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Coeliacs In England?


nutzieone

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nutzieone Newbie

Hi there. I know there are some old posts from people looking for other Coeliacs in the UK but I thought I would post a new one to see if there is anyone out there!?

I've been diagnosed now for about 3 years. I still struggle but mainly because I was nearly simultaneously diagnosed with Rheumatoid arthritis which has been causing me problems as well. I feel that I have the celiac disease under control most days but am always looking for interesting tips and ideas related to the gluten-free diet!

Feel free to contact me!


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nikki-uk Enthusiast

Hi there,

I'm in the UK and my husband and son have coeliac disease.

Like you my husband also has arthritis (he has Psoriatic arthritis...very similar to RA) and has been gluten-free for 6 years now ( :o is it that long!)

There's loads of useful info to be found on this board - and they're a friendly bunch ;)

Glad you've found us! :D

Lozfl Newbie

Hi there. I know there are some old posts from people looking for other Coeliacs in the UK but I thought I would post a new one to see if there is anyone out there!?

I've been diagnosed now for about 3 years. I still struggle but mainly because I was nearly simultaneously diagnosed with Rheumatoid arthritis which has been causing me problems as well. I feel that I have the celiac disease under control most days but am always looking for interesting tips and ideas related to the gluten-free diet!

Feel free to contact me!

hi live in scotland just now (due to move to gateshead soon) i am not sure yet if i have this the dr's think i have and have tested me :(

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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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