Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glucose Breath Test


Bobbijo6681

Recommended Posts

Bobbijo6681 Apprentice

I just got back from another trip to the dr's office because of continued problems. I have severe pain in my right side that is getting worse after going gluten free instead of better. Aside from a few GI issues that I had prior to going gluten-free, I have no other noticeable signs of Celiac. After doing a quick internet search on the Breath Test...(my curiosity always gets the best of me) it states on WIKI that a person that has bacterial overgrowth may have symptoms of Celiac as well. It can even cause the blunted Villi.

I did test positive during biopsy after a barely positive blood test.

I am going to maintain the gluten-free diet as I want to feel better, but I am starting to wonder IF I do in fact have Celiac. I have had everyone in my family checked for Celiac and I appear to be the only one that has it according to all of the testing. I know that testing can be wrong (many people here are diagnosed or self diagnosed by diet change) but it just leaves further doubts in my head.

I would LOVE to be able to go back to eating all of the yummy things I could before, but mostly I crave the ease of eating again. I have found pretty good substitues for most of the stuff that I love, but would like to be able to walk into a restaurant and order ANYTHING I wanted and not have to worry about it. But most of all I want to stop being in PAIN!!!! I have followed the gluten-free diet since January and although I know it takes time to feel better, I want to feel less pain instead of more.

Has anyone else dealt with something similar to this before?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



macocha Contributor

do you mean hydrogen breath test - fructose?

and if you meant that one, that is the test that is done to test for infection in the gut/lower intestine due to fermentation of fructose not being able to transfer out into the blood stream (or something like that). it is also the test for fructose intolerance.

it is a 4 hour breath test.

Bobbijo6681 Apprentice

do you mean hydrogen breath test - fructose?

and if you meant that one, that is the test that is done to test for infection in the gut/lower intestine due to fermentation of fructose not being able to transfer out into the blood stream (or something like that). it is also the test for fructose intolerance.

it is a 4 hour breath test.

No it is not testing for Fructose, that was something they could have added to what I am doing, but I elected to no do it. I don't have a problem processing fruit so I elected to not do that at this time. My test is only for 2 hours and is checking for Bacterial Overgrowth in the small intestine.

macocha Contributor

hmmm...okay. my daughter has fructose intolerance and it mimics celiac in a lot of ways. and that is what caused her gut infection. not being able to process the fruit. she can eat some fruits - just not all of them.

macocha Contributor

editing to say that fruit is just a small portion of what she has to avoid, but she can still eat some fruit - just not a lot of it. she also has to avoid other foods. just clarifying.

tired today. blah.

Bobbijo6681 Apprentice

I surely hope that I don't have that problem....but so far it doesn't appear to be so. I just have unresolved Celiac symptoms that are just not going away despite the strict gluten-free diet that I adhere to. The most troublesome part is the severe pain in my right side. At first it would come and go, but now it is constant and NOTHING helps. They gave me pain medication to try and help, but that doesn't work. I don't think it is something that they can treat with pain meds, if those obviously aren't working, but IDK!! I am getting soooo frustrated and although I don't feel depressed at all, I do get very discouraged everytime they do another test and it shows nothing. I don't want to be sick, but I know that there is somehting going on and I want to know what!!

Thanks for listening to me vent!!

Good Luck with your daughter, and hopefully she will adjust to this way of eating pretty easily!

gary'sgirl Explorer

I surely hope that I don't have that problem....but so far it doesn't appear to be so. I just have unresolved Celiac symptoms that are just not going away despite the strict gluten-free diet that I adhere to. The most troublesome part is the severe pain in my right side. At first it would come and go, but now it is constant and NOTHING helps. They gave me pain medication to try and help, but that doesn't work. I don't think it is something that they can treat with pain meds, if those obviously aren't working, but IDK!! I am getting soooo frustrated and although I don't feel depressed at all, I do get very discouraged everytime they do another test and it shows nothing. I don't want to be sick, but I know that there is somehting going on and I want to know what!!

