Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good News!


mbland

Recommended Posts

mbland Rookie

Hi all. I am a first-time poster here. I have had stomach problems for about 10 years or more. As a child I had Pyloric Stenosis, and I now have Acid Reflux and Gastritis. I went to many doctors and everyone diagnosed me with "IBS." Finally, I changed Gastro's and he ran a Celiac test. They said I have positive bloodwork and that they can do a test to see. But, I decided I would try the gluten-free diet because I have already had a colonoscopy and endoscopy, and didn't want to have it again if it wasn't needed. Well, the first day I did the gluten-free diet I felt better. I would have a stomach ache after every meal and snack, and I had none. It was like a miracle! Of course, bread and pasta and cereal are my favorite foods, so it made me a little sad, but I would do anything to get rid of these stomach aches.

So, I decided not to do the test. My family and I just returned from Italy and found that they have so many gluten-free items to choose from! Even in some of the restaurants they serve rice pasta. In all the grocery stores they have shelves of gluten-free food. It was really exciting for me. Everything was great the whole trip (stomach-ache wise) except for one night at a restaurant. They didn't understand that I could have NO flour and they made a delicious cream sauce... that wasn't so delicious later. Heh.

Anyway, I just wanted to let some people know. I found some really good crackers and cookies by the brand Galbusera in Italy. But, I haven't been able to find a place to order them online. If anyone ran across them in their travels, please let me know!

It is great to know that you aren't alone, that is why I am excited about this board. Also, if anyone has any suggestions for a newbie Celiac, please let me know! Thanks!

Mari


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BellyTimber

:D

Glad you had a (mostly) good time in Italy. There is a Europe section in the forum, we could do with more posts there for reference of other readers.

Here in the UK it is patchy like the US in regard to both shops and restaurants. I've hardly dared eat out for years, and when travelling (day trips only) carry bags and bags of food.

Every now and again I want to revert to "stodge" but mostly I find my meat and veg stews both are easier to make and agree with me more.

Hoping you find your favourite crackers though, we mostly treasure "that special gluten-free item"!

Explore the whole forum, some of your questions will have been answered before.

Carriefaith Enthusiast

Thanks for the info! If I ever do the Europe tour, I'll keep Italy in mind :)

celiac3270 Collaborator

Oh yeah! Never been, but heard that Europe is FABULOUS for celiacs. In Italy they often say on the menu whether something is gluten-free or not....same in Australia. And you know what kills me? If you live in Italy and you're diagnosed as celiac by a doctor there, you're given a card and with it, get free gluten-free food. (just what i heard)

astyanax Rookie

i've found ireland and the UK are amazing as well! the best gluten-free bread i've ever had is in the UK (dietary specials breakfast rolls) the only gluten-free bread i've ever had that doesn't have to be toasted/warmed up to taste good. i believe ireland has the most celiacs per capita so a lot of people have heard of it there.

and for the drinkers out there, almost every pub i went to in ireland and the UK had cider on tap - strongbow or magners (called bulmers in ireland)!

Carriefaith Enthusiast
In Italy they often say on the menu whether something is gluten-free or not....same in Australia

That sounds so great! :D If only more places were like that here...

HealthyDawn Newbie

I was just in Italy for two weeks and did not see a single menu with gluten-free labeling, was not offered rice pasta at restaurants, and did not find any cookies or crackers that were gluten-free, as mentioned previously in this line of posts. Perhaps this is true in other cities, but I was in Rome, Florence and Venice.

However, it was a fantastic trip and I stayed perfectly healthy, but if I were someone who had to also avoid dairy I would have had a much harder time. My diet was mostly:

Breakfast: protein bars I brought with and yogurt bought from the store there

Lunch/Dinner: some combination of roast beef, potatoes, green salad, risotto, caprisi salad with tomatoes and mozzarella, cheese, fruit salad (I tried to order chicken and steak a couple times but it was coated in flour and they didn't seem willing to make it without)

Snack: gelato--in a cup

In all, I ate a ton of cheese and sometimes counted a latte, apple and a protein bar for lunch on the go, on days when my husband was content with a ham-and-cheese sandwich from a deli. Having a mini refrigerator in each hotel was definitely a plus.

