Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recomendations On Eating Out


jyoung

Recommended Posts

jyoung Newbie

I was diagnosed with celiac less than a year ago. I am unable also to tolerate many vegetables, citrus fruits, preservatives and any milk or cheese. Unfortunately I travel extensively for work, not just in the country but also out of it. I have been packing the majority of my food to take with me but this gets to be a huge burden and very expensive to pack and take two weeks of food with you on an airplane. On my last trip I went to several restaurants that advertised they had a gluten free menu. I had very mixed results and I am still sick from eating at one of them. I have tried talking to the managers and explaining to them the issue and have still gotten my food delivered incorrectly 2/3 of the time. Does anyone have suggestions as to what I can do while eating out? I have a month long trip coming up and I know I can't take that much food with me nor do I want to eat canned foods that entire time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sunny34 Newbie

Where will you be going for a month? Someone on the board who lives or has traveled to the area may be able to give you a lot of advice on specific restaurants and grocery stores that are celiac and allergy friendly. You can do a lot of investagion on the internet before going also. I have not traveled by airplane much, but I have done well enough eating at restaurants while traveling. Last year we traveled to Charlevoix Michigan. Prior to the trip I spent time online investigating the area restaurants and reading their menus. All the restaurants I encountered on my trip were wonderful and accomodated me... not once was I glutened. When in doubt I would order steak and plain potato and salad. Burgers without buns and chips or fries... fruit salads, salads with grilled chicken or ham, ribs, pulled pork without the bun,grilled fish,etc. I eat breakfasts at Chick-fil-et when I can find one... their sausage patty plain, hash browns, and fruit salad... their waffle fries are good as are their grilled chicken salads. At Penn Station I have the fries and club salad.. just order without the cheese. Chipotles is great also with their burrito bowls. Sandwich shops many times have great salads with lunchmeat and sliced eggs... get a bag of chips with it and you have a meal. I love PF Changs as they are very celiac and allergy friendly with an extensive gluten free menu. Cany you stay at a hotel with a mini kitchen? We always do when possible. A quick trip to the grocery upon arrival and I have my chex cereal and soymilk, eggs to hard boil, fruit, canned tuna, lunchmeat, chips, nuts, snacks, etc. The only food I brought with me were a supply of gluten free cookies and some brown rice wraps I could use for making sandwich wraps. Now that I found Udis bread I will bring it with me also.

Juliebove Rising Star

The additonal food restrictions would make it very difficult to dine out! I'm not even sure it would be doable. What you might have to do is type up a card to carry with you that lists the foods you can eat. Then go from there.

I have made several cross country moves and at one point was living in a motel for about a month. I did not know of my food allergies at the time, but was a vegetarian. I may have had a microwave in the room at the time. I can't remember. I know there was a refrigerator. This was about 15 years ago and at that point in time, there weren't a lot of prepared fruits and vegetables for sale like there are now. So I bought a small paring knife to use. I have since learned that a simple plastic knife such as you get in a pack of plastic cutlery will actually cut up most things, although sometimes not so prettily.

I pretty much lived off of prepared hummus, assorted raw vegetables, some fruit (was never a fruit lover) and canned beans. These days you can get plain brown or white rice that is precooked in packages. It can be heated in the microwave. If you have no microwave, you can eat it straight from the package, but it's not as good as when it is heated.

If I were you, I would try to get a room with at least a microwave and fridge, if not a kitchenette. And then try to find a grocery store. That way there is no need to pack so much food with you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.