Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Change My Diet Before I See The Doc?


chasing4

Recommended Posts

chasing4 Rookie

One of my daughters has been diagnosed with Celiac a couple years ago, which she is doing great now. :D Well, other than every so often wanting what the other kids in her class are having, but what can I expect from a 7 year old. lol But she is doing great, she's growing and happier and so much healthier. :)

For myself, I started having odd issues a couple days ago. I have bouts of diarrhea, but even though I knew I should get checked I never did. My last bout was 2 days ago and ever since I woke up yesterday I've been having bleeding issues. Not bloody stools, but bleeding whether I have a bowel movement or not. Called my family doc today and they had me come in right away. She didn't see anything externally what could be causing the bleeding. She did a rectal and she said my colon felt very inflamed and the bleeding is probably a result of that somehow.

I see a GI later this week for a consultation for myself and my family doc told me to change my diet right away since my daughter has Celiac. I know it's been a few years since I've researched prediagnosis so I forgot if it was a good idea to change my diet now or wait till after I see the doc. I already had my celiac panel drawn today, if that makes any difference?

Sorry, I know this has probably been asked tons of times already.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Under most circumstances I would say no don't start the diet, However in your case I agree with your doctor. He has drawn the panel and you are seeing the GI in the next week. With a diagnosed child you could very well be celiac yourself. With your symptoms I would go with your doctors advise. Do keep in mind that if the GI wants biopsies if he can't do them right away you may have to go back on gluten for the best chance of a positive. If the diet has helped that is also a valid part of the diagnosis process. I hope you get some answers and feel better soon.

tarnalberry Community Regular

ditto everything ravenwood said. spot on.

chasing4 Rookie

Thank you both so much. :)

I think I will change my diet now, the bleeding really scared me and want to do whatever I can to get that to stop.

Just another question, just so I know what to expect. If I do have to go back on the gluten diet, I will feel even worse for a while as I'm back on it, if I am celiac or have a gluten intolerance?

ravenwoodglass Mentor

Thank you both so much. :)

I think I will change my diet now, the bleeding really scared me and want to do whatever I can to get that to stop.

Just another question, just so I know what to expect. If I do have to go back on the gluten diet, I will feel even worse for a while as I'm back on it, if I am celiac or have a gluten intolerance?

I am crossing my fingers for you that you won't have to do a challenge. And yes if you go gluten free and feel better a challenge will make you sick again. Sometimes even sicker than before the diet. The challenge would only be needed for a biopsy so if you get relief from the diet it is up to you whether you want to challenge or not.

chasing4 Rookie

That's what I was thinking. :(

Thank you very much for your replies. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.