Thanks for listening to me vent!!

Good Luck with your daughter, and hopefully she will adjust to this way of eating pretty easily!

Have you possibly tried taking food enzymes when you eat?

I have read on this forum that many poeple need to take them for a while because celiac can make it hard for your body to digest any food - even the easily digestable ones.

I just started to take them a few weeks ago and it is the first thing that has helped me since going gluten free (that I've noticed anyway).

I don't know if it would help you, but you could try it and it wouldn't hurt anything.

I hope you figure something out soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
O.N. Rookie

I am going to have the same hydrogen breath test (on lactose) and was interested to know more about the test. I have found very valuable information on medicinenet.com.

According to this website, the bacterial overgrowth is treated with antibiotics, and that it may be useful to repeat the breath test to determine if the antibiotics have eliminated the bacteria.

Have you been prescribed any antibiotics? If so, did you get any improvement in your symptoms after taking them?

Bobbijo6681 Apprentice

Unfortunately mine came back negative for the over growth so I am still seeking out what is causing my problems. Sorry I couldn't be of more help!

Bobbijo6681 Apprentice

PS..The test was very tough for me to do....with the diet that you have to follow the day before and not eating anything for almost 16 hours was very tough. I did it because I want to feel better, but it was hard. Hopefully you will have an easier time with it!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,136
    • Most Online (within 30 mins)
      7,748