The MOST helpful thing was writing out on a card, in Italian, that I was allergic to wheat, barley, rye, etc. Having this to read in their own language, the restaurant servers always took it seriously.

Best travels,

Dawn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seamaiden399 Newbie

I have to second this- I went on practically the same trip- Florence, Venice, Rome and it was a bit challenging. I did have some very fishy risotto in Venice... their pub snacks worked out fairly well also. But, I also do not speak Italian. I have heard rave reviews from people who spoke Italian and/or lived there... It's just hard knowing where to go when you're visiting a place.

That being said- it was WAY easier eating in Italy than in France! Mashed potatoes and deli food was my salvation in France, but it was a real challenge.

Even though it was challenging- I had a great time and didn't get glutened the entire trip, so it was a success and I wouldn't hesitate to go again.

stef-the-kicking-cuty Enthusiast

Not everywhere in Europe. Germany sucks with glutenfree food...lol. But in Sweden you can even get glutenfree Burgers at McDonalds.

celiac3270 Collaborator

lol...yes! I've read about getting a gluten-free bun in McDonalds in some European countries

Guest gliX

hmm, one of us should call Mcds and tell them to start making those gluten-free buns in the US :o

Carriefaith Enthusiast

Mari,

Where exactly in Italy did you go? I am interested in going there and would love to know where some of those restaurants and stores are!

  • 2 weeks later...
scotia Newbie

Hey guys, anyone going to the UK should do what I did beforehand.

I contacted Sainsbury's (huge foodstore) and they mailed me out a book(yes, a book!!!) of their gluten-free products, it was amazing...cookies, cakes, sauces, and my most favourite...ready to heat in the microwave curries...bbef, chicken, what a God'send that was when i was trying to grab something to eat and then go out for the evening...I thought I'd died and gone to gluten-free Hevaen.

The book they sent even had all the bar codes for the products just so I was sure to get the right stuff once I got there.

I'd recommend Siansbury's store as one to check out and the staff were very helpful too!!!

Bon Voyage and Bon Appetit!!!

:D

Scotia

** Boy does my splng go for a Burton when I'm exciteldly tring to pass on some good info eh...???**

hehe

stef-the-kicking-cuty Enthusiast
** Boy does my splng go for a Burton when I'm exciteldly tring to pass on some good info eh...???**

Haha...

Do you know, if Sainsbury's have a website?

scotia Newbie

Stef: Your wish is my command...check this out:

Open Original Shared Link

I did a search for Sainsbury uk and then went through their pages.

I eventually found this link and it's 69 pages about gluten-free foodstuffs and information.

I bet if you contacted them they'd be really cool and send you any info you wanted.

Good Luck and Happy eating if you get over there sometime.

I'm originally from Glasgow, and was amazed at what, and how much, I could eat there.

By the way,to anyone who thinks life is a big hassle when you have celiac disease...

I have asthma, a VSD (hole in the heart) and about 8-9 years ago I had a TIA ( a mini stroke) I still kayak, play and coach soccer, and bike ride, so don't let anyone tell you to stop doing what you like doing, as you're sick...if you feel you can handle it...go for it.

We're her to make the best with what we've got...in my humble opinion.

I always try to look on the bright side of life, not always successful mind you, but it is what it is...so chin up guys.

Ciao'

Scotia

scotia Newbie

MAN!!! I just read through the list...for old times sake.

Boy am I craving some of their stuff now!!!

By the way hit the allergies on the drop down menu on the link and it says Gluten Free and go from there.

Enjoy.

Scotia.

Carriefaith Enthusiast

Thanks Scotia for the info!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,911
    • Most Online (within 30 mins)
      7,748

    Cici123
    Newest Member
    Cici123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.