Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glucose Breath Test


Bobbijo6681

Recommended Posts

Bobbijo6681 Apprentice

I just got back from another trip to the dr's office because of continued problems. I have severe pain in my right side that is getting worse after going gluten free instead of better. Aside from a few GI issues that I had prior to going gluten-free, I have no other noticeable signs of Celiac. After doing a quick internet search on the Breath Test...(my curiosity always gets the best of me) it states on WIKI that a person that has bacterial overgrowth may have symptoms of Celiac as well. It can even cause the blunted Villi.

I did test positive during biopsy after a barely positive blood test.

I am going to maintain the gluten-free diet as I want to feel better, but I am starting to wonder IF I do in fact have Celiac. I have had everyone in my family checked for Celiac and I appear to be the only one that has it according to all of the testing. I know that testing can be wrong (many people here are diagnosed or self diagnosed by diet change) but it just leaves further doubts in my head.

I would LOVE to be able to go back to eating all of the yummy things I could before, but mostly I crave the ease of eating again. I have found pretty good substitues for most of the stuff that I love, but would like to be able to walk into a restaurant and order ANYTHING I wanted and not have to worry about it. But most of all I want to stop being in PAIN!!!! I have followed the gluten-free diet since January and although I know it takes time to feel better, I want to feel less pain instead of more.

Has anyone else dealt with something similar to this before?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



macocha Contributor

do you mean hydrogen breath test - fructose?

and if you meant that one, that is the test that is done to test for infection in the gut/lower intestine due to fermentation of fructose not being able to transfer out into the blood stream (or something like that). it is also the test for fructose intolerance.

it is a 4 hour breath test.

Bobbijo6681 Apprentice

do you mean hydrogen breath test - fructose?

and if you meant that one, that is the test that is done to test for infection in the gut/lower intestine due to fermentation of fructose not being able to transfer out into the blood stream (or something like that). it is also the test for fructose intolerance.

it is a 4 hour breath test.

No it is not testing for Fructose, that was something they could have added to what I am doing, but I elected to no do it. I don't have a problem processing fruit so I elected to not do that at this time. My test is only for 2 hours and is checking for Bacterial Overgrowth in the small intestine.

macocha Contributor

hmmm...okay. my daughter has fructose intolerance and it mimics celiac in a lot of ways. and that is what caused her gut infection. not being able to process the fruit. she can eat some fruits - just not all of them.

macocha Contributor

editing to say that fruit is just a small portion of what she has to avoid, but she can still eat some fruit - just not a lot of it. she also has to avoid other foods. just clarifying.

tired today. blah.

Bobbijo6681 Apprentice

I surely hope that I don't have that problem....but so far it doesn't appear to be so. I just have unresolved Celiac symptoms that are just not going away despite the strict gluten-free diet that I adhere to. The most troublesome part is the severe pain in my right side. At first it would come and go, but now it is constant and NOTHING helps. They gave me pain medication to try and help, but that doesn't work. I don't think it is something that they can treat with pain meds, if those obviously aren't working, but IDK!! I am getting soooo frustrated and although I don't feel depressed at all, I do get very discouraged everytime they do another test and it shows nothing. I don't want to be sick, but I know that there is somehting going on and I want to know what!!

Thanks for listening to me vent!!

Good Luck with your daughter, and hopefully she will adjust to this way of eating pretty easily!

gary'sgirl Explorer

I surely hope that I don't have that problem....but so far it doesn't appear to be so. I just have unresolved Celiac symptoms that are just not going away despite the strict gluten-free diet that I adhere to. The most troublesome part is the severe pain in my right side. At first it would come and go, but now it is constant and NOTHING helps. They gave me pain medication to try and help, but that doesn't work. I don't think it is something that they can treat with pain meds, if those obviously aren't working, but IDK!! I am getting soooo frustrated and although I don't feel depressed at all, I do get very discouraged everytime they do another test and it shows nothing. I don't want to be sick, but I know that there is somehting going on and I want to know what!!

Thanks for listening to me vent!!

Good Luck with your daughter, and hopefully she will adjust to this way of eating pretty easily!

Have you possibly tried taking food enzymes when you eat?

I have read on this forum that many poeple need to take them for a while because celiac can make it hard for your body to digest any food - even the easily digestable ones.

I just started to take them a few weeks ago and it is the first thing that has helped me since going gluten free (that I've noticed anyway).

I don't know if it would help you, but you could try it and it wouldn't hurt anything.

I hope you figure something out soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
O.N. Rookie

I am going to have the same hydrogen breath test (on lactose) and was interested to know more about the test. I have found very valuable information on medicinenet.com.

According to this website, the bacterial overgrowth is treated with antibiotics, and that it may be useful to repeat the breath test to determine if the antibiotics have eliminated the bacteria.

Have you been prescribed any antibiotics? If so, did you get any improvement in your symptoms after taking them?

Bobbijo6681 Apprentice

Unfortunately mine came back negative for the over growth so I am still seeking out what is causing my problems. Sorry I couldn't be of more help!

Bobbijo6681 Apprentice

PS..The test was very tough for me to do....with the diet that you have to follow the day before and not eating anything for almost 16 hours was very tough. I did it because I want to feel better, but it was hard. Hopefully you will have an easier time with it!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.