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Symptom Recognition

vegiac980

By vegiac980
in Coping with Celiac Disease

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vegiac980 Rookie
vegiac980
Posted

Hey! I'm Amanda

i seem to have some problems. I may or may not have a weak immune system, I thought i did, but then i was diagnosed with celiac so that is what the sickness could be. But I want to know if I'm screwing up ALL the time, or just getting sick

I have been sick 7 times in the last two months, and they are mostly tummy problems, with occasional cold/flu.

So is there a way I can tell the difference between my real sicknesses and celiac screw-ups?

also, i'm wondering if it is necessary to use different pans, i have the strainer and toaster, i just want to know about pots and pans.

Also Canadiens, what shampoo/conditioner do you use? And deoderent .

Thank you so much! This has been super hard and i've only had celiac 3 months and 3 weeks

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Skylark Collaborator
Skylark
Posted

As you get more used to the diet, you'll be able to figure out your gluten symptoms compared to symptoms of a regular illness.

Some people find that teflon pans can retain a little gluten. Pots and pans you can scrub really well with steel wool are fine to keep using.

mushroom Proficient
mushroom
Posted

You also need to be careful with wooden and soft plastic cutting boards, and wooden and plastic spoons and other utensils which retain gluten. Wash your hands often, and if you live with a gluten eater you must be obsessive about cleaning counter areas.

But if you are a celiac your immune system is not functioning the way it should, and that makes us more likely to pick up viruses that are going around too.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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