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Gluten Free Begginer


my.oh.my

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my.oh.my Newbie

Hi everyone

i have recently been diagnosed with Celaic Disease... Its such a relief to see that there are so many out there willing to share there ideas, experiences ect.

As of now it seems like all food and stuff out there are a NO NO!

NEED HELP!

where do i buy a good tasting,great textured,gluten-free bread? in which restaurants do they cater to gluten-free soceity?


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rtrheli Newbie

Welcome to this forum.

I will begin by saying that you should probably wait longer until you try that gluten free bread. I have been gluten free for about 6 months and I still can't handle it. You need time for your body to heal before introducing those complex foods to your diet. More gluten free recipes keep coming out, so maybe a good and simple one will come out soon.

As for restaurants, Outback Steakhouse seems to have the best choice of gluten free foods. But again, I would wait a while before trying that also. There is a higher chance of cross contamination at a restaurant than eating at home.

missy'smom Collaborator

Welcome.

It might be helpful to join a local Celiac support group. You can often look them up on the web. Many cities have chapters that have their own websites and have lists of local restaurants and recommendations. The Celiac Sprue Association has many chapters around the U.S. The local groups can also be a great resource for local shopping info. As the previous poster said, it is sometimes better to wait a bit before dining out until you learn what questions to ask and how to advocate for yourself and give instructions. There are some support groups listed on this forum.

LDJofDenver Apprentice

Hello and welcome to club. This forum is such a great tool, you'll find lots of info here, and it's nice to have the support of folks who know what you're talking about and living with.

Probably check out your local WHole Foods, they've got gluten free bakeries. My favorite bread is Udi's gluten-free Whole Grain, and Outside the Breadbox makes some really good breads, too. It's a personal preference thing, finding the right weight and texture etc.

I like to tell the newly diagnosed about these gluten free grocery shopping guides. They make your life WAY easier at the store. They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, etc.)

Gluten-Free Grocery Shopping Guides:

Open Original Shared Link

Open Original Shared Link

There

my.oh.my Newbie

Hello and welcome to club. This forum is such a great tool, you'll find lots of info here, and it's nice to have the support of folks who know what you're talking about and living with.

Probably check out your local WHole Foods, they've got gluten free bakeries. My favorite bread is Udi's gluten-free Whole Grain, and Outside the Breadbox makes some really good breads, too. It's a personal preference thing, finding the right weight and texture etc.

I like to tell the newly diagnosed about these gluten free grocery shopping guides. They make your life WAY easier at the store. They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, etc.)

Gluten-Free Grocery Shopping Guides:

Open Original Shared Link

Open Original Shared Link

There

rtrheli Newbie

I am not sure how long to wait. I would say a good 2 months of gluten free and you should feel pretty good. And be careful with anything processed. I self diagnosed myself about a year ago and have learned things the hard way. I would cheat now and then, but believe me I paid for it. For the last 6 months, I have done quite well staying gluten free. I have found out that I have some reactions to too much soy, and tomato sauces. Though, I have found that quantity is really big. I can handle a little of these things, but too much and I feel it the next day. That only lasts a day or two compared to 2 or 3 weeks from gluten contamination. You really have to be careful when eating at relatives too. They try, but they are just not careful enough. For Easter, I volunteered to do the ham so I am sure I can eat that without worry. I have recently been trying activated charcoal caplets I got at the whole foods store. They really work wonders for bloating and pressure in your gut.

Sorry this is so long, but there is so much that I am learning too. And thank everyone for there posts. There is so much good information on this forum. I thought I was over reacting until I found this forum and read how horrible others have felt too. The weirdest part is this whole thing hit me a couple years ago. I am 42 now and could eat anything up until then. I am just thankful I found this site.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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