Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Find Some Answers


Hd7747474

Recommended Posts

Hd7747474 Newbie

Over the last year, I have developed and have been struggling with the following symptoms. I've been calling out of work sick, canceling on social events, and just feeling irritable and lousy.

  • Diarrhea--foul-smelling, watery, several times a week
  • Foul-smelling gas
  • Lactose intolerance
  • Abdominal pain and cramping
  • Feeling like I'm about to have diarrhea but can't go

I've also had eczema for a few years now on the back of my scalp, and it has recently expanded into a bumpy, extremely itchy rash in some areas.

When I first when to the doctor, she didn't seem to take me seriously and suggested I had lactose intolerance and/or IBS. She advised me to cut out dairy and keep a food journal of what I ate and when I had symptoms. Although eliminating dairy helped a little, I was still sick several times a week. About 6 months later, she finally took me seriously and did some tests for parasites, thyroid problems, etc. All came back negative. Then she ordered a few celiac tests:

TISSUE TRANSGLUTAMINASE IGG

My value 0.34

Index <0.90

TISSUE TRANSGLUTAMINASE IGA

My value 1.11

Index <0.90

When the tIgA came back positive, I began lurking on this site, reading all up about celiac disease. My doctor finally referred me to a GI, who tested my amalyse, vitamin b12, INR, bilubrin, alkaline phosphatase, albumin and ALT. Everything except for the ALT came back normal (ALT was a little high, although it was high when I had it tested several years ago before these symptoms started).

The GI performed a colonoscopy and upper endoscopy, and the biopsies for both came back negative. The office told me this was "good news," but it wasn't for me because I was desperately looking for some answers.

I am hoping for some guidance from this community, as I'm at a loss for what to do now. My GI doesn't seem to be very proactive, so I feel like I'm my only advocate for my health.

  • What could it mean that I had positive tIgA but negative tIgG and negative biopsies?
  • Should I go gluten free now?
  • What else should I ask my doctor to do/test me for?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

there's more tests to be taken for a more complete Celiac panel...

Ttg Iga & Igg is only a small piece to the puzzle- Ttg can also be associated with other diseases (*other members on here can tell you more about that)

your GI should have also tested for:

Antigliadin Iga & Igg

total serum Iga

Endomysial Antibodies

if you're not too sick- it would be a good idea to stay on a gluten filled diet untill you get those other tests- do it soon, so u can get on a gluten free diet if u want.

im sure the other members will chime in too- A LOT of smart people on here that should have been doctors. good luck :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

    3. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

    4. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,055
    • Most Online (within 30 mins)
      7,748

    EllieBelly
    Newest Member
    EllieBelly
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
    • Churro
      No I haven't had one since 2021. I rarely have more than 1 per week. 
    • trents
      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done recently?
    • Churro
      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.