Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rapid Weight Gain, Help


Mizzo

Recommended Posts

Mizzo Enthusiast

Unlike the majority of Celiacs, my girl was not underweight but in the 95th percentile on wt and ht before the diagnosis. which is one of the reasons for it taking so long to get the correct diagnosis.

She has been gluten-free since mid April and suddenly in the last 3 weeks has gained 4 lbs. This may be cause for a happy dance for most parents but I have been watching her diet for over a year now and am worried. She had a yearly checkup in June and lost a BMI point and that was good but now its probably back and up some.

It's summer she is swimming nearly everyday, riding her scooter etc.. Certainly getting more exercise than the previous months . Her diet is not great,but not horrible. She hates most vegetables but I force at least 2 servings a day into her, as well as 2 fruits. she loves her proteins and dairy/cheese. She gets snacks like all kids, and I have been playing with every homemade muffin/cookie recipe to include flax, fiber etc..

Usually she goes 2 hours without a snack and then wham, she wants to eat every 15 minute for like 2-3 hours. Is this normal ? I actually find myself yelling no more eating, take a break.

Sometime I can't seem to fill her up. Anyone else experience this voracious appetite at certain times of the day? It not always the same time of day either.

Does it level off?

Maureen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



starrytrekchic Apprentice

Oh yes. Sometimes I feel like I'm starving. (I'm also one who gained weight the worse I got rather than lost.)

It was worse before I went gluten free, but since (8 months) I've intermittently had it, usually in the days after being gluten.

I'd fill her up on high-fiber and high-protein food. Popcorn was especially useful for me for a midday snack that would actually fill me up with being too many calories. Stay away from the candies and sugary foods that will make her blood sugar crash 2-3 hours after eating. And above all, check and see if she's still getting gluten anywhere...like I said, it normally happens to me after getting glutened.

catgriffith Newbie

Unlike the majority of Celiacs, my girl was not underweight but in the 95th percentile on wt and ht before the diagnosis. which is one of the reasons for it taking so long to get the correct diagnosis.

She has been gluten-free since mid April and suddenly in the last 3 weeks has gained 4 lbs. This may be cause for a happy dance for most parents but I have been watching her diet for over a year now and am worried. She had a yearly checkup in June and lost a BMI point and that was good but now its probably back and up some.

It's summer she is swimming nearly everyday, riding her scooter etc.. Certainly getting more exercise than the previous months . Her diet is not great,but not horrible. She hates most vegetables but I force at least 2 servings a day into her, as well as 2 fruits. she loves her proteins and dairy/cheese. She gets snacks like all kids, and I have been playing with every homemade muffin/cookie recipe to include flax, fiber etc..

Usually she goes 2 hours without a snack and then wham, she wants to eat every 15 minute for like 2-3 hours. Is this normal ? I actually find myself yelling no more eating, take a break.

Sometime I can't seem to fill her up. Anyone else experience this voracious appetite at certain times of the day? It not always the same time of day either.

Does it level off?

Maureen

I don't know if the crazy appetite levels off, but I'd like to know! My 7 year old daughter eats ALL the time and is tiny. Well she is actually very tall, but is all muscle and bone. ?? (I do not have celiac but went gluten free in support of her and have gained weight!! Not fair.) But she is always hungry too so I see it is something to do with the celiac.

Wolicki Enthusiast

My son was eating like a crazy boy for months after his celiac diagnosis. He would eat a whole jar of peanut butter, then a giant bag of tortilla chips and 6 yogurts. This kept going on and on. His thyroid went wonky, then we ended up getting a million blood tests.

Thankfully, I figured it out: DAIRY. He was intolerant of dairy, and had malabsorption as a result. We took away the dairy, and within 3 days, his appetite leveled out. Now he eats normally. About 3 months into no dairy, we added back cheese, then yogurt, as long as he took a Lactaid with it. Last week, he had his first glass of milk and he is a happy boy again. I couldn't believe the difference in his appetite.

You might want to take a look at that.

  • 4 weeks later...
abjhenson Newbie

I can symathyze with you completely and to the last poster you bring something to my mind about the dairy and now it kinda makes sense to me.

My daughter was born 7 lbs 12 oz. By 3 months she was 18-19 lbs. NO JOKE. The Dr. we saw only one time as an emergency told me to put her on a diet, which I didn't. I just put less formula in her bottles. My daughter only gained 1 lb from 3 months to 12 months. She was over 100% up til 3 years old. I looked at her medical records at 3.5 she was 42 lbs. Now at 5.5 years she is 41 lbs. The gluten free diet stopped her from gaining weight at all. The highest her weight got was 44 lbs in march of this year. In July of this year I put her on a elimination diet and she lost 3 lbs in a month and all of her bloating! she is now at about 75% (she is short). I just started giving her lactaid pills yesterday for the small amount of dairy she is getting right now. So try that on top of the diet and one more thing, less sugar. I do not give my daughter fruit right now. She gets it through yogurt and I don't give her cakes or cookies for the time being until we can find out what is causing her bloating and imflamation.

I hope this helps. I feel like i'm starving my daughter but she feels a lot better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.