Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Gut Reactions To Not Being Upright After Eating?


playin-d-fiddle

Recommended Posts

playin-d-fiddle Newbie

Looking for anyone with any experience with this problem, as the doctors look at me curiously and respond with a "hmm, I've never heard of that before".

Let us start by saying I am Celiac - gluten free since diagnosis over 3 years now. A never-cheater, living in an entirely gluten free kitchen and home, very careful about food intake and happy to be healthy. On to the weird stuff...

Let's say that you've just finished eating a meal, a big one or a small one, a definitely gluten free one - doesn't matter what the food happened to be aside from it not containing gluten (I've ruled out food triggers of any kind concerning this issue and the time of day is no matter as well). Let's say you finished your meal and were comfortable - so you leaned back in your chair while everyone chatted over their plates. Perhaps your behind was 4 or 5 inches from the back of your seat so you could be said to be "reclining". Five or ten minutes later you get up and go about your business, in an upright position, and your stomach slowly begins to swell. We're talking 7 or 8 months pregnant swelling. Just absolutely full of air, or something, or an alien, who knows. To the point that it is only comfortable to bend at the waist to relieve the pain and pressure, or be laying down curled around a pillow for a couple hours. The eventual 2-3-hr-later result involves a lot of air... escaping... the body.....

This happens when I lay, when I lean (seriously!), when I bend over for more than a minute or two; any time I do not stay completely upright for at least two hours after eating. IF I do lay down after eating I can avoid this giant bloated belly by staying in that horizontal position for 3 hours or so. As you can imagine, this interferes with normal life, with work, with my relationship. This has been going on for at least 10 years.

Does ANYONE have any experience with this? Doctors don't seem concerned. I'd like to plumb the depths of your experience before I demand my doctors refer me to all sorts more tummy-insides-guts specialists. Thanks in advance.

Bloated,

Tianna

Seattle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



masterjen Explorer

I had bloating that became severe (along with other symptoms) around Christmas (2009), and was diagnosed with celiac about 6 weeks later. When I started going gluten-free, the bloating gradually subsided, and now, if I do get any, it tends to be minor. Like you, the bloating would start shortly after eating, and after a few hours the gas would finally start to, er, release . . .The whole thing was extremely uncomfortable, painful, and embarrassing when the release finally started (and I had to excuse myself from the family for awhile and be in private). Strategies that helped me (and that I still use, even though I am gluten-free): eat small portions of your meals 6-8 times per day rather than 3-4 larger meals, and avoid lounging right after eating. For this latter strategy to keep me moving for a little while - and it doesn't have to be a major walk outside - I make a point of cleaning up right after a meal, or I'll save a small chore (such as tidying a room or putting on the laundry) for after I eat. Makes a big difference for me - maybe it'll work for you too. It doesn't medically solve the problem so it doesn't happen at all, but a bit of relief from the symptoms are worth it! (not to mention that a couple of chores get done that I might have otherwise put off - LOL!!

  • 9 months later...
moggio Rookie

Looking for anyone with any experience with this problem, as the doctors look at me curiously and respond with a "hmm, I've never heard of that before".

Let us start by saying I am Celiac - gluten free since diagnosis over 3 years now. A never-cheater, living in an entirely gluten free kitchen and home, very careful about food intake and happy to be healthy. On to the weird stuff...

Let's say that you've just finished eating a meal, a big one or a small one, a definitely gluten free one - doesn't matter what the food happened to be aside from it not containing gluten (I've ruled out food triggers of any kind concerning this issue and the time of day is no matter as well). Let's say you finished your meal and were comfortable - so you leaned back in your chair while everyone chatted over their plates. Perhaps your behind was 4 or 5 inches from the back of your seat so you could be said to be "reclining". Five or ten minutes later you get up and go about your business, in an upright position, and your stomach slowly begins to swell. We're talking 7 or 8 months pregnant swelling. Just absolutely full of air, or something, or an alien, who knows. To the point that it is only comfortable to bend at the waist to relieve the pain and pressure, or be laying down curled around a pillow for a couple hours. The eventual 2-3-hr-later result involves a lot of air... escaping... the body.....

This happens when I lay, when I lean (seriously!), when I bend over for more than a minute or two; any time I do not stay completely upright for at least two hours after eating. IF I do lay down after eating I can avoid this giant bloated belly by staying in that horizontal position for 3 hours or so. As you can imagine, this interferes with normal life, with work, with my relationship. This has been going on for at least 10 years.

Does ANYONE have any experience with this? Doctors don't seem concerned. I'd like to plumb the depths of your experience before I demand my doctors refer me to all sorts more tummy-insides-guts specialists. Thanks in advance.

Bloated,

Tianna

Seattle

I've got the same problem as you but I've only been gluten free for a little over a month so far so it might go away....or not.

If I'm sitting normal after I've eaten I get very bloated and even some brain fog. If I'm being upright,leaning or lying down I can avoid it.

I've figured that if I stretch my back,legs,hips and so on after I've eaten I'm able to get the air out faster. It's like a huge cloud that has to get out. It's weird!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748

    Sutto
    Newest Member
    Sutto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.