Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Out


alissar

Recommended Posts

alissar Contributor

Hello,

I have Celiac (found out this year) and I keep getting glutened. I am starting to get so frustrated. I am in graduate school and live in Connecticut (my family does not live here). My fiance is part of a very close, big, italian family who loves to get together and go out to dinner every weekend. They go through every effort to find restaurants that have gluten-free menus (Bertuccis, Chilis, Olive Garden, Burtons, Wood N'Tap, etc.). Despite their efforts, almost every time I go out to dinner with them, I still end up getting glutened and I am sick all week. At this point, I dont really trust the gluten-free menus. If anyone lives in CT, any good restuarant suggestions?

If I just order a salad every time I go out and bring my own dressing, would that be a guaranteed gluten-free option? Maybe I should skip any meat on the salad too. Anything to watch out for with salads? Or, does anyone have any other tips?

Also, as a college student my friends and I like to get together and go to the bars. I am confused about which alcohol is safe and not safe. I know I can drink wine. I know I can't drink beer. But, what about mixed drinks? Are margaritas safe?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

It sounds like the restaurants you're visiting are not taking enough care to prevent cross-contamination. If you're super-sensitive I don't know that you'll even find a salad made in a gluten-covered restaurant kitchen consistently safe because of CC on the cutting boards. I personally don't have trouble with restaurant salads served with oil and vinegar.

As far as alcohol, unsafe things are beer, malt liquor, and many wine coolers because they have either malt alcohol or flavoring.

Here is a "safe" list.

https://www.celiac.com/celiac-disease/gluten-free-alcoholic-beverages-r218/

Pay a little attention if you drink whisky, gin, bourbon, vodka, or liqueurs made with grain alcohol. The distillation makes it safe for most celiacs, but we do have a few people here who find they don't tolerate distilled vinegars or spirits. If you find you're sensitive, Bacardi rum and 100% agave tequillas like Jose Cuervo are not made from any grains at all.

As far as margaritas, I have never seen a margarita mix or sour mix with gluten. If you react to grain alcohol, you'll have to skip the Triple Sec.

lischro Apprentice

I thought vodka was safe- but i realize you're right, it's typically a grain alcohol. Is potato vodka the only safe alternative in terms of vodka??? Or is that only if you're sensetive.

Thanks for clarification!

lilbit Apprentice

I go out every FRI night with friends for dinner. If they choose a place I can't eat off the menu, I call ahead and say we have a big group and someone with a major food alergy. would they mind if the person brought thier own food and ordered a beverage from them- no one has said no yet.

I also have what I call my "freak bag" Its a little zip up lunch bag and I keep all kinds of gluten free condiments ( I've learned to bring my own ketchup and stuff cause ppl do wierd stuff to the ones on the tables...)

And you have to be proactive- its harder to be spontaneous with eating out- it can be done, just have ask lots of questions- call ahead when you can... things like that...

As far as liquor- I stick to wine most of the time... I have had some really expensive scotch and had no reaction... Everything I read on the net about liquor seems contradictory...

Skylark Collaborator

I thought vodka was safe- but i realize you're right, it's typically a grain alcohol. Is potato vodka the only safe alternative in terms of vodka??? Or is that only if you're sensetive.

Thanks for clarification!

It is unusual to be sensitive enough to react to distilled spirits. I just mention it so you're aware there is a slight chance.

Yes, a potato vodka would be gluten-free without question.

I drink single malt scotch all the time and don't react. I tried some Redbreast recently and my stomach got oddly upset.

T.H. Community Regular

re: the alochol - you might want to consider holding off on the alochol for a little bit. My own GI had mentioned that alochol would slow my healing. If you are still getting glutened a lot, it might be helpful to keep alcohol out of your diet until you're feeling better.

Oh! For safe foods at the Olive Garden, anyway, their gluten free pasta might be the best choice - it is prepackaged and not made there. They just heat it up, so as long as you make sure they don't touch it with contaminated hands, that might do for you. A conscientious Olive Garden manager has said to me before that he didn't consider any other gluten free choice of theirs actually safe for someone who needed truly gluten free (rather than just 'very little gluten'). Too much chance of cross-contamination.

Have you spoken to any managers at the restaurants? Often if you do, and make it clear just what is needed to avoid getting ill, they can tell you if it can be done, or what they have that would work for you. Many times, the manager took it upon themselves to oversee our food prep to make sure it was truly free of gluten.

alissar Contributor

Thank you all for your help! I am still pretty new at this and its a bit confusing. Also, I get embarrassed drawing attention to myself and asking restaurants for special services, but I think that is something I really need to get over. A lot of my friends don't understand the problem and they say, "C'mon, a little bit won't kill you." They think I am being dramatic. Its been a tough transition. So, I really appreciate all of your help! I will lay off the alcohol for awhile and be more vocal at restaurants. I actually went out last night with my italian in-laws and ordered a salad with oil and vinegar...no reaction! Thanks for the tip! Also, thanks for the advice about Olive Garden. I have ordered the mixed grill but that probably was not a wise choice (reacted)..next time, I'll stick to the gluten free pasta. THANKS!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skgirl Newbie

I am reading "the first year - Celiac disease and gluten free eating" by Jules Shepard awesome book!!!! Extremly helpful!! She has a card in there that you can make one for yourself and give to the waiter/waitress that way your aren't bringing extra attention to yourself you could even excuse yourself to the bathroom and give it to the manager or waiter in private away from your friends.

As for your friend the comments that they are making about its not going to kill you...directly no but it can and will lead to other diseases if you don't take care of it.

I suggest to anyone new to Celiacs to read this book!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.