

I didn't have much of a problem doing the dairy. I thought I would because I loove cheese, but I was feeling bad enough that I don't have much of an appetite for dairy items anyway. I take a calcium supplement to make up for the dairy and the other important thing is to make up for the lost calories from the dairy and potato products. The fatigue should subside once you get a balanced diet going.

Going potato free is a bummer - how do you find gluten free baked goods without potato starch? Have you found a substitute for potatoes in items such as baked items or soups?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.