    ZiseChocolate
    Newest Member
    ZiseChocolate
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jenny (AZ via TX)
    • Bev in Milw
      Reading labels at dailymed.com is simpler if you’re familiar w/ gluten-free list of inert ingredients (aka ‘excipients’  allowed by FDA.      www.gluten-free.com has that list & I’ve included It’s below…. Tricky ones for me are the “4 D’s“ because names are similar. These 2 are gluten-free by ‘legal’ definition— •Dextrans - Partially hydrolyzed corn or potato starch. •Dextrose - Powdered corn starch. Other 2 need to be questioned. (Maybe ok for isolated 7-10 day Rx,   antibiotic?,  but gluten-free status needs to be verified for long term / daily use for chronic condition, like thyroid or BP meds.)   These are : •Dextrates - Mix of sugars resulting from the controlled enzymatic hydrolysis of starch. •Dextrins - Result from the hydrolysis of starch by heat or hydrochloric acid (from corn).  It can also be obtained from wheat, rice or tapioca.  (Maltodextrin on US labels MUST be corn so gluten-free.) Technically, ‘Starch’ on USDA ‘food’ labels in US must be from corn, & if not, the source must be identified.   In drugs,‘ Pregelatinized starch’ & ‘Sodium starch glycolate’ can also be from potato, rice, OR wheat.  Wheat is more likely to be found in products made outside of US (Europe) where corn is not the major(readily available & least costly) crop.     Hope this helps even though  learning sources of some gluten-free ones may make them less appealing. (And while the “Read every label, every time” for gluten is a pain, I’ve learned there are worse things than celiac dx—Allergy to corn would be at top on my list!)          Bev in Milwaukee From www.gluten-free.com EXCIPIENT INGREDIENTS IN MEDICATIONS  Aspartame - An artificial sweetening agent derived from aspartic acid. Aspartic Acid - A crystalline amino acid found naturally in sugar beets and sugar cane.  Benzyl alcohol - Made synthetically from benzyl chloride which is derived from toluene (a tar oil). Cellulose - (ethylcellulose, methylcellulose, hydroxymethylcellulose, hydroxypropyl, microcrystalline) – Obtained from fibrous plant material (woody pulp or chemical cotton). Cetyl alcohol - Derived from a fat source (spermaceti, which is a waxy substance from the head of the sperm whale). Croscarmellose sodium - An internally cross-linked sodium carboxymethylcellulose for use as a disintegrant in pharmaceutical formulations.  Comes from wood pulp or cotton fibers to form carboxymethylcellulose.  It contains no sugar or starch. Dextrans - Partially hydrolyzed corn or potato starch. Dextrates - Mix of sugars resulting from the controlled enzymatic hydrolysis of starch. Dextrins - Result from the hydrolysis of starch by heat or hydrochloric acid (from corn).  It can also be obtained from wheat, rice or tapioca. Dextrose - Powdered corn starch. Fructose - Obtained naturally from fruits or honey; hydrolyzed cane or beet sugar. Gelatin - Obtained from the skin, white connective and bones of animals (by boiling skin, tendons, ligaments, bones, etc with water). Glycerin - Historically, glycerin (also known as glycerol), was made the following ways: -  Saponification (a type of chemical process) of fats and oils in the manufacturing of soaps -  Hydrolysis of fats and oils through pressure and superheated steam -  Fermentation of beet sugar molasses in the presence of large amounts of sodium sulfite   Today its is made mostly from propylene (a petroleum product) Glycerols - Obtained from fats and oils as byproducts in the manufacture of soaps and fatty acids (may also be listed as mono-glycerides or di-glycerides). Glycols - Products of ethylene oxide gas. Hypromellose – A brand of hydroxypropyl methylcellulose (see cellulose). Iron oxide (rust) - Used as a coloring agent. Kaolin - A clay-like substance. Lactilol - Lactose derivative; a sugar alcohol. Lactose - Also known as milk sugar, is used in the pharmaceutical industry as a filler or binder for the manufacture of coated pills and tablets.   Commercially produced from cow's milk. Maltodextrins - A starch hydrolysate that is obtained from corn in the United States but can also be extracted from wheat, potato or rice. Mannitol - Derived from monosaccharides (glucose or mannose). Methyl Paraben – Comes from the combination of denatured wood alcohol and benzoic acid (benzoic acid occurs naturally in cherry bark, raspberries, tea, anise and cassia bark).  Polysorbates - Chemically altered sorbitol (a sugar alcohol). Polyvinyl alcohol – A water soluble synthetic alcohol (synthesized by hydrolysis of polyvinyl acetate). Povidone (crospovidone, copovidone) - synthetic polymers  Pregelatinized starch - A starch that has been chemically or mechanically processed.  The starch can come from corn, wheat, potato or tapioca. Shellac - A natural wax product used in tablet or capsule coating. Sodium lauryl sulfate – A derivative of the fatty acids of coconut oil. Sodium starch glycolate - Sodium salt of carboxymethyl ether of starch. Usually from potato but can be from corn, wheat or rice. Stearates (calcium, magnesium) - Derived from stearic acid (a fat; occurs as a glyceride in tallow and other animal fats and oils, as well as some vegetables; prepared synthetically by hydrogenation of cottonseed and other vegetable oils). Sucrose - Sugar also known as refined sugar, beet sugar or cane sugar. Titanium dioxide - Chemical not derived from any starch source used as a white pigment.  Triacetin – A derivative of glycerin (acetylation of glycerol). Silcon dioxide – A dispersing agent made from silicon.  
    • NoriTori
      @Scott Adams  Sure, Any and all information is welcome. Also the only was to convince my family to get tested is to get tested myself and conclusive answers. Very stubborn lot.  
    • trents
      Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly.
    • Heatherisle
      I have heard of NCGS, but everything is just so confusing!!! Just unsure of things as her EMA test was negative but TTG was positive @19u/ml(lab range 0.0-7.0).Apparently she also has occasional bubble like blisters in between her fingers, don’t know if that’s significant. She is triallling gluten free as suggested by the gastroenterologist after her endoscopy. Keep getting different answers when typing in her symptoms etc. Some sites say it can be possible to have coeliac, even with a negative EMA . It’s so frustrating and her anxiety levels are through the roof. I know she’s hoping it’s coeliac which is weird I know!!! But if it’s not it just means more tests. Sorry to ramble on!!!
×
×
  • Create New...