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Blood Sugar A Mess!


rana

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rana Rookie

Hello, I need help! After a year of intense symptoms (and several years of mild ones) I finally went to the doctor and for once the doctor actually knew what was wrong, that evil evil gluten. But my doctor couldn't help me much beyond the blood test... So I have been trying my best to be gluten free for about six months now and was feeling A LOT better for a while there, but now I seem to have hit a few more roadblocks. First of all I know gluten has probably been sneaking in here and there (I'm getting better as I go of course), so I think I need to do a serious detox diet and let my body completely heal, but I'm having trouble figuring out what to stay away from and what to not stay away from. Also, now I'm having trouble maintaining a normal blood sugar level. I am constantly crashing, spotty vision being my worst symptom, it seems like I have to eat every hour? There's a balance I can't seem to find, I am constantly going crazy, irritable, and that darn spotty vision is the worst. I live at high altitude, 9,600 feet, and wonder if this is amplifying my symptoms as I know we have to eat more carbs etc. to live up here. I can't stand feeling like this anymore.

Does anyone have this problem of maintaining a normal blood sugar level? Is it related to gluten intolerance? My body seems to be going completely haywire again (although not the intense gastro symptoms like before unless I 'got glutened'). I have tried to do my research online but sometimes have trouble really grasping it all (diabetic jargon, GI diets, I can't keep up)... I would sure appreciate any help or insight, I don't know what I would do without this site! If anyone can help me figure out what to stay away from and what I should eat while I'm trying to let my body heal, yet not set myself up to crash all day long, I will kiss their feet.


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skinnyminny Enthusiast

I have a B.S. in nutrition and I am currently applying for internships to complete my journey to become a dietetian to share my experience with Celiac disease with those newly diagnosed.. While you are healing I would try to stay with naturally gluten free foods like fruit, vegtables, brown rice/ quinoa, and fresh meat/eggs/fish. These foods are easier on your GI tract than processed foods. Even though you can get replacement breads, cereals, bakery products, and cookies that are gluten free.. that does not always been it is healthy. In fact, Lots of gluten free replacement items are higher in carbs, fat, and sugar. Sticking to natural foods will help your body heal. Also try to stay away from eating out. Even places with gluten free menus can be a risk!

Reguarding your blood sugar issues. I too struggle with maintaining my blood sugar. I eat every 3-4 hours to prevent a drop. Each time I eat I make sure to have a balance of protein and carb.. like an apple with peanut butter.. a string cheese and grapes..greek yogurt.. are all examples of good snacks. In the morning, try to start incorporate protein. Lately I feel so much better if I have a spinach omlette than if I eat cereal. My blood sugar is stablized for longer. I wouldn't think you need more carbs.. a balance of carbs is good but an overload will bring your blood sugar up and then it will drop quicly, making you hungry again. Let me know if you have any other questions. I am no expert but I have experienced the blood sugar issues like you and each day I try to listen to my body more!

rana Rookie

Thank you so much! I really appreciate the help and insight... It really all comes down to having to really listen to your own body and I think those tips will definitely help me along the way. Sometimes I think being under additional stress kills my appetite and makes it hard for me to eat enough to sustain myself for very long, right now I seem to need to eat every 1.5 hours, which is a bit excessive. Thanks again, I sincerely appreciate it!!

Takala Enthusiast

Thank you so much! I really appreciate the help and insight... It really all comes down to having to really listen to your own body and I think those tips will definitely help me along the way. Sometimes I think being under additional stress kills my appetite and makes it hard for me to eat enough to sustain myself for very long, right now I seem to need to eat every 1.5 hours, which is a bit excessive. Thanks again, I sincerely appreciate it!!

____________

Are you eating "like a girl," in that you are not eating enough protein and good fat, but still on the typical American kick of high carbs ? Try eating more avocado, olive oil, coconut milk, nuts, eggs, organic butter if you can handle it. Fat is a slow burning burning fuel, that when combined with protein and then fiber, such as from beans or vegetables such as squash, will last you much longer.

rana Rookie

Thanks for the tip! I am definitely eating enough protein (I even drink soy protein shakes), but I do think I was on overloading on the carbs and sugar, then crashing later, just being a giant yo-yo mess... More fat I can handle, and will give that go as I see your point. Girly isn't my style ;) and living at such altitude I don't have to really worry about gaining weight, seems like my body works twice as hard at everything up here. THANK YOU AGAIN

RiceGuy Collaborator

Thanks for the tip! I am definitely eating enough protein (I even drink soy protein shakes), but I do think I was on overloading on the carbs and sugar, then crashing later, just being a giant yo-yo mess... More fat I can handle, and will give that go as I see your point. Girly isn't my style ;) and living at such altitude I don't have to really worry about gaining weight, seems like my body works twice as hard at everything up here. THANK YOU AGAIN

In case you aren't already, you would probably benefit from using Stevia in place of sugar. Look for the pure powder without any other ingredients, and keep in mind that a teaspoon or less can replace an entire cup of sugar. So you'll use very very small amounts - sorta like the way you might add salt, spice, or other seasoning to your food. Give yourself some time to get used to it too. The taste isn't exactly the same as sugar, and the intense sweetness can make it tricky to judge how much to use at first, until you've gotten familiar with it.

About the soy protein drinks; Although soy can have some benefits, it can also lower thyroid function depending on the person, and the amount you consume. That can certainly make you feel fatigued, especially if consumed regularly. So if you find you need to supplement protein, it might be better to use a pea protein powder instead. Or, eat more easily digestible protein-rich foods, such as peas, beans, lentils, etc. AFAIK meats are not as easily digested, but we're all different, and you should stick with whatever works best for you.

rana Rookie

In case you aren't already, you would probably benefit from using Stevia in place of sugar. Look for the pure powder without any other ingredients, and keep in mind that a teaspoon or less can replace an entire cup of sugar. So you'll use very very small amounts - sorta like the way you might add salt, spice, or other seasoning to your food. Give yourself some time to get used to it too. The taste isn't exactly the same as sugar, and the intense sweetness can make it tricky to judge how much to use at first, until you've gotten familiar with it.

About the soy protein drinks; Although soy can have some benefits, it can also lower thyroid function depending on the person, and the amount you consume. That can certainly make you feel fatigued, especially if consumed regularly. So if you find you need to supplement protein, it might be better to use a pea protein powder instead. Or, eat more easily digestible protein-rich foods, such as peas, beans, lentils, etc. AFAIK meats are not as easily digested, but we're all different, and you should stick with whatever works best for you.

I've been wondering about the adverse affects of soy after reading a bit about it on this site and elsewhere- I think I will switch. Going to check out Stevia as well, I think sugar is one of my worst enemies right now (noticed my vision problems are actually at their worst immediately after consuming processed foods / sugar). Thanks for the insight, all this is much appreciated. Funny how modern living is literally making us sick.


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NaturalEdge Newbie
I've been wondering about the adverse affects of soy after reading a bit about it on this site and elsewhere- I think I will switch. Going to check out Stevia as well, I think sugar is one of my worst enemies right now (noticed my vision problems are actually at their worst immediately after consuming processed foods / sugar). Thanks for the insight, all this is much appreciated. Funny how modern living is literally making us sick.

We have a lot of people coming to us with gluten and blood sugar level problems. Our Natural Edge Fructose Free Whey Protein has really helped these people get back on track, health wise. The Fructose Free is sweetened solely with Stevia. It's a great sweetener and has only the tiniest affect on blood sugar levels.

I hope that helps!

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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