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Celiac, Ileitis, Or Ibs?


Teed073193

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Teed073193 Newbie

I have been tested for Celiac with blood test and biopsy. I have also had a colonoscopy. I am not sure what the result mean or what to do next can someone help me?

My dad has Crohn's and I have had stomach problems for a long time. Some of my symptoms are abdominal pain, bloating, extreme diarrhea all within mins of eating (not all the time but sometimes, it comes and goes), most always have diarrhea when I drink coffee, orange juice, tea, and grape juice. I also have very low vitamin D. I am very tired all the time do not sleep well (may be because of working swing shifts but never really slept good), I also get very irritable very easily. I have had hives sometimes when I eat, I can have the same thing to eat two days in a row and have hives one day and not the other.

The biopsy did not show any signs of crohn's, colitis, no aphthous ulcers, they also said I did not have celiac. I had inflamed villi in the terminal ileum which Dr said suggestive of ileitis. What is this and what do I do about it?

blood test results

Gliadin Antibody IgG <3

reference range <11 negative

11-17 equivocal

>17 positive

Gliadin Antibody IgA (high) 25

reference range <11 negative

11-17 equivocal

>17 positive

Endomysical Ab (IgA) screen negative

tTG-IgG Ab: <3

reference range <7 negative

7-10 equivocal

>10 positive

tTG IgA Ab: <3

reference range <5 negative

5-8 equivocal

>8 positive

IgA: 293

reference range 81 to 463

Please help me find out what this is?!

Thanks


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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
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    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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