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Neurologist In Nc Who Specializes In Celiac Disease

Swimmr

By Swimmr
in Doctors

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Swimmr Contributor
Swimmr
Posted

I just want to put out there that my neurologist, Dr. Richard Serano in Fayetteville, NC is a specialist with Celiac. If your insurance requires a referral, make sure Celiac is listed as the reason.

Tricare WILL approve it with persistence...for all you military folk :) It get's covered under the reimbursement deal. You pay out of pocket up front and receive partial back. I paid $225 for my first visit and within 4 days I had a check in the mail for $206 and some change. That is WELL worth it to me.

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Kathy59 Rookie
Kathy59
Posted

Got so excited to see your post...I go to the same office..I see Mr. Kenney, PA

They have been a life saver for me! My chiro gave me the referral, I had seen a host of drs and tests. My chiro kept telling me he felt all my pain was being caused from some type of auto immune disease; a pain specialist suggested I see a neurologist. Dr. Schultz (chiro) suggested Serano. He took his Dad to him when he had a stroke. He told me that Dr. Serano used to just practice the regular neurologist ways...got tired of just prescribing drugs for relief of symptoms, began to investigate how nutrition was related to illnesses, and so on and so on..and how accupuncture could help with relief of pain in place of or in addition to drugs...

First time I went, blood tests ordered for everything..originally my celiac panel was negative; however, Epstein Barr Virus very high, Mono very high..they called me in immediately due to just that..even though I am older, I had mono....additionally tests revealed High levels of Herpes Virus, Varcella Foster virus..pretty much anything I had been exposed to throughout my life..active in my body.

When I went back for follow up in Jan, I was feeling better, but could not get rid of the chronic diahrea (sp)..that is when Mr. Kenney ordered the genetic testing for Celiac...Sure enough...Celiac!

I have been living gluten-free since Feb 1...at first I thought it isn't working...was I ever wrong...currently I only have the big D in the a.m...which is soo much better than every hour 24/7....I actually sleep all night and what I always thought was hot flashes from menopause are gone! I do take a lot of supplements along with meds...if I could get rid of the nerve pain and spasms in my feet, I would be almost 100%. Still get very tired..but he said it would be a good year before I felt normal again...Dx with Chronic Fatigue also, due to all the active viruses...they are going down; slow but sure....I go back in July..more blood work to check all levels including vitamins and minerals......

I live in Elizabethtown, so gluten-free products are not easily found; although I have talked to the Food Lion about getting some, haven't seen any as of yet...sorry this is so long, but excited to talk to someone who shares same dr and not far from me...I did see Serano my last visit and he explained to me that my body had been so busy attacking the gluten that the other viruses were able to become active and attacked my nerve endings causing damage and nerve pain!!! Great docs!!

wjp Newbie
wjp
Posted

Another happy patient who also sees Dr. Serano. Started seeing him because of the horrible headaces that I was getting everyday, extreme fatigue, bloating, mix constipation/diarrea and many other symptoms. It took about 6 months but in January 2010 genetic testing came back with celiac. Have been gluten free since and am feeling alot better. No headaches, no bloating (except when I accidently get glutened) and am just feeling better. I wish his office would start a club, would love to meet and talk with other celiacs. I have an appointment in 2 weeks and am going to ask him about it. What do you guys think?

  • 2 weeks later...
Kathy59 Rookie
Kathy59
Posted

Another happy patient who also sees Dr. Serano. Started seeing him because of the horrible headaces that I was getting everyday, extreme fatigue, bloating, mix constipation/diarrea and many other symptoms. It took about 6 months but in January 2010 genetic testing came back with celiac. Have been gluten free since and am feeling alot better. No headaches, no bloating (except when I accidently get glutened) and am just feeling better. I wish his office would start a club, would love to meet and talk with other celiacs. I have an appointment in 2 weeks and am going to ask him about it. What do you guys think?

I think that would be a great idea! Maybe they would let us put a flyer in the office...or direct them here if interested..let me know what he says...I don't go back until July

ddlennon Newbie
ddlennon
Posted

I just want to put out there that my neurologist, Dr. Richard Serano in Fayetteville, NC is a specialist with Celiac. If your insurance requires a referral, make sure Celiac is listed as the reason.

Tricare WILL approve it with persistence...for all you military folk :) It get's covered under the reimbursement deal. You pay out of pocket up front and receive partial back. I paid $225 for my first visit and within 4 days I had a check in the mail for $206 and some change. That is WELL worth it to me.

Hello, I would like to go to the doctor here in Fayetteville because I haven't been tested for celiac disease but I think I might have celiac disease because I have epilespy and I have alot of the symptoms and I would like to talk to a doctor who knows about the disease because my neurologist don't know much about the disease. Do you know if Dr. Serano takes medicaid?
wjp Newbie
wjp
Posted

Not sure about the medicaid but I would definitely call the office and find out. Their number is 910-483-9200. Had my appointment but totally forgot to ask about getting a support group together. If I get time from work this week I'll call and talk to one of the nurses.

  • 2 weeks later...
ddlennon Newbie
ddlennon
Posted

Not sure about the medicaid but I would definitely call the office and find out. Their number is 910-483-9200. Had my appointment but totally forgot to ask about getting a support group together. If I get time from work this week I'll call and talk to one of the nurses.

Thanks I am going to call to see if they except medicaid. I hope you are able to get a support group together. That will help alot of people.

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  • 4 months later...
Bugzy88 Newbie
Bugzy88
Posted

Hi!

I also go to Dr. Serano and have been combing the web to find people who go to him who are diagnosed with celiac disease. I've been diagnosed since March. I had really bad vertigo which Dr. Serano was able to diagnose. Herpes 1 and 2 were going wild and attacking my 8th Cranial nerve which deals with your balance. Dr. Serano delved deeper and found I have celiac disease. I was also deficient in a couple of vitamins and also have issues with my thyroid, although not enough to take synthroid. The gluten-free diet is okay as long as you don't want to spend too much money at health food stores. I've substituted corn tortillas for bread and splurge occasionally for cookies and other gluten-free products. Does anyone know of a good dietitian?

I am willing to put together a support group. We could meet at one of the libraries. I just need to find people. Nice to see you Deedee! Anyone interested?

Let's see what we can do!

Michelle